Small changes to last week’s plan…  Emerson’s kidneys didn’t like the switch to her antibiotic schedule and the team decided she couldn’t be discharged on Q6 (administered every 6 hours) IV meds.  Luckily, though, they changed around some other meds & her kidneys, at the moment, are cooperating again.  They opted to keep her a little longer, though, and watch them closely.  That, plus, the meds she needs to go out-patient couldn’t get to us until next week.  So, the new plan is to discharge Tuesday.

It’s been another 4 week admit & I’m going stir crazy!!!!!  I really, really hope Tuesday’s the day!  In big news (shhhhhh… we can’t tell Eme this time), I talked to Dr. B & he gave us the go ahead to re-attempt the Make-A-Wish trip for February!  It’ll be the last attempt.  If we cancel again she’ll have to opt for a non-trip wish.  Of course, I have no idea if she can do it but a Mommy certainly can hope!  As usual this journey is lived one day at a time. 

As for transitioning back to Colorado, the current agreed upon “plan” is to stay in Omaha through Emerson’s 1 year post-transplant #2 anniversary, which will be in April.  If she’s doing well at that time we’ll (hopefully) start packing our bags!!  There’s still much to work out between Denver & Omaha concerning Eme’s long term care.  It will not, unfortunately, be a seamless transition.  Emerson is complicated and Omaha is very protective.  I appreciate that & know we all have the same end goal in mind.  Of course, I also have the added goal of rejoining our family.  I’m pretty confident we can get it all worked though.

Not much else to report.  My main goal this weekend is to get caught up on promised replies to all my website friends & also to put more thought into fundraising ideas.  Hope your weekend is a productive one (or a totally nonproductive one, which sounds great tooJ)!