…it’d put a smile on your face this morning for sure!!  Emerson is in rare silly form todayJ.  She’s a crazy one & she’s driving me nuts!!!  Of course I’ll take it, but she is one demanding, self-centered, do it my way & do it NOW little princess.  Today’s conversation so far goes something like this… “Mom”, “what?”, “MOm”, “what Emerson?”, “MOM”, “yes Emerson what do you want?”, “MMMMOOOOOOMMMMM!!!!!!!” (you get the gist of it).

There’re a few little mechanical issues with Eme’s bladder tube & the site is still very painful, but she’s otherwise in good spirits.  They’re repeating an EKG today to measure the electrical activity of her heart now that she’s been on the nasty med combination for a few days.  She’s on day 5 of 14 for treatment & discharge is planned for a week from Wednesday.  I need to talk to Omaha to see how things will play out from there.

I honestly think the team here is shocked… like jaw on the floor shocked.  They can’t believe how different she looks from last week.  You honestly have to see it to believe it – when she’s feeling well you’d never in a million years guess all this child has been through.  2 multiple organ transplants (8 organs in all)?  Code Blue?  Multiple systemic organ failure?  Spontaneous fractures in all limbs?  Countless months on 24-hr dialysis & the ventilator?  4 prolonged episodes on the oscillator (high frequency/last resort ventilator)?  The worst case of intestinal pneumatosis Omaha’s ever seen?  Virtually zero hope for survival?… (yep, there’s more).  Unbelievable, it really, really is.  That’s my girl – she takes a lickin’ & keeps on tickin’.  I’m not sure where she gets the stubborn streak from, but let’s hope it lasts… (although a little sweet patience when she’s feeling well would be nice!) 

I had a great trip to the lake Saturday & accomplished all but the swim and the bonfire (bad weather).  Emerson loves the Playmobil vet clinic (she calls it her "lello house") & it even keeps her occupied for up to 20 minutes at a time (sweet silence).  My mom & the boys are driving to the hospital this afternoon.  Eme will be super happy to see her brothersJ!