Guestbook

You may use this Guestbook to show your support for the family
and send them greetings by adding an entry below.

Tracey Hill Nies
Gosh I hope you are safe in Colorado and getting ready to ring in 2010 with all 3 of your boys! I hope 2010 will be a great year for the White family-one that brings a healthy Eme back to her HOME! Thinking of you! Happy New Year to all of you! Tracey
Erika Lyn Smith
Happy 2010!
Tifanny (Denver)
I'll chaulk this one up to God. And I'll pray that between the ticket and Eme's beautiful smiles, there is some high hopes for 2010. If you ever need a ride from DIA, I'm about 15 minutes away! sometimes the oddest things happen, you never know ;-)
julie kreisman
You are right god gave yu that ticket. Now go and enjoy your time with your boys. They to need to see you. It is truly amazing what god can do if you just open up to him. Enjoy your New Years....
Annette W
Oh, my! Right now as a I write this you probaly are on the way to the airport (we are two hours ahead). I am so excited for you! And, YES!!!, it was a little help from above. Just as you have experienced it before, He is trying to help out a very, very special lady. Have a WONDERFUL time back at home...what a wonderful way to ring in the new year. (Extra prayers for no problems with the flight!) Thank you so much for that great photo of Eme for the New Year. It sure warmed my heart to see her beautiful smile and twinkling eyes again! She is so pretty! Happy New Year, dear Erika, to you and your family. We all pray that 2010 is an easier year for all of you. Love, Annette W
Sara
Erika- God is so amazing!! Have a great time with all your boys. Thank you for posting this, we all need a reminder once in a while of God's power. Expect Miracles.
Deanna Bingley
I got chills reading your post - Whatever the reason you're going home, the boys will be ecstatic! Enjoy your night with the boys! Happy New Year - Here's to all good things in 2010!
Trisha Kurtzhalz - Helen's Grandmother
I believe!!!!! Have a safe trip and a very Happy New Year's Eve with those beautiful boys! Wishing you all that is wonderful and good in the upcoming year. Sending love & prayers from Vermont.
Vito and Ladea Dante
Just stopping by to wish the entire White family a very Happy New Year and a 2010 full of joy, love, laughs, reunions, health, happiness, prosperity and a permanent return to Colorado for Emerson and Erika. God Bless you all!
Ana and Savannah
Wishing you and your entire family a Happy New Year! P.S. I believe.
MICHELLE
HAPPY NEW YEAR!!! A SIGN OF GOOD THINGS TO COME IN 2010
Kathy W
Iwas so happy to read of your fantastic ticket home. God's gifts are all around us . We don't always see as clearly as you do. Love and prayers, Kathy
Krystena
WOW! I hope check in goes as hoped and your flight is a safe one. Love, Krystena
"Maama" Kathi
We will EXPECT that flight to 1) exist and 2) you be on it! Have a great time with your CO family, Erika. Our prayers and thoughts will continue to be w/ Eme...
Kim P
Happy New Year Eme and Erika!! I hope your travels are uneventful and you have a great celebration with your boys at home. 2010...new year...
Erin Koesters
yippee yahoo! So happy for you all! Happy New Year our friends.
sue(moirasmom)
WOW! Happy New Year!That is a beautuful picture of Eme that you posted:)
Mitzi in Maine
Happy New Year! I am glad you got your magic ticket and can enjoy Colorado with your boys! Great news that Em is looking and feeling better! She is beyond an amazing miracle over and over! One of my favorite quotes: "Courage doesn't always appear as a loud roar...sometimes it's a quiet thought of 'I'll try again tomorrow'. God Bless you and your family!!
Colleen McQueen
Erika I am so happy for you and even happier for the boys!! all three... I hope your travel goes off without a hitch! Have a GREAT!!!!! weekend.. Happy New Year! Always thinking about you!! Colleen
Charlotte
Happy New Year, Erika! So glad that you will be able to be with your sons and husband...and so glad, too, that God sent you "the miracle" of the ticket! You all deserve this time together...have a safe (uneventful) trip and hold those "boys" of yours very close and very tight. We will hold Eme just as close in thought and prayer!
Kathy Russell
Hi Erika, I've been out of town for several days, but the first thing I did when I got home was check your journal. I'm glad to see Eme has shown some improvement over the holidays. Still praying for answers to all your questions. That's amazing about the plane ticket. I'll be praying that all goes smoothly for you, and that it really is a little miracle blessing for you from God. I hope you have a very Happy New Year with your boys and that 2010 brings much happiness and good health to the White family.
Patti
Eme is looking pretty good. What a cutie! I wish you and your family a very Happy New Year. Enjoy your boys tonight and good luck to Collin this weekend. I continue to pray for you and your family and always keep you in our prayers. May 2010 be the best year yet! Happy New Year and have a safe trip! Enjoy!
Tifanny (Denver)
I am praying for a Happy New Year for you family Erika and that 2010 brings the family back together in body and brings peace to mind. I pray for many laughs, smiles, hugs and kisses, and that Eme's dr's continue to find answers for her recovery. Much Love and Prayers always, Happy New Year!!!
Michelle
May 2010 bring many smiles, love, laughter and peace.
Ellen F
Erika: In this time of reflection of the past year and wondering what lies ahead, I can't help but think that with ALL the challenges that came with 2009, you managed to create some WONDERFUL memories for yourself, Eme, and the "boys" back in Colorado. It seems like a better year than 2009 was. With that in mind, though I know the unanswered questions are not entirely gone, my hope and wish is that God's grace continues to bless your family with more answers than new questions, and more quality time for all those you love and who love you. Your seeming instinctual ability to figure things out is awe inspiring. Thank you (again) for sharing your journey. HAPPY NEW YEAR! All our love and prayers, Ellen
Deani~Sequim
Thank you so much for being such an inspiration to so many...on Christmas I took your advice to hold those I so dearly love a little closer, longer and tighter...just know that heartfelt thoguhts and prayers are with you, Eme, Jim and the boys...every week in church I say a prayer and light a candle for all of you...I pray that you find answers to your questions...peace...and most of all that you feel the love from all of us who love the Whites!!
Quita Furr
Erika & Eme, Wanted to say I'm so happy that you are upstairs! Wishing you a new year that is full of joy and love and wishing for you to be at home in Colorado soon. much love, Quita & family
Joan and Kylie
So glad you graduated upstairs!! I want you to know after we said our mealtime prayer this afternoon, Kylie looked up at me and said,"Mommy, Emerson is going to be okay." We had not discussed Eme today at all. We ususally check her post at night. She thinks about her all the time. Out of the mouth of a babe!! We hope 2010 brings life outside of the hospital and Omaha for the White family. We love you. God bless!!
Bre
All I can think to say is God Bless you. You have been through so much and keep fighting more!! Your a wonderful mother and I am sure your boys know how much you love them. Keep fighting the good fight. You'll never regret doing all you can do. In the end you will be the winner.
Candice Behm - Portland, Oregon
The note Santa left for the boys is precious & priceless. One to keep for years to come. Praying that next year indeed Santa & the reindeers can just stop at your one home for all 3 children & that you will be celebrating together. Thinking of you all.
sally
Glad that you made it out of the PICU- I've followed your blog since a prayer request was made around Thanksgiving last year- Emerson has prayer coverage in Connecticut.... I read some on the super-bug Emerson keeps growing- and wondered- are they sure that she isn't getting a new batch of bugs each time her system takes a hit? I read these bugs are gut natives, but a significant source is also healthcare providers' hands. And I'm sure that they've thought of that at the hospital too- You guys have come so far- it would be awesome if SOMETHING was easy to modify...
Lori from CO
So glad to hear that you are out of the PICU. I can't help but wonder..again..sorry for wondering and posting about this again... if Emerson could use IVIG. My son (with short gut) and I are getting our IVIG infusions again today and the thought keeps coming to mind that it could help Emerson. I apologize if this is unwanted info and has nothing to do with Emerson. My son has colonized some nasty bacteria in his bile ducts/liver because of chronic pneumobilia (from an altered biliary tract), SIBO (no ICV and no ileum) and a genetic immune deficiency (CVID) so at least we know where we are targeting w/the rxs he takes and have found something that works for him (so far at least..). I know Emerson's situation is much more serious but can't help but hope that something relatively simple could help her somehow. I don't know if most consider IVIG relatively simple in an immune suppressed child though ?? Please accept my apologies if this is unwanted info or if appears that I am second guessing anyone in any way- just want so badly to be able to help somehow.
no apologies - thanks for your input :)... it's just something the docs here haven't been willing to explore (at least not yet)
Patti
Glad you were able to get some rest. You needed it! I'm praying more now than ever that some answers get sent your way and they come with news of joy. Hoping for an even better 2010. Hang in there. Hugs to you and yours!
Deanna Bingley
A small box of Lilly's Hanna's are on their way. As she grows out of more, especially her size 100 playdresses, I will send those as well. :)
sue(moirasmom)
(((((hugs))))))
Deanna Bingley
So happy to hear a bit of good news and more comfort for Mom! Hopefully the stay in the Peds unit is much shorter :) Have a Happy New Year - even if not in Colorado.
Sherry Boyle
Glad to know that Eme was released from PICU and that you are more comfortable in the new room. As always, praying for effective treatments for Eme's issues and improving health in the days ahead.
Brenda B.
I've been following your blog for a long time. So good to hear that Eme is out of the PICU! I think of Eme, you, the boys, and Jim each day and continue to pray for strength, comfort and rich blessings in this coming New Year.
Annette W
I was so happy to hear from you! Baby steps....at least there has been some progress. AND you get something better to sleep in! Yeah! Hope you are actually able to catch up on some sleep. Happy New Year to you, too. I pray 2010 will be easier for all of you....with more smiles and good days. Much love and thinking of all of you, Annette W
Charlotte
Was so happy to have an update on you and Eme! The two of you are both such fighters...as are your husband and sons. New Year's blessings for you all...prayers for wisdom for the doctors...and comfort for you and Eme!
Colleen McQueen
Erika.. a day has not gone by that I don't think of you 100x over... I am always checking in on things... How well you know my journey ahead!! Thanks for your words of support! Will we as moms ever know PEACE!! Colleen
Kate StClair
I'm so glad you updated, I've been stalking your blog! I hope you and Em both can get some much needed and well deserved sleep!! Kate
Tifanny (Denver)
Love and Prayers coming your way and to the Boys at home everyday. Wishing your New Years is in fact a happy one, and filled with many answers...
Michelle
Erika, Glad to hear Eme is out of PICU and you have gained a sofa! :) 2010 could be filled with miracles and smiles, both are wished for you and lil Eme!
Cindy LF
So very glad to read that Eme's out of PICU and you have a sofa rather than the red recliner! Hope you both are able to get better rest! Hugs!
Lynn B.
I hope Eme is doing better and better and that the doctors are finding more answers every day. Sending lots of prayers your way!
Krystena
HiYa! How's the star of the show today? Hopefully, cultures revealed a new, treatable bug and Eme is on her way to better days and that she has had a chance to tear into her Christmas presents. Thinking of you, Krystena
Lauren Shaivitz
Erika, I just wanted to let you know that I am thinking of you all the time and saying prayers for Eme. I truly hope she is improving and that you haven't written in the past few days because you are busy playing. Love, Lauren
Kim P
Hope everything is ok. Praying everyday for Eme!
Annette W
Just want you to know I am thinking of you.... Annette W
Trisha Kurtzhalz - Helen's Grandmother
Hoping that no news is good news - just checking in on you to let you know that I am thinking of you both and sending love & prayers from Vermont.
Patti
Oh my....I've missed so much in the last few days; although never without a thought of you, Eme and Jim and the boys. I hope things are going a bit better today. I am so sorry for all you have gone through. I truly am. Always in our thoughts and prayers. Hang in there!
Brenna
May God bless you and your family today. What a long road for you all. Praying for you.
Cindy LF
Back checking in.....I'm praying for you Erika. Special prayers for Eme, Collin and Bradley. Blessings of strength to you and Jim. Love, hugs and prayers, Cindy
Jenn Y.
Happy Almost New Year... my new year wish this year is for you, and Eme. I wish that the new year will be filled with more joy and less hospital stays than the previous two; that you will have many moments spent with your boys. I am also hoping tonight that Eme is still doing better and getting stronger by the second. Always in our prayers... Jenn
sasha Gaines
I am praying for Emerson Today and everyday! Love, Sasha
Emelie
Dear Erika & Family, I have also been a follower of Eme. She has touched our lives each day we check in on her, and my boys always ask me "who is this little girl", and I tell them that she is a sweet little one who needs some special prayers right now. You and your family are in my thoughts and prayers daily. Emelie
Ruth Turner
Hi Erika and family, I have been following the posts, but haven't written in a while...it almost felt like there are so many each day that you couldn't even read them all, and I always seemed to be saying the same thing! But I just had to say how very happy I am that Eme improved a little -- enough to want her Mommy on Christmas day. What a blessing and gift from God. As always, you are never far from my thoughts and prayers. May God comfort and hold you in His loving arms today and always. Ruth
Tifanny (Denver)
I got this today and I wanted to share it with you and every one. It is so simple, and just goes to show the small simple things are sometimes the greatest things we have. Glad to see Eme is making baby steps to recovery and praise the good dr's who keep on fighting with you. Love, Hope and Prayers to the SuperBoys down south and to SuperMom protectng her Princess to the east... I asked God for water, He gave me an ocean. I asked God for a flower, He gave me a garden. I asked God for a friend, He gave me all of YOU... If God brings you to it, He will bring you through it. Happy moments, praise God. Difficult moments, seek God. Quiet moments, worship God Painful moments, trust God. Every moment, thank God.
Jen (Carter's friend)
I keep up with all of your entries consisently but don't always have a chance to write anything. Today though, I just wanted to let you know that you and your family are in my thoughts and prayers. I hope that 2010 brings your family peace and good health. You have an amazing strength that most of us can only wish we had. Your family has shown us all the power of love and what it can do to keep a family together. I'm happy to hear that Eme is doing better - your team of doctors is incredible and I know that they will continue to fight for Eme. When it gets tough, please know that we are all hear with you - in thought, prayer and spirit. Happy New Year!
Cindy LF
Just checking in and wanting to let you know, I'm thinking about you and Eme. I'm praying for you both. I'm also praying for Jim, Collin and Bradley too. That's an extra special man in your life to write such a sweet note! I'm praying for mega strength and endurance for your family. I'm praying for health, answers and getting to be with family for you and Eme. Hugs and Blessings to you Erika! You are a huge inspiration! Love, Cindy Cooper
Lucetta
Stopping by, reading up, sending prayers. I often don't comment, but I always read and send up the best possible thoughts for you, Eme and the boys (both small and big!) Lucetta, Angus' Mum.
Laurie & Shania
Hope Eme is still fever free! How long does Eme have to stay on the strong antibiotic? It sounds like the line is what caused the infection. Praying you get some answers from the doctors and that you have a better week! I love the pictures! All the kids are getting so big!!
Krystena
Hopefully, the the ONE antibiotic still works or even better, a maybe a different bug this time... I suppose at this point you tend to expect the unexpected but I'm sure that doesn't make it any easier. I love the picture of Eme and Santa. It's way to cute. I can see she wasn't about to take her eyes off him. Hopefully, the new year will bring forth some promising news. As always, sending lots of love and prayers. Krystena
Alia Abu-Bakr
Hello,My name is Alia and I live here in Denver. I sent your little angel a gift a couple of months ago. I would love to meet your special child sometime if it is ok with you. Emerson is ALWAYS in my thoughts and prayers. She is a littel hero and a fighter. I hope teh doctors can resolve her siezurs and help her to continue to heal and recover. My e-mail is alialuara@gmail.com-I hope to meet Emerson and your whole beautiful family. Warmley-Alia
Remy (Solarte) Bruder
Your smiling photos fill my heart Eme! Erika, I'll keep your family in my prayers. Continue to believe in miracles! Fondly, Remylin
Joan and Kylie
We continue to pray and check on little Eme daily. We are praying that things will turn around !! She is a strong little one. Things keep coming her way and she continues to fight. That is our girl. Stay strong!! We love you. Joan and girls
Lauren Shaivitz
Erika, I am so sorry that this hospital stay is lingering on and that things are so unknown/scary right now. It sounds like the doctors are incredible and on top of everything. I'm so glad to hear that Eme is more like herself and awake and playing. I'm sure that seeing her smile is music to your heart. I wish I oould make it all better and fix everything, but if that were possible you would have done that already. When things calm down, which god willing they will soon, I haven't forgotten my offer of wanting to send you a present for YOU! When you have some "me" time (eventually) you will tell me what sounds good to you! Thinking of you and praying for a HEALTHY NEW YEAR FOR THE WHITE FAMLY!!!!
Deborah Youngerman-Cox
Erika, So sorry to hear that you were away from your boys again this Christmas! Sending prayers your way for some answers to your questions and for a short hospital stay. Take care and stay strong!
Tracey Hill Nies
Oh no! I was so excited to see the Christmas post, but am sorry to see Eme has a fever and infection. I hope you still managed to have a nice Christmas with Eme and am sorry it wasn't in Colorado. Thinking of you!
Carleen Gerjevic
Erika, You, Eme and the boys have been on my mind constantly. You are such a great mom. I really admire your strength in trying to juggle your time with Eme and your boys, all the while sacrificing your own basic needs (like sleep). I'm here in Omaha and if there is ANYTHING I can do for you, just let me know. I know that hospital food can get old, so I'll be happy to bring you meals, sit with Eme, or whatever you might need. I'm praying for the best. Take care.
Jill P. from Colorado
Praying again for you and your family. Said a special prayer for you at church tonight.... Lord, send your Angels down to Erika and Eme and grant your healing powers. Lord, I ask that your healing hand lay on the White boys, Bradley, Collin and Dad! O blessed Lord, protect Thou me And my dear parents graciously; With Thy strong arm be ever near To brothers and to sisters dear. And all our loved ones in the land, Protect them with Thine own right hand. From sin defend and keep me free; Help me a Christ like child to be. Amen.
Bonnie Ermilio
Hi. I'm praying so much that Emerson gets better quickly and that they are able to find out why she's getting seizures. It's nice to hear that the hospital provides a room with donations of presents for parents to fill their child's stocking with gifts for them for Christmas. Emerson is in my thoughts and prayers. Your friend, Bonnie Ermilio
Doris
I'm so thankful Eme is better again. I hadn't been checking your journal because I believed you were in CO enjoying your family. I'm so sorry that wasn't true everyday. We did not have a family get together because of the snow. We will try next week end. We haven't been out and about since the storm started the first of the week. We are older so don't need to be out in the cold. You have been in our prayers continually and know God is watching over you and yours. Some day it will be better. He promises that. Hug Eme for us and the Curtis Berean Bible Church. You do matter to us. Love and prayers, Doris
Trisha Kurtzhalz- Helen's Grandmother
Gotta love that Santa! So glad he made it your way and that he knew just the right thing to say to those two beautiful, brave boys of yours. Thinking of you all - praying hard for a healthy, "together" New Year for your entire family. Sending love from Vermont.
Tammie Rae Dubs
Erika, yes, we've been thinking and praying for you and your family. Those boys are indeed brave, brave kids to be weathering this horrible storm. I'm sure they were disappointed but we will pray for your return to them soon. Love always....Tammie
Joyce J from IL
We keep praying for your little boys to remain courage and brave through this hard holidays so we will pray for next year to turn out so much better for you and Eme to be home with the family for Christmas! We keep praying for Emerson to improve and to go home again for goods! Hugs, Joyce and Family
Lynn S St Louis, MO
I am praying for you and your family!! It amazes me all that you have been through. You are so, so courageous. I hope Emerson continues to improve and is out of the hospital soon. I will say a special prayer for your boys. They sound like real troupers.
Ellen O'Connor
Erika, I am thinking of you and the family as always. I was so happy to hear af Santa's visit in Omaha & Colorado! That note from Santa brough tears to my eyes. Your boys are very special and brave. They come by it honestly having the parent they do. I hope you had a blessed Christmas and am so glad the little Princess is doing better. XOXOXO
Michelle
I hope that Emerson is feeling better today!
Annette W
Just today I have been able to get on a computer, and I am overwhelmed with all that is happened and by your letters of the past days. What is remarkable to me is how well you explain everything....and have the energy to do so! I am happy that there was at least some time for you and the boys...of course, we all continue to pray for them, too. They are as remarkable as you and Emerson for sure! Erika, it is you who have taught us so much, and I am sure I speak for all those who "guestbook" when I say how you have made us appreciate even more our families and children. I HAVE given extra hugs because of you and Eme; your words ring out, especially during this holiday season. Thank you, thank you!! I pray today Eme is even a little better than yesterday and soon you will see that beauiful smile! PLEASE get some sleep! Everyones'prayers can take over for awhile so you can rest! TAKE CARE....Annette W
Kim Martin St. Louis, MO
Kudos to the SANTA in your life, Erika. Sounds like "he" performed a little Christmas magic for the boys in Colorado, all while you and Eme's medical team in Omaha were performing some Christmas miracles in Omaha. Continuing to pray for calm and peace to finish up 2009 for the White Family. And then, we're with the Colorado Santa in reuniting the White family early in 2010. Comparing you to "Where's Waldo?" we're finished with this chapter, as finding you in your little red chair is getting old. Granted, on the floors of the Atlanta airport with a hair dryer to keep warm stumped us a bit, but we're ready for a new chapter, where the princess and her queen are reunited with the charming prince (x3) and all live happily ever after. You and Eme need to get practicing that royal wave for the folks in Omaha! Thanks for continually reminding us to savour the moments, Erika. We have a tendency to take life for granted. I treasure and value time with my husband, children and grandchildren much more, thanks to you. Happy New Year...2010 is a new beginning! God Bless.
Lisa & Rhyleigh
Stopping by to say how much I thought of all of you today. I often say my prayers and just fall asleep as I continue to pray last night I fell asleep praying for your boys. I prayed for all of you but more so for your boys - Santa is right they have been such strong boys these past few years and we all praise the strength you and Eme have which I in no means mean to take away but we often forget your boys - the big one and the little ones. I am very much a Collin so I can understand his sensitivity. Change is tough, the unknown is tougher, its hard to explain but sometimes I feel like I feel all my sadness and then the sadness of others. Not sure that makes sense but I understand. Bradley is still so little himself and I'm sure at times just needs his Mommy and just wants his little sister home to be well and play with. Then Jim is the second string that keeps it all tied together with you being the other string. He keeps busy working and trying to make ends meet and also make sure the boys get what they need all while being away from you and his little girl. These are things they should all be praised for not just at Christmas time but year round. So again this in no way is meant to take away from all the strength I know you and Eme have but just a little bit of props to them for being the silent warriors in the family. Many prayers that no more holidays with have to be spent apart and that maybe the Easter Bunny can visit the White family in one house. I hope today was filled with more improvement for Eme and maybe even a smile!?! Lisa
Laurie & Shania
Merry Christmas Erika, Jim, Collin, Bradley & Eme! Happy to hear that Eme received a Christmas Miracle! Santa is such a good guy to make sure all the kids received something, even if you weren't all together! He knows how to bring out those smiles! What a great note he left for the boys! I hope Santa is right that all of you will be in Colorado next year! All of you are always in our thoughts and prayers!
Linda Lee
Erika, Thinking of you this Christmas day. How we rejoice that your Emerson is some better today. We also rejoice that the boys had a fun Christmas even though you had to be separated again. You have a great man. That note from Santa is priceless. It is a difficult life you all live in two places, on the edge, with important life decisions upon you, so often with little sleep. I know there are many families in similar circumstances. I can sense your mother heart just torn to be with all of your children. Good for you, going on the cruise. Toddlers live in the moment, and I'm sure she was happy to be with you upon your return. You blessed your man and your little men with your choice. I agree with the prayer in the message below for a healing miracle for your precious baby girl. God bless you all! Linda
Colleen McQueen
Erika... OMG!!!! I've been running and running!!! Just got your update and scrolled through a few entries. I don't know what to say I have no words. Here I thought you were HOME enjoying time with your family under one roof.. Please know that I think of you all of the time and pray for your entire family.. May this coming year bring ALL transplant families health and peace.. Colleen
Jill P.
Christmas Blessings White Family! Hugs, prayers, and a few more hugs to know you are so special to us all. May you find a miracle wrapped with angelic healing for your baby girl this Christmas: O blessed Lord, protect Thou me And my dear parents graciously; With Thy strong arm be ever near To brothers and to sisters dear. And all our loved ones in the land, Protect them with Thine own right hand. From sin defend and keep me free; Help me a Christ like child to be. Amen.
Jen Wakefield Carpenter
Hey sweetie. Wanted to take a monent to let you know I'm thinking of you today. I know our presents are not always as we picture they will be - in perfect, shiney packages - but we've definately got the same gift... Lovely little ladies we can be so proud to call our daughters. In general, I can think of nothing better. I am so happy you can be close with Eme today. Just sorry it's not how & where you planned. I ache for your pain of being away from all your guys today. One day your sons will be admired for the bravery, patience & courage they will grow up with. Let yourself rest for a moment today. I wish you a Merry Christmas & lots of blessings & peace. Big hugs, Jen
Teresa
Merry Christmas to you and your family. I hope that there are continued improvements. Have a restful evening.
Brynn
Merry Christmas Erika! Thinking about you today and praying for Eme to stay strong and get better so you can be back with your boys and husband. Praying for you always. Love you!
The Pruitt's
Awesome news!!!! Congrats. Rhonda and the family
Praying for You
Thanks be to God!!! Take things nice and slow to give her the chance to get back to how well she was doing and be ever so Thankful for every milestone!
Lacie Eldridge
Ms. Erika, I wish you and Emerson a Very Merry Christmas. You all were so close this time. But still I am sure your sons understand and so does your husband. None of them would trade what is going on for the world, cause if they did, Emerson would not be a part of it. Keep your head high and your heart full, you may not be there physically with them, but you are there spirit and heart wise. You are such a remarkable family and an inspiration to me daily. Merry Christmas and may your day have been blessed and full of joy. I am sure it was with Emerson's drastic improvement. God bless and keep you all!!!!!!
Cathy Teague
Erika, Merry Christmas to you! I am so happy that you have some encouragement today. I am praying for you and your entire family that you may all be together again soon. I look forward to your entries to find out how Eme is. Your journals are so vivid that we can feel like we are there with you, and in fact, we are in our hearts. God bless you!
Quita Furr
Erika, Merry Christmas to you, Eme and the boys. I know it's so difficult for you all and pray daily for not only Eme's recovery but you to have the strength necessary to deal with things and for the boys to have the love, patience and joy that comes with being a little boy. You are always in our thoughts and prayers and we send much love and many hugs your way. Give Eme a kiss from us. Jim is amazing and doing a wonderful job as well. You are both so strong and such an encouragement for the rest of us. hugs, Quita
Jen Reming
Erika- You and your family are always heavy on my heart. Words could never express my adoration for you and your little girl. You always find the silver linning in every gray cloud. We wish you a very merry Christmas...special prayers for the boys. Jen (Faith's mom)
molly Grounds
MERRY CHRISTMAS to you and your family. Nothing but continued prayers and warm wishes. Molly
michelle
Warmest wishes and prayers!
sue (moirasmom)
Stopping by with Christmas wishes for you! Wonderful update, hugs and prayers.
Natalie Garcia, United Kingdom
Dear Erika, I know I haven't written anything in here in a looong time, but I am always thinking about you, Eme and your family! May God bless you all on this Christmas Day and always! Hopefully Eme will continue to feel better! You are the most amazing and strongest women I've ever "met", Mommy # 1 :-)
The Pepples
Merry Christmas Erika. We will pray for your beautiful boys. Give the angel a sweet kiss for us.
Charlotte
Merry Christmas, Erika. Thanking God (and Santa) for the Christmas "magic." What a guy that Santa is...and what a great note he left for the boys! Am so grateful that you and Eme have been given gifts of hope today. Bless you!!
Maria Connely
Erika, I am quite certain you did not major in journalism, however, no one can put together words as well as you. I am over the moon to hear that Eme has improved - yes those cranky sounds of wanting you are certainly words to your ears. I too am proud of the man in your life, what an exceptional father he is, you two certainly our outstanding parents. Much love this Christmas day! Maria
Lauren Shaivitz
What fantastic news! I am so thrilled to hear all of it! Enjoy your day and your beautiful little girl!!!!
Deanna Bingley
What wonderful Christmas news and what a great Dad Jim is (although we certainly knew that already). He is somewhat an unsung hero in all of this. You are a lucky lady Erika!
Dianne Rios
Merry Christmas! So glad Eme seems to be doing a little better this morning! What wonderful news. I pray that with a change in meds and a little rest she'll be ready to go home and celebrate a belated Christmas.
Jen Wakefield Carpenter
Hey sweetie. Wanted to take a monent to let you know I'm thinking of you today. I know our presents are not always as we picture they will be - in perfect, shiney packages - but we've definately got the same gift... Lovely little ladies we can be so proud to call our daughters. In general, I can think of nothing better. I am so happy you can be close with Eme today. Just sorry it's not how you planned. I ache for your pain of being away from all your guys today. One day your sons will be admired for the bravery, patience & courage they will grow up with. Let yourself rest for a moment today. I wish you a Merry Christmas & lots of blessings & peace. Big hugs, Jen
Krystena
Hoping things are improving or at least heading in the right direction. Merry Christmas girls! Krystena
Anne Dennon
Merry Christmas Erika and Eme. Hoping you are feeling the power of all the love and prayers being sent your way. God bless you.
Leah Wells
You are all in my thoughts and prayers today. You always are, but today in particular. Know that you are surrounded and lifted in prayer and love. Let that help to sustain you through the frustrating moments! Miss and love you much ~
Jenn Y.
Merry Christmas Erika... I hope that you know that there are many prayers being sent to you and Eme and your boys today. Lots of love...
Lara, Colorado Springs
Merry Christmas Erika and Emerson! Our family is thinking of you both...and "your boys" in Colorado. All our Christmas wishes are being sent your families way! Love, the Van Beeks
Lauren Shaivitz
Erika, I thought of you and prayed for you all night. I'm glad to hear they are starting to figure things out with Eme and that she seems to be doing well. I pray you get a few minutes of Christmas cheer with her. I wish you, Eme, your husband and your beautfiful boys a Merry Christmas. I pray that you aer all together next year and that this New Year brings health and happiness your way. You remain in my thoughts constantly. Love, Lauren
Barbara
Prayers for Christmas blessings to the entire White Family.
Lynn B.
I just wanted to wish you and your entire family a very Happy Christmas. We are sending special prayers to Eme and are also sending extra prayers to Collin and Bradley. May you still find peace and joy on this special day.
Tracey Hill Nies
Merry Christmas to Eme and Erika! I hope you are feeling well, Eme and that Santa was good to you both!
Leslie Moyer (kendrasmommy from liverfamilies)
Merry Christmas Emerson & Erika! I will continue to pray for Emerson and your entire family! Im sure it is extremely difficult to be away from the boys but I wanted to reassure you that growing up too fast (coming from someone who did) isn't all that bad. I feel that I learned a lot more about what is really important in life and how to get through life with whatever life throws at you! Your boys may seem upset but in the long run they will cherish you for being the mother that cared about them even if they are miles away! Knowing that if it was them in Emerson's place you would be at their side! You a fantastic mom and I give you all the respect in the world for what you have to deal with! Prayers continued and I hope you get some peace today.
Christine
May the New Year bring Emerson complete healing...
Amy - IL
Merry Christmas to you and your family. I hugged my little girl longer than necessary and rocked her to sleep last night knowing not all moms are that lucky. Thank you for sharing your story and allowing us to be a part of it. Emerson, you, your boys and husband are in our prayers today as always, I hope Eme shows some improvement today and can open her stocking and your boys are able to enjoy the holiday.
Kathleen Brown-Blake
Erika, I spent all of last night thinking about you, Eme, and your family. I know you couldn't be together this Christmas. Just know that we are all thinking and praying for you, Eme, and your boys to have some joy this holiday season, however you can. I wish we could help in some way. Merry Christmas. Eme will be out of the hospital and ripping that wrapping paper soon... just wait and see. Lots of love and prayers from Tallahassee.
Trisah Kurtzhalz - Helen's Grandmother
Wishing you a blessed Christmas and I will be keeping all of you in my heart today. Sending love and prayers from Vermont.
kim black
I have many prayers for Eme and her brothers. Wishing you and your family this will be the last time you spend Christmas apart. Eme always thinking of you, you are so special and have a wonderful, caring family.
Deanna Bingley
Erika, As I sit here on Christmas Eve (it's 2:15 am her in MI), with the presents wrapped and stockings filled, I think of you. The greatest gift I've received this year, is finding your journey, and traveling it (through your knack with words, and complete honesty and humility) has made me so thankful for my 3 children. They are soo exasperating some days, but you and Eme have given me a new perspective and for that I want to thank you, for a complete stranger has given me the most memorable gift this year. I could list all my wishes for you, but my continuous one, is for One More Tomorrow each and every day so that Eme can heal and the family can be together again. Merry Christmas White Family! With Much Thanks, Deanna
lucetta
ALL thoughts with you and Eme'. I actually always keep Collin and Bradley in my prayers and thoughts, I can't imagine how hard this has been on them, as well as your husband.n I will say a few extra words up to God this Christmas.... You know, I hope, that Eme is never far from my thoughts (even when I activate my luxury or deciding not to check in for a few days...I like to believe that it would always be good news, so I leave it at that...) I still wish that miracle for you...forever an optimist... MERRY CHRISTMAS!!..I pray for you that Eme opens her eyes to see that gift that you have chosen, as well as you smiling face! Lucetta, Angus' Mum.
Mona
Merry Christmas! I hope when you and Eme wake in the morning the new day will bring a smile to Eme's sweet little face. Wish I was in town to stop by with a hug and an ear. Until then know that my family and I are thinking about you, Eme, Jim and your boys. Loved seeing the wonderful pictures. God Bless you and your little angel. Hopeing for a better day tomorrow! mona
Tifanny (Denver)
Do you mind much if I add a few tears?? Your story has touched me to my soul and as I exhaled forcefully to tell my 3 year old, yet again, to go to bed, I can't help but stop and think about you, Eme and your family. You have inspired extra stength in me whenever I think I want to lock him his room and just wish he would listen. And then I stop myself and realize this is what a normal 3 year old does. And I am truly thankful for that and send a prayer of Thanks to God for blessing me with him. Although Eme may not be a "normal" kid, she is capable of love, laughter, and is your angel. All children, regardless of how they come, are precious blessings and we are so lucky to have them. It's incredible how much THEY teach US. I can't find the words tonight to express how very sad and heartbroken I am for you and the boys. I spent many Christmases with out my Dad because of the Navy, and I remember being angry. This is definitly diff, and I pray the boys understand. Many Many Many Prayers to everyone tonight, and although it's not what you were expecting and far from what you dreamed of, Merry Christmas. I pray Eme's body recovers well and quickly, remember you are surrounded with Love, Angels, Prayers, and hopefully Eme's amazing dr's can find the missing puzzle peace-and Soon. Much Love Always
The Pruitt's
May your Christmas wishes come true. Be strong. Thoughts and prayers, The Pruitt's
Joyce J from IL
Very Blessed Merry Christmas for you and Emerson today! We have been praying at church tonight and celebrated with my husband's family to open presents and ate lots of good foods and I requested to pray for you, your whole family especially Emerson and we explained all about Emerson and your family and they feel real bad and are praying for her speedy recovery at this time. Please keep updates with us and we will see what we can do help YOU with Emerson! I did tell everybody that Emerson needs help finacally with her medical needs and they responded that all of us will run some events when the weather is getting better. Right now it looks like we will have bigger icestorm again!
Eileen
wiping a tear off my cheek. I have been reading your blog and missed 2 days, oh my, how fast things change (I know, not telling you anythng you don't know). hubby asked me why i was crying, i told him about em and your family. pretty sure i saw a tear on his cheek. praying for all of you, hoping em wakes up in the morning with a crhistmas smile for her so special mommy. god bless you all, please know we in california are praying for all of you. hey, on the bright side, a ice white christmas for you all, pretty sure wine country will never have a white christmas!
Kate
I have never posted but have read often and felt the need to check on you and Emerson today. Praying today. Merry Christmas. To ALL of you...
Julie Balke
Praying for Collin & Bradley on this Christmas Eve. Also praying for Eme and you, Erika. May you soon all be together under one roof.
Erika Perry
Erika, Your pictures broke my heart, I wanted so badly for you to be able to spend christmas as a family. You have an amazing strength...they are all so blessed to have you as their mother. Collin and Bradley have been through so much, I am sure they loved every minute they spent with you! Please know that you are in our prayers...the girls were so worried about Eme. They have volunteered to get nothing for xmas if Eme could just come home....if only that were an option....we all would be on board! We love you all...will be thinking of you. Thank you for taking the time to keep us updated!
Joan and Kylie
Erika, I don't know what to say except you are all in our prayers on this Christmas Eve!! My heart breaks for you and Eme, the baby boys and your hubby. Maybe next year it will be in the cards. You have such a strength that I don't even know you are aware of. I want you to know Kylie named her new baby doll Emerson and calls her Eme. This is all on her own. So we now have Emerson Noelle is what she named her. Stay strong and prayers are continued for all of you. Merry Christmas and God bless my friend. Joan, Kylie, Karli, Kaylee and zachary
how sweet! did you know MY Emerson's middle name is Nicole? pretty close :)
Cinda Nethercott
Praying for Eme, for the doctors, your family, and of course for you. Hoping that if anything is missed it is caught and conquered soon. If I could box up a little endurance for you I'd stick it under that little red recliner, but for now just know that you have our love, prayers, & best Christmas wishes.
Amy Hinkle from LF
Thinking of your family tonight amd sending prayers and hugs.
Joni, Faith & Noah
You are all in our hearts and prayers tonight Hope you get some good news soon sending hugs and prayers your way
Charlotte
Dearest Erika and Eme...Here in Michigan it is almost midnight on Christmas eve...my thoughts are with you both and my prayers are for miracles, peace, and healing rest for you and your family. Please know how dearly I wish and hope that your Christmas dreams and prayers will be granted. (Thank-you, Erika, for the update...you and Eme have been on my mind and in my heart all day.)
Dawn
Praying for you up here, just a couple hours north of Omaha, in NW Iowa. Praying that God will give you strength, peace, and even joy this Christmas eve. (((HUGS)))
Dottie
My prayers are with you and your family.
Cindy in Colorado
I've been checking all day waiting for one of those Emerson turn arounds. About the time I get really worried she usually turns a corner. Hoping that turn still comes! I have a child with seizures and they are so hard. Her large seizures last year took her at least 5 hours to recover from! Now she has small absence seizures and takes anti-seizure meds. I really hope they continue to help Eme! As I think of you away from home (again!) and Emerson out of it (again!) I keep thinking of your pictures from the American Girl store. Last Christmas I didn't think there would be memories like that. I cling to those as I wish you were here in Colorado. I will be thinking of the boys tonight and I will appreciate being with my family even more this year. Wish I could snap my fingers and give you a Christmas miracle. We send our love and support to Omaha!
The Edinger's
Merry Christmas to you, Eme, Jim, Collin, and Bradley! Are thoughts are with you! And of course we are praying! Thanks for the update! I'm so sorry Eme is sick and in PICU over Christmas again. My heart just breaks for how many times dissapointment has come over your family! Hang in there...cherish the good moments you have had in the past month with all of your children! Sweet dreams to you!!
susan
Saying a Christmas prayer tonight for Collin and Bradley, that they may understand how much their momma loves them because they know she loves them as much as she loves Eme, as much as they love her and Eme. A prayer too, to heal Eme's little body and delicate brain, that she sleeps and recovers and takes her mom home to Colorado. A Blessed Christmas to all the Whites and all who cannot be with those they love.
Pam Crawn
I'm praying for you and your family. May your Christmas be filled with lots of joy as Eme opens her gifts. Merry Christmas Erica
Noelle
Erika- Please know that we have been thinking of you and checking in on you all day. I looked at the photos and Bradley broke my heart. I am just so sorry! This is our first Christmas post-transplant and I know how lucky we are to all be together. I so wish that for you and Eme and the boys. I am going to pm you through liver families about brain growth stuff - you might find our story interesting. Thinking of you and Eme. Sending her a kiss on the forhead.
Amy from Wisconsin
Erika You and yours our always in our prayers. Merry Christmas and many many blessings.
Michelle from STL
I will say many prayers tonight for the boys and of course for you and Eme. Just gave my two little ones an extra squeeze, like you said. May God continue to watch over you and your family. Have a blessed Christmas!
Alison Stanley
I can't stop thinking about you and your family. That song, "There is no place like home for the holidays" must really ring true for you. I am also pondering the night of Our Savior's birth. There are many parallels, and one striking difference. It was quiet, similar to your hospital room (aside from the intermittent beeps, I presume). Mary and Joseph were far away from home and didn't even have a bed. Yet, the major difference: they were together. They could draw strength from one another. You are not with your family and that is painful. I often pray for Collin and Bradley and ask for immense grace so that they can bear this separation from you. You are an amazing mother and they want to be with you dearly. As for your pain, give it to the Lord Erika. Throw that pain at the cross and ask Him, who understands suffering, to take it from You. Also, draw strength from your "family" here. We are all sisters and brothers and I feel so close not only to you, but to ALL those who are closely following Eme's journey. May God strengthen all of us who are hurting (not as much as your family), but still hurting and questioning the reason for all this suffering. My dear friend, Merry Christmas. Please, as a Christmas gift from me, I would be honored if you could make a sign of the cross on Emerson's forehead. Thank you for sharing. Believe, believe in miracles. Tonight reminds us that they are possible! Love, Ali
daisy
dearest emerson, here's a message from daisy: "i have a surprise for you emerson. it does not involve jewelry (even though it does). it's not a paper heart. it's no a moving plant, is it? it IS a easter bunny, not really. merry christmas, for us happy chanukah, even though chanukah is already over. have a good night and bye-bye." emerson, you have come so very very far. you are a precious old soul who has captured our heart. you inspire us and you remind us to love even more. we're all in this together. please sweet girl, sleep well and heal. merry christmas.
Heather @boy, girl, and a pug
I know it sucks when your kids have to grow up so fast. I just finished a year long round of chemo and my monkeys had to grow up way to fast also. I can't imagine how you are feeling, but, on a small scale I can relate. Please know that lots and lots of people are praying and thinking of you all. Huge hugs. Heather
Nicholle
So sorry to hear this news. You and your family continue to be in our thoughts and prayers. (I just sent you an e-mail.) Take great care! :)
David T
Hi Erika, we are heartened that Eme has stabilized. We continue to pray for all of you including the boys. We know it is just as hard on them as it is on you, albeit in a different way. Stay strong, sleep well, and have a blessed and happy Christmas. We will all be thinking and praying for you all. David T and Carina
Marilyn Long
Hi Erika, Apparently I somehow got "bumped" from the email update list so just found out about Eme being in the PICU again. I am so sorry to hear this. Know that all of you are in our thoughts & prayers. I am so glad you were able to spend some time with your family. We are praying for Eme to quickly recover from this. May God richly bless you with a wonderful New Year!
Shawna and Addison
Erika Just want send my love and tell you we're still praying. This is not fair I want more than anything this christmas for Eme to be better. Give Em hugs from me and Addi.
Kristin
I have been reading your journal enteries for some time. I'm friends with the Austin Demers family and they are the ones I heard about Emerson through. My heart aches for you as I know that this is not the way you wanted to spend your Christmas! It isn't the way a lot of people wanted to spend theirs, with the weather being the way it is! It makes me think that when God changes our plans, we need to sit back and listen to what He is saying to us. It's frustrating and not "our plan" but I do believe He has a plan for each and every one of us. You are an amazing woman and an amazing mom. My thoughts and prayers go out to you and your family. May the Lord give you and Emerson strength! Merry Christmas!
Erika Lyn Smith
I find myself so frustrated and sad this Christmas once again knowing that wonderful, caring families like the White’s cannot be together on Christmas. I see the sadness yet grand attempt to be brave in Bradley, or is it Colin, in front of a beautiful white lit Christmas tree. I am looking at gentle eyes, brave eyes trying so hard to be brave for Mom and Eme. I am disheartened at the commercial chaos that Christmas has become and to know that if only people could see the other side. This is what Christmas is all about – family. I know you physically you wanted to be together, I know mentally and emotionally so many are simply torn, sad, and wondering why? I know after my 2nd son was full-term born still and quiet I wondered why? Why? Why? Even if God had told me my son was the next savior it would not have been good enough for me, his mother that he died. (Mary – was a stronger woman than I could ever be). No reason will ever satisfy or be good enough as to why Emerson has to struggle more in her short time here on earth than most adults ever can imagine. Your family has shown me the true meaning of Christmas. I am cranky and sad today because people I have come to love and care deeply about are not together for Christmas. I cannot imagine my life today without having shared in Erika & Emerson's journey. I am sitting in Saint Louis feeling so sad that you and Emerson are spending another year teetering at the edge of an endless abyss. I am so sorry. I do know that before we share in our Christmas tomorrow we will as a family pause and pray for the White’s, and for Emerson. We will pray for the doctor’s to have inspiration and insight, the nurse’s and other medical staff to have kind, gentle and warm hands as they care for their patient’s/families, and in the end we will pray for peace and love for all the families separated this Christmas because of the war, illness, and death. Thank you for allowing me to be part of Emerson’s Merry Christmas, and please know you are not alone. With all my love- Erika Lyn Smith
Anita
Hi Erika. I have been reading Emerson's blog for awhile now. Our daughter Aria is in Omaha PICU right now waiting for the same combo of organs as Emerson was second time around. I just wanted to say Hi and tell you that you and Emerson are amazing and we are in awe of you all. Funny story- We met Emerson in passing in the hallway the week you were away. She quite likes my son Asher :) She would say to him 'Come here come here' Of course being a 2 year old boy he was a little bit oblivious to her charms ;) It was super cute though. She is such a treasure and a cutie pie. Anyway I am doing the shift tomorrow with Aria, I will be the lady in the pink jandals (or flip flops as you would say). Perhaps I might be the last person on the planet you would feel like talking too but perhaps my funny accent might entertain you (we are from New Zealand) ;) I don't intent to burden you with our situation but we could talk like two mums (or moms as you would say) of little girls. But I just felt strange reading your blog and knowing you were close by without saying HI and Merry Christmas and I am sorry things haven't worked out as you would of liked. Praying for healing for Emerson and please know you are a huge source of true inspiration.
Trisha Kurtzhalz - Helen's Grandmother
Just checking in - thinking so much of you and Eme on this special evening. Thank you so much for posting the photo's - the expression on Eme's face is priceless. Praying hard for Christmas magic to kick in and sending lots of love from Vermont. MERRY CHRISTMAS!
GMR from Morrison
Erika, I just got this from a friend of mine who read my Facebook post for prayers for Eme: "I have spent all morning getting a prayer chain going for Emerson. My Cousin David is the Sheriff down in Eldorado TX and he is an amazing man! He really is! He and all of his deputies take care of the Sisters of Carmelite down in TX. Any work that they need done to their church he and his guys go and do it on their time off. Anyhow, there are over 200 Nuns there and I just spoke with Sister Mary Grace down in TX. The Sisters are going to do a special prayer service for Emerson and the family today. My cousin David is also getting friends that he knows in Law enforcement throughout the US to start this prayer chain for Emerson also. Thank you for sharing this story Giga! You can never have enough prayers! I pray that the Lord gives Emerson and her family a Christmas Miracle for sure!" I hope you and Eme have a peaceful night, Merry Christmas.
Tracey Hill Nies
Great pics! Thanks for sharing! Love them! Such a beautiful family! JCrew cover models! ;)
Joyce J from IL
Sorry wrong misspelled word add NOT to Eme and you can not be around with them. Instead of ..can be.... Thanks!
Joyce J from IL
Merry Christmas Eve! Loved those new pictures! Beautiful picture of the family but sad that did not include Emerson but I really laughed so harder and loved that picture while Eme was sitting by Santa Clause with very funny words. Very cute and very smart kid, Emerson, you do not let Santa give you a hug to feel better and enough well to come home! I wish Santa can give her a magic to come home so quickly with you, Erika! Feel very sorry for the boys to get upset that Eme and you can be around with them on Christmas Eve and Day! We will pray for Emerson to feel better again for last time to stay away from the hospital more than 3 months!
Lauren Shaivitz
Erika, What beautiful pictures. You truly have a gorgeous family. I have been thinking of you all day and hoping that Eme is improving. I hope she is doing well and that you are able to get some rest tonight. Much love, Lauren
Ellen Smith (TINK)
Erika, I have followed Your posts from the beginning, I am so sorry you are not home for Xmas again this year!I have candels lit and am sending Healing energy and Prayers for Eme. I hope they will figure it all out soon and you will both be on the way home. Xmas is full of miracle's! Big hugs, Tink
Angela Jacob
Erika, I know you do not know me. I learned of Emerson through Giga, who is a friend of Ladea and Vito's. I wanted you to know that we have started a prayer chain for your beautiful Emerson and your family today! I am sorry that your family is apart for a 2nd Christmas. Please know that there are people across the United States that are praying for her and you! I pray that your family is given a Christmas Miracle this year! With much Love, Angela
Glenda Wilson
Beautiful pictures....so nice to see what your other half looks like! :-) Hoping for answers and calmness in the coming days....Merry Christmas
Maria Connely
Erika, That picture of Eme is Santa is precious as well... The date reflects just a couple of weeks ago, hoping next year finds a photo of all three of your beautiful children sitting together on his lap, and you and Jim with nothing but an ear to ear grin :) That is my wish for this Christmas.
Maria Connely
Erika is that beautiful new photo Collin? He is so precious... I said my prayers for you in the Kirk today, hoping some hometown blessings find Eme in an improved condition. My thoughts continue to be with you and your entire family today.
It's Bradley :)
Tammy
My heart is just breaking for your family. :( I will be praying for a peaceful holiday for you, Emerson, and the rest of your family!!!
Life is NOT Fair!
Erika, I'm so sorry for what you and your family are going through! You are so strong and that is why Emerson has done so well, she is so lucky to have you as her Mommy! Our thoughts and prayers are always with you. I wish there was something I could say to make your day better! We will be thinking about you guys and praying for health! Jillian-from Michigan
Amy H. - Virginia
Merry Christmas Eve to your whole family - but special wishes for you and Eme to keep your strength -- and I REALLY hope you got some sleep last night Erika! Functioning on pure adrenaline is tough to maintain. May the special spirit of this season bring a special (and fast) recovery for Eme this time around. Blessings.
Praying for You
I read this recently and wondered if you had read it too or considered it the many times you wondered "why". Things are hard but things are good, always be so thankful for the time you have had and the memories you will have forever! In getting ready for the life of your child - You read the "What to Expect" books and you're watching and waiting for each precious milestone. He/She latched on and is nursing well, check. He slept all night, check. She pushes up during "tummy time", check. He sits for a long period of time, check. Begins baby food, check. Crawls, walks, talks, etc, etc... There's nothing on that list that prepares you for having a special needs child. If there was, it would look something like this... Ticket for emotional roller coaster ride, check. New found personal relationship with God, check. Graduation from course on time management, check. Put all of your own wants on back burner, check. Keen understanding of a growth chart, check. Nursing 101, check. The strong relationship with God is the one that will get you thru this and keep you going on and on, pray for the strength that you need to make it to the next day! The strength to understand better "Why" and how you have been chosen for this task because you CAN handle it!
Michelle Rhodes of St. Louis, MO
My heart is out to ya,Eme, and ur families. Oh, angels go on over there and watch over dear Eme and help her fight this. Our prayers are with you. Eme, your momma need your precious face and your smile to her as for her wish for Christmas.
Erin Koesters
Our constant love and thoughts are with you! Call me anytime!!!
Karen
I'm praying for you and for a Christmas miracle. God bless you and Eme...and your whole family. May God give you what you need to get through yet another disappointment and set of worries and fears.
Sherry Boyle
Yes, Erika, it is clear from the eloquent thoughts expressed here that many, friends/family/strangers, do care deeply about sweet little Emerson, you and your family. Be assured that God does hear our prayers and knows our pain, as He bore the pain of sacrificing His Son for us. I pray that God will work through the pediatric neurologist and medical team to identify what is going wrong in Eme's body and to begin the healing process once again. Stay strong for Eme and your boys.
Cara in St. Louis, MO
Erika- my heart is breaking for you now. I have been checking your blog daily hoping and praying that things have improved. You and Emerson enter my thoughts so frequently throughout the day. I am continuously praying to God for healing for Emerson, for comfort and peace for you and your husband and sons. You are on my heart all the time! You are not alone! May God bless you!
Kat in C.Springs
You are not alone. I'm sorry things are so difficult for you right at the holiday. Even though it is hard not to be home at this time, at least Em is surrounded by the people that know her medical history the best and will be best equiped to help her through this latest challenge. My prayers are still with you and your sweet little girl. Merry Christmas.
Mona
I can't begin to tell you how sorry I am to hear the latest news. I've been checking in daily. Sounds like Eme is where she needs to be right now. I hope today will be a brighter day and that Eme is improving. We are all saying prayers and thinking about you non-stop!! Thank you for taking the time update. I admire you so much Erika! Hugs to you and sweet little Eme! Much love, Mona
Jan
Erika - My heart aches for you and like others I wish I could take some of your pain away. We are all part of God's plan but at times like this, it's hard not to question. I pray for you, Em and the rest of your family.
Toni
I'm glad the pediatric neurologist was able to assess and identify what you have been seeing with Em from a neurological standpoint. I'll pray that it will help the team to better target what needs to happen to get Emerson through this turn of events. Erika, I wish there was a way to truly express how heartbroken I am to realize how much stress you must live with in your life and how fragile Emerson's health status is from day to day. If only the love, prayers, and concern of friends, family, and total strangers could take it all away. If only! But please know that others DO care very much about what you, Em, and your family are going through from day to day. I sooo wish better days ahead for all of you, Erika. Remember that no matter how alone you must surely feel at times, God the Father will NEVER let you go. Blessings, ~Toni~
Heather @boy, girl and a pug
Huge hugs going out to you and your family. I am so sorry you have to go through this. My heart is breaking for you. Love-Heather
Mitzi in Maine
I am so sorry, but glad Em is in the right place with the best care and people who know her and love her. I pray she can get better and be seizure free, and I have faith that she will!
Laura
Do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand... For I am the Lord your God, who takes hold of your right hand and says to you, Do not fear; I will help you. Isaiah 41:10, 13 Just wanted you to know on the eve of Christmas that we are all praying for you. Praying for a little brightness in your day today.
Lynn Caterina
Dear Erika, I have been following Eme for a very long time. Heard about her through Ashley Adams journal. My heart was broken for you, Eme, and your family when I read of your trip home, and then back. I am praying for you all, that God will give you a Christmas miracle and Eme's situation will quickly turn around. She is in the hands of the Great Physician, and nothing is too hard for Him. Allow Him to carry the answers to all your "why" questions. Someday we will all understand them and until then He will carry those burdens for us. May God bless you with His supernatural peace that passes all human understanding. May the awe and wonder of the miracle of that first Christmas fill your heart and Eme's room, and surround you in your little red recliner, and may the love that sent Jesus to be our Savior cover you. Love and blessings and peace, Lynn Caterina
Liz
I'm praying for you Erika. And Eme and your husband and boys. I'm sorry.
Amy - IL
I'll continue praying, I am thankful you are with the people who can take the best care of Emerson but sad that it has to be this way. I hope you managed some rest and that things look a bit better this morning. We'll keep praying throughout the day and night.
Danielle
Erika, I am sorry to hear that things progressed and she needed to go back to Omaha but I'm glad that she's being treated by those that know her best. My heart breaks for you as you go through this. As a mother I can only imagine your pain. Know that there are lots of us out here sending prayers, positive healing energy and love to Eme and your entire family.
Trisha Kurtzhalz - Helen's Grandmother
Thanks so much for the update - hard to even imagine how exhausted you must be. I'm so glad to know that you arrived back safely and that you were able to enjoy Christmas with the boys and Jim. Sending love and prayers - wish so much it could be more - but am so grateful that you have a new, wonderful doctor watching over this new turn that Emerson has taken and feel incredibly grateful that there are such amazing, dedicated professionals in this world of ours.
Tracey Hill Nies
Glad to hear you are safe and sound. Sorry you had to fly back to Omaha. Sounds like the team is jumping right in and the neurologist sounds great. I hope they find the cause of the seizures and the erratic behavior soon. Thinking of you both and hoping you had a good night sleep.
Michelle
Erika, may you find some peace today in the tiniest of things, may your heart be lifted. Emerson is a fighter, as are you, your husband and the boys. May you exhale all of lifes burdens today and have one moment of peace. Thoughts and prayers are sent your way.
Kim Martin St. Louis, MO
Glad Eme was able to make it "home" Erika, even it was for such a short time. Especially thankful you were able to share Christmas with the boys. I am so sorry that you and your little red chair have been reunited, as I know that was the last thing on your Christmas wish list. I wont ask you to stay strong, I know you've given every ounce of strength you have. Be at peace, Erika. We're asking for God's blessings for you and your family, especially Eme and her medical team. Enjoy the spirit of the season with her. Know that our hearts ache for you, and our holiday celebrations include you and your family. You are loved by so many. Peace be with you, Eme and Erika. Take care sweetie.
Lauren Shaivitz
Erika, thank you so much for the update. I thought of you all night last night. I am praying for Eme and praying they can figure this out ASAP. Wishing I could hug you both. I will be thinking of you nonstop at keeping your journal open all day waiting for updates. With much love, Lauren
Charlotte
Erika, thank-you so much for taking the time to update us...especially when you are so exhausted and so worried. My prayers continue for you and for Eme. I scrolled through her pictures last night as I prayed for a safe flight...and I was reminded once again what a sweet and tough little girl she is. Hang in there, dearest little Eme...you are surrounded by love and prayers!
Lisa and Rhyleigh
Oh Erika...my heart hurts so much for you. Please know you are not alone. As we were out doing our last minute shopping every time I waited in line I checked and prayed on you all. I know nothing about anything but a question came to mind. Why does Eme go so downhill when she is home? I know she is a very sick little girl but could it be something in the home that is different then in Omaha. I know she has the laytex allergy - could something like that cause this? Or something along those lines? I am sure all that has been thought of but it was just wandering around in my head. I hope your boys found some peace that part of Christmas was able to be done with you. I know its not how you wanted or planned. Your ability to go from plan A to unplanned B will always amaze me. I am so glad you have a wonderful doctor looking after Emes mental state. Please make sure you take care of yours too! Many prayers for answers and discovery and some peace for Emerson. I will end this with tears rolling down my cheak - your are an amazing mother and woman I so wish I had some sort of Christmas magic to make your Christmas wishes come true. My prayers and well wishes will have to be enough. Sleep well sweet Emerson and you too Erika. We will be right here. Lisa
Ellen F.
So glad to hear you made it safely to Omaha and that there was such a bright doctor there to greet you. My inspiration for the night....and don't laugh because if anyone can pull this off you can :)..... If the care team in Omaha is what Eme needs whenever she goes back to Colorado, why not take the Omaha doctors home with you too!! Maybe I am awake too early, but maybe you could convince a couple of them to go home with you the next time you venture home again! In the meantime, rest and regain your strength. The White family will be in so many prayers as we all worship and praise God for His blessings (and miracles) through this holiday season. All my love and prayers, Ellen
Oregonians Lovin' Eme
1st time poster but a very long time reader... There have never been words to say that seem right... But tonight, as I get to go home to my family my eyes burn and my heart is sad that you guys' can't seem to catch that "break" that you so much deserve!! Please know, even though you should be home with the rest of your family at Christmas, that you are an inspiration to so many people and you teach us so much! I want to be a better person...for you...for Emerson, two people I have never, nor will ever meet. The power of your story is stronger than anything I've read or witnessed and I am a different, better person because of you guys. Thank you for sharing your journey and letting so many "strangers" fall in love with your beautiful daughter. Thank you for letting her do the job God has put her on Earth to do... teach so many about life, giving, sacrifice, patience, family, pain, and mostly...LOVE. I go home with a mind racing with thoughts of you and Emerson and prayers for you both.
kim black(Gairn's mom LF)
Many prayers for you and your family. Gairn had siezures and continued and have seizures after her second transplant so I understand the helplesness you feel. Many prayers to you sweet girl.
Joan and Kylie
Erika..My heart is breaking for you. We continue to pray. Kylie senses something. She has been asking about Emerson all day. They had their short time in the hospital and that has stuck with Kylie. We check on Eme everyday and Kylie asks about her at least four times a day, as well as in her prayers. If I can do anything, please let me know. A time home for Eme is what we are praying for, if it can't be Christmas then soon. I've tried to stop asking why. I guess on our roller coaster ride that is not a question we dare to ask. We are keeping heavy prayers going your way. Good night and get some rest! God bless!! Joan
The Pepples
Hey Erika, We are thinking of you all. I saw the boys and Jim at the store the other night. He was picking up scripts for Bradley. They didn't notice me. They are an adorable trio, just doing and surviving. The boys have grown so much. We will spend some time praying for Eme while we are all at home tomorrow and Christmas day. You are in our hearts.
Laurie & Shania
I'm glad that you made it safely to Omaha! Eme hasn't had much luck coming out to Colorado.:( Do you think the elevation here could trigger Eme getting sick? Just a thought. Hope the boys enjoyed celebrating Christmas early with you! Sorry it was cut short. We're praying for Eme, the team, nurses and your family!
Allie
Thanks for taking the time to update tonight. I've been watching the weather and praying that your flight went okay. Praise God for this doctor who is so on top of things! I pray the increase in seizure meds makes a huge positive difference for Eme. Continuing to send you love, hugs and prayers -Allie www.caringbridge.org/visit/allie1
Jenn
I use to work at NMC. I have been following Emerson since I first heard of her and your family. I pray for all of you and my heart aches for little Eme. She is so beautiful and I'm sorry she has to be back her during the Holidays. From our family to yours, we wish you every ounce of good luck we have.....
Sarah H.
Long-time reader from Michigan but first-time poster. I am praying for you and Emerson now and I hope that you will make it through this latest trial. Please know there are people all over thinking of you and keeping you lifted up in prayer. I am storming heaven's gates for Emerson and I will ask my friends to do the same.
joey and daisy
we are so grateful that you got here safely. i pray that tonight brings you all deep rest and that tomorrow brings answers and emerson stability. love and light, us
Vito and Ladea Dante
We are sending our love and prayers to you all this evening. We are relieved to know that you arrived safely and that Emerson is in good hands. We hope for a quiet and restful night for you so that you can regain some strength. We will pray for answers tomorrow that will put Emerson back on the road to recovery...and you both on the way back to Colorado...permanently. For now rest and know that we are all here for you. :)
Amy Patterson
I am praying for you all tonight and as the days come. I am praying for the medical team to figure this out. God please let them feel you, wrap your arm around Eme, Erika, Jim and the boys.
Lisa
I've been checking all evening for an update. My prayers are with you, your family, and your sweet Emerson! You are in the hearts and thoughts of many!
Kathleen O'Neill
Am praying extra hard for Eme and the family. She needs to keep fighting. Kathy O'Neill
Shari-Springfield, Oregon
I am glad you made is safely to Omaha. I am praying my heart out for Eme, you, the boys and Jim. I pray she stays strong and continues to fight! What a beautiful little one who has taught us adults many lessons.
Franciska
Praying for a quiet night! Sending our positive thoughts. God Bless!
Brynn
Hey girl, thinking of you and eme tonight. Praying hard that eme can continue to stay strong and fight. Love you!
Alison Stanley
Sleep tight Erika (or as soundly as you can sleep on that red recliner). You are much in need of rest it seems. Praise the Lord for a wise doctor who is also very attentive to Emerson! When you wake up, may this all be just a bad nightmare and may Emerson be "on the mend." Praying for you (which I did the good part of last night because I could not sleep after reading your entry). Lots of love, Ali
molly Grounds
OH Erika as I read your last entries my heart is just breaking for you all. Please know that you and Eme and your family are never far from my thoughts and prayers. I am heading to bed and praying just for you and Eme. My prayers are for strength for you and for the Doctors to know how to best get Eme through this. Just know that people you have never even met keep you in their prayers, My mom used to work with Chelle Cates in Dallas and she asks me about Eme frequently and prays for you all too. I hope you are able to get SOME sleep. Molly
Valerie
Hi Erika, I am glad you made it safely to Omaha...and you are getting answers. It is so crazy she has "weird" things happen to her when you head to Colorado...I hope you get some good rest tonight so you can face the challenge a head! You are definitely NOT alone!! I know lots and lots of people that are praying and wishing and hoping for Emerson, you, the boys, and Jim!!! Sweet dreams!!
Peggy in Co Springs
I've never met you or your family, but I feel like I know you. I check on you and Eme several times a day, and today about every half hour! I am praying for all of you, and I know the angels are surrounding Eme, keeping her in their care. She is strong and loved. Just remember through all of this your boys are seeing what wonderful, caring parents they have. God Bless you all.
Candice Behm - Portland, Oregon
Praying!!!
Noelle Krimm (LF)
Oh, Erika - I'm so sorry. We are thinking of you and sending you strength and healing vibes. I'm glad you made it safely back to Omaha. I'm sorry about christmas with the boys. I know how badly you needed it. Thank goodness you had the wherewithal to celebrate when you could. I really wish I could gve you a hug. Take care tonight - we'll hope for some answers and a plan of action in the morning.
Ellen O'Connor
Erika....I am so glad you landed safely in the storm. Not only are my thoughts and prayers with you, Eme and the family, but I have asked all my Facebook friends for the same. Sending love your way................
Carolyn O'Cain
I'm here and I'm praying.....
Sherry
Dear Erika, Our family is in prayer for everyone of you!
Kathy Russell
I'm so glad you got to have "Christmas" with your boys before you had to fly back to Omaha. And praise God you made it back safely in spite of the bad weather. Poor Eme - she just has one problem after another. We're praying they will figure out what is causing her seizures and be able to get it under control quickly. I hope you can get a peaceful nights rest in your little red recliner.
Trish Adams
Thinking of you and Eme and praying for you both tonight.
Debbie
Thankful you made it safely to Omaha. Not where you want to be at this time of year, but thankful tonight for the staff there who know and love precious Eme. Praying for the antibitics to do their thing quickly so the sparkle will return to Eme's beautiful eyes! Hang in there! Hugs Debbie from Georgia
Dianne Rios
Prayers continue to be sent your way.
Jules Badger, Sammamish WA
Hi Erika, Thinking of you both. Glad you arrived in Omaha safe. Will be sending up prayers for you both. I'm so so sorry that this has happened. In Peace and Love, Jules
Joan
Happy to hear you arrived in Omaha safely. Prayers continue for your family.
Shari-Springfield, Oregon
Erika: I hope you and Eme landed safely. I continue to pray. I wish I had better words!
Ellen F
Erika, Thank you for the updates and thank you to all who post their prayers. In the face of such crazy circumstances, I feel at a loss for the right prayer. How lucky your family is to have so many people who are praying on your behalf! Your lessons of the past two years are so important to remember now. Live in the moment, not the date on the calendar. Keep your priorities straight and trust your instincts. Don't stop advocating for your precious girl. Don't let the set backs let you lose faith. Remember how strong she is; and how strong you are. You are the master of the virtue of patience, but know when to leap into action when needed. You have navigated your way on this uncharted course with brilliance and grace. Use all of this experience to propel you through this rough patch. I am summoning all the faith Eme has taught me I have. Safe travels my friend. All my love and prayers, Ellen
Catherine
You are in my prayers.
Lynn B.
I have no profound words but just wanted you to know that my husband and I are praying for Eme and for your entire family throughout this incredibly difficult time.
Carolyn
Praying hard for Emerson tonight that you all have arrived safely and that Emerson is more stable! So sorry this is happening at Christmas! I'm glad you at least got to open presents with your boys!
Anne D.
Worried! Praying that you and Eme arrived safely. I just watched the national weather report. Will watch for an update. Love, Anne B.Isl. WA.
Charlotte
Many, many prayers are going with you and Eme, Erika!!
Erika Lyn Smith
angels! angels! angels! please go to and keep the white's safe and sound and heal Eme.
Deanna Bingley
Erika, While we've never met I feel like I know you more than people I've known for years. I wish I could ease your pain, hug away the hurt, and make Eme well enough to go home. Lean on those you love. Through this whole journey with Eme, you have been her rock. You are her tireless warrior fighting for all that is good in her life. You deserve the Mom of the Year Award - I know you sometimes question if you should have done things differently, but when you look at that sweet life face, know that as a Mom, our biggest instinct is to keep our children safe, and you have done more than any mother I know!
Marni Webb
I want to send more love, prayers and sunshine your way. It's been many years since I have seen you (Troy High School)-I visited this site for Emerson earlier today. You are an amazing and strong woman and your beautiful daughter (and the rest of your family) is truly blessed to have you. God Bless your family:) Christmas miracles are wished for you and Emerson to be healthy and happy.
Rachel Lenda
Praying Praying Praying Praying Praying for sweet Emerson. Hugging my three year old girl a little tighter and showing her extra patience and love in honor of Emerson. Praying for peace as you trust the miracle of Christmas will bless you all and heal your sweet girl once again. Praying for her travel and yours to work out. HUGS and Prayers Rachel in TN
sandy jones
Mom, our prayers are with you. Don't give up on believing. You have alot of people praying for Emme and your family. We love you.
Sarajack (from LF)
Sending hugs and prayers!!!
Jules Badger, Sammamish, WA
I'm sending you prayers and hugs Erika. I'm so sorry that it didn't work out how you imagined but...I'm glad you got to have a Christmas with the boys. I'll be saying prayers for you all day and into the night. In Peace and Love, Jules
Christy A.
Prayers.... mental Hugs ! Christy and the boys !!!!!
The Van Beek family
We are praying!!!!!!!!
Amy H. - Virginia
So glad that you got your Christmas with all your boys -- I hope that eases your heart as you return to Omaha. You have had a very dramatic couple of days and hope you also have good support in place for you in Omaha - know that Eme will be getting the best care possible, and hope hope hope that she rallies and you have a peaceful Christmas. :)
Kammy from LF
Sending all my positive energy and prayers to Eme. Hopefully you are there by now and the team is kicking into high gear. Praying that Eme bounces back quickly. She is such a fighter. Please give her loves from us.
Ron Springston
Praying for you..
Rev. Tracy Dougherty
Praying for Eme, that God surrounds her with Angels... Keeping Eme and your family in my thoughts and prayers.
Jayme Koch
Sending prayers for Emerson and the team flying her to Omaha. I hope she recovers and the flight goes safely!
Cinda Nethercott
Praying, hoping, and keeping you all close in our thoughts & hearts tonight!
Jen Wakefield Carpenter
Still praying for Eme. I just wanted to let you know that when we saw Santa this afternoon, after Sloane asked for a Barbie camper & a squeeky toy (?) She looked at Santa and said "there is a sick girl mommy knows, maybe you can help her feel better". I'm hoping Santa listened and you get your Christmas wish. BIG hugs. Jen XO
Cates
Erika, We are so sorry and we are praying for Eme right now. Please know we are thinking of you guys. Have a safe trip. We'll be checking in for updates. Sending love. love, Chelle & Sean, Carter
Christine
Praying for you and your family as your wishes for a Christmas together at home is not to be. May God give you peace and comfort.
mary
prayers for a safe flight and a speedy recovery!! Your a fighter Eme !!! Love Mary and Matteo LF
susan
praying for a safe flight and a fast recovery
Maria Connely
Erika, I will sit tomorrow, on Christmas Eve, in the Kirk and think of how life has taken you on a path which you could have never forseen, and pray for Emerson. I am glad to hear you were able to spend a non-traditional Christmas with Collin and Bradley. May Christmas bring you continued hope and peace. You are in my heart and prayers. Love, Maria
Vito and Ladea Dante
Praying...Praying...Praying...
Shawna and Addi
Praying for a safe flight to Omaha! Glad you had "christmas" with the boys and JIM!
Melissa
I too have a medically fragile child and just wanted to let you know that my thoughts and prayers are with you and your whole entire family right now. Praying for you all. Melissa in Massachusetts
Trisha Kurtzhalz - Helen's Grandmother
Praying hard for you and holding you close in my heart. Safe trip and Christmas miracle - I believe! Love to you all.
Ana and Savannah
Our hearts and prayers are with you!!!
Shari-Springfield, Oregon
Something told me to come back to the computer and check on you! I am praying my heart out that you can get back to Omaha safely. My heart goes out to you during this difficult time.
Allyson L.
Thinking of you and praying for your family!!
Andrea Caroline
I just wanted to wish you and your family a Merry Christmas and Happy New Year=] Emerson is a beautiful little girl, my prayers go out to all of you=]
Amy - IL
Praying for Emerson, you, your husband and boys, the doctors and nurses treating Emerson.
Julie
My thoughts and prayers are with you and your entire family. Peace always.
Jennifer
Praying for Emerson and you all!
Jackie, LF, mom to Trey
Lots and lots of prayers for Eme and your family, and everyone caring for her and that the right medical decisions are made to get Eme healthy again soon! So far the weather isn't too bad here so hopefully the flight goes smoothly.
melissa
Erika, I read your post and I am in tears. I hope and pray that Eme will be better really soon. How scary this must be for you. My heart breaks. Please know that I will pray constantly that God heals her and she is back to her chipper self. Also I have said a prayer for you, you are amazing and such a selfless person. Please take care of yourself and know that sooo many of us are praying for you and your family. I am so glad you got to spend time with the boys, its precious. all my love, melissa in tx
Tifanny (Denver)
Erika-I am so proud of you for having an early Christmas with the boys. As we all know, tomorrow waits for no one and I assume that was a small example to the boys showing how important they will always be to you. Stay strong, keep us posted, and as always LOTS AND LOTS OF PRAYERS heading to the house and to Omaha with you. I can't imagine what it's like for your husband to not being going with you if Eme is taking a turn. There are so many angels around you, lots of prayers and love. I pray the Grace of God carries you and helps everyone get through this-especially Eme!
Sue T.
Praying, praying, praying...
joey and daisy
oh erika, we pray that you travel well, arrive in omaha safely and get exactly the care emerson needs. we are here, always. God bless, joey and daisy
Valerie
Dang...following you guys closely with prayer!!! Be safe in this weather!!!
Lauren Shaivitz
Erika, I am so sorry that you will not be able to spend Christmas with your entire family. My heart and prayers go out to you and your whole family. I will be thinking of you all and praying that Eme is doing better soon. As always, say the word if there is anything I can do! Thinking and praying for you! (First time on guestbook...Not sure if it went through...sorry if it's posted twice!)
Glenda Wilson
praying for a safe trip to Nebraska on the helicopter...and that Eme's doctors will be able to get this turned around very quickly...thank you for keeping us all updated, I'm sure I'm not the only one who will be checking back often....when you can, keep us posted so we know how to pray...
Deanna Bingley
Hang in there Eme - Keep the strong fighting spirit you have used to make it through to now. You have people all over the world who love you and who you inspire - most of them grown adults who could never be so strong! We can't wait to see your smiling face again!
erika lyn smith
praying angels surround emerson and all of you at this time...so so sorry...i am so sorry...
Michelle
prayers, prayers and more prayers for all of you!!!
Nicole Barna Royal
Thinking of you, Eme and your family. Safe travels and lots of love to all of you.
Teresa
Hang in there. Prayers are coming your way, for a safe trip, fast recovery, peace and rest.
Carina T
Just wanted you to know that we are praying fervently for Eme as well as you, Jim and the boys!!! (And so glad you got to have Christmas last night with the boys--unconventional or not!) Big hugs from Carina and David T
Tracey Hill Nies
Oh no! Safe travels back to Nebraska. I'm so sorry you have to go back. They know Eme so well and will be able to help her get back on the mend. Thinking of you all.
"Maama" Kathi
Erika, just read your "urgent update"... okay, so we are doubling up on the prayer for Eme now! And believing for the flight to be uneventful and quick, with no weather delays. Bless those doctors to know exactly what to do! Love & blessings are being sent to you and your family at this crucial time... hang in there like you always do! We love you.
Lauren (Ashley's mom)
Erika, I am so sorry that you will not be able to spend Christmas with your entire family. My heart and prayers go out to you and your whole family. I will be thinking of you all and praying that Eme is doing better soon. As always, say the word if there is anything I can do! Thinking and praying for you!
Kristin
Erika, prayers of comfort and healing are being sent your way from Virginia. May you feel His presence and gain strength. Hugs to you (a friend of a friend).
Stacey Morrison
Sending tons of prayers and positive, healing thoughts your way. Rejoicing that you are, so far, able to remain in Colorado for the Holidays...your family deserves that one consolation, at the very least! I hope you get some rest Erika. I can't even begin to imagine how you are dealing with all this stress with no sleep. I can handle my fair share of stress but if I have no sleep...I just fall apart. Hang in there and may you all have a very Blessed Holiday....together. Much Love, Stacey Morrison www.caringbridge.org/visit/kadenmorrison
Deanna Bingley
Thanks for the update - It means a lot that you care enough about all your "followers" to update us, even on NO sleep. As a mom, I can understand that, but as a Mom of a sick child I hope you get some well deserved rest, and that Eme continues to improve. Happy to hear about Christmas with the boys!
Valerie
Such a bittersweet time it is for you! What a blessing it is for you and the boys to be together for Christmas!!! But how sad Eme gets sick everytime!! We will be hoping and praying lots and lots!!! Enjoy your time Erika!! The boys will always and forever remember this time of their lives! Sending LOTS OF LOVE and Christmas joy your way!!!
Mitzi in Maine
I am glad to read your update! Stable is progress...even if the stable is not too hot. I bet it was fun to open gifts with the boys! :) I hope Em can ride this thing out and feel better soon.
Melissa
Thanks for taking the time to let us know you are still here in Colorado. Our thoughts and prayers have been with you. Christmas is about sharing a moment in time with the ones you love and I am glad you had a moment.
Danielle
Erika thanks so much for taking the time to update us. You have so much on your plate and I can't imagine how you are handling the stress, uncertainty and lack of sleep. But I for one am so grateful for the update. Even as I type this with tears in my eyes, I am sending all positive healing energy and good hopes and wishes for Eme and your entire family. I'll amend my Christmas wish that not only is Eme doing better and stable and able to open up her gifts from Santa with her family.
Tracey Hill Nies
Thanks for the update, Erika. I'm glad she's still in Colorado and that you were able to celebrate Christmas IN COLORADO WITH the boys! That is wonderful. What's a day or two? I hope Eme improves and that you get some sleep. Take care of yourself, Erika! Eme and the boys need their mommy! XOXO T
susan
I am praying for you and Eme. Reading your last entry brought me to tears. Then I remembered another little girl who just over a year ago was so sick, possibly in rejection, the doctor's could not even place a line and seemed resigned to losing the fight. I prayed but feared nothing could save her. Today she is like another child, home and doing fabulous, getting into mischief and making everyone smile. God's grace saved her and God's grace can save Eme too.
shawna and addison jeff and cam
oh erika my heart is breaking for u. We are prayin for you all keep fighting eme we love u
Ruth S from Australia
Dear Erika, You and your family are constantly in our thoughts and prayers. I hope Eme pulls through this like the champion she is, and you are able to spend the holidays togther in Colorado.
Shari-Springfield, Oregon
Oh Erika! I got the web address to your site from Ashley's Mom. I can't even imagine the emotions and feelings that are running high! I will pray that she can stay in Colorado through Christmas. My heart breaks for you and your precious family. Know you are in my prayers! I will read her story later on when I have more time.
Christa -Parker
Erica and Em, Lots of love and prayers- also for Colin and Bradley and Dad. Hang in there, you will get strength Love, Christa
Ellen F
BIG HUGS to you, Eme, and the boys (and Grandma too!). You remain in my prayers. Ellen
Jodi
Praying for a Christmas miracle for Eme.
Karen
May words of support and love help fill you with strength and courage. Keeping Eme in my prayers...
Deb S
Are they looking out for DIC? www.nlm.nih.gov/medlineplus/ency/article/000573.htm
Erika Perry
Praying for peace and strength...for everyone in your family. If there is anything you need Erika, please let me know! My heart is aching for you today:( We love you so much!
Melissa Verseman-Flight For Life
I am praying for your family tonight and hoping God gives you and Eme the strength to fight this.I am so sorry your precious boys are upset and I know some day they will realize the enormous sacrifice you have given for your family. If you need anything in the hospital don't hesitate to call the flight team we are always here for you!!!
Bronwyn Dobbins (Kealeigh's Aunt)
Please know that our prayers are continued for Eme and your entire family...I cannot imagine the predictament you are in and the decisions you are constantly faced with!!! God bless you all and I pray that He gives you the strength and discernment you need during this time and that He would give you and your boys a peace and comfort that surpasses all understanding...we can't ever answer the why's and often don't understand but rest assured...God knows!! Wishing you and your family nothing but the best and praying for you all!!
Cindy LF
Erika, No words....just hugs, love and tons of prayer!
Laurie & Shania
Oh Erika, I'm so sorry! I've been praying that Eme would stay healthy for Christmas. I feel so bad for the boys. If you stay here in Colorado, let me know if you need anything. Praying that Eme gets better and that you can stay in Colorado. (((HUGS)))
Christine (CT)
My prayers are with you all. May God and all his angels surround Eme and your family during this fight ... and beyond.
Tifanny (Denver)
To the boys-I pray for peace and understanding. I know they are too young but maybe experienced enough to understand that Christmas is about Family, and right now their mom is fighting for theirs. To Eme-hang in there sweet Princess. We are all praying for you and angles to surround to. To Erika-Keep listening to your heart and soul. If it tells you to fight-Then FIGHT! God and Angels are all around every one of you right now. Love and Prayers...
Amber Levy (dylans_mom)
Erika, Continued prayers for Emerson, you and your family. My thoughts are always with you guys.
Jessy
Praying for strength for you and your family, and for improving health for Emerson. Your family is an inspiration to all of us. Hang in there Emerson....keep fighting!
"Maama" Kathi
Erika, we're sending blessings and love your way.
Vito and Ladea Dante
Sending our love and prayers...
Ana and Savannah
Oh Sweetheart, we are so sorry you are going through this and that your brothers are too. We know you are strong. We know you are a miracle. Keep fighting little Warrior Princess. You are so loved.
Kris
My heart goes out to you & Emerson. I will be praying for you that this is just a bump in the road. I pray that God brings you the comfort that you all so deserve during the holidays. I ask God to heal Eme and lay his hand on her. May God bless the White Family!!
Suzanne
I've been following Emerson's blog for many months - I will be praying for Emerson and your entire family.
Joan/NE
I wish I had the right words to say. Please know my arms are around you. We will say special prayers for Miss Emerson & all of her family. May God give you extra strength as you need it.
Caylie McNeill
I am so, so sorry! I know you are doing the best you can and encourage you to keep it up. I will be praying for all of you today. I hope there is a way to have christmas with all of your family and still keep Eme safe. Wishing you a merry christmas! Caylie
Jenn Stacey
Praying for Emerson and the rest of the White family. I'm asking God to please take over and make Eme's condition more stable so you do not have to return to Omaha until after Christmas.
Tammy
Praying for sweet sweet Emerson and your family at this time!!!
Blair & Xander (LF)
Keep fighting, Eme! We're all behind you. We're saying lots and lots of prayers for health and strength.
Tracy
I am so very sorry to hear this news. Today, I pray for Eme's healing, your strength, and for your boys' understanding. You all have been through so much. Sending our thoughts your way.
Elaine Michael Urrutia
Wishing you and your family a peaceful holiday, Erika. Hang in there. Little girls will do anything to get mom's undivided attention. You are in my thoughts!
Jen G
Praying hard for your family today, tonight and forever!
Mitzi in Maine
Nothing but prayers and hope for Ms. Emerson. And strength and comfort for you! I hope everything is ok. I am sorry you have to go through this.
Trish from Mich.
Erika----from one mom to another, my thoughts, strength and prayers are with you during this latest struggle. My whole family remembers Eme daily, and we will say an extra one for her Christmas recovery......
ashley
praying for you and your family!!
Sam.
I am praying for your family!
Trisha Kurtzhalz - Helen's Grandmother
Oh Erika - I am so sorry. I was checking the blog hoping to find nothing. Sending lots of love and Christmas prayers for Emerson and your beautiful family.
kris
Sending prayers!
Kat in C.Springs
Sending prayers for you and your family.
Connie
Erika, I've been reading about Emerson for awhile but haven't before written. I'm so very sorry that you are dealing with this newest emergency and am praying that everything will go as well as it possible can. Connie
Danielle
Erika, All my thoughts are with you and your family. It just breaks my heart to read this, I hope they can get her back to Omaha quickly where the team knows how to treat her best. My Christmas wish is that Eme get through this thing quickly and ok. There are a lot of people who love you sending you all their prayers and positive healing energy.
Jen Wakefield Carpenter
Hang in there Erika. Hold tight. Sloane & I are going to see Santa and ask for a special gift this year. For you and Eme to have a wonderful, happy, calm Christmas together. We're praying for all the good things to happen. Just hold your head high and keep remembering everything you've done up until this moment and the next moment won't seem so hard... It will just be one more brave, patient moment. I know it's hard to wait out what happens next, but Eme is all of our inspiration. She can do this!!! Love & big big hugs. Jen xo
Anne
Erika and family-I'm sitting here reading your post with tears streaming...May our sweet Baby Jesus stay with you and Emerson during this time for strenght and comfort and healing.
Amy in PA
I am so very sorry. I have no words, just prayers...for each and every one of you. God bless.
Chrissy Johnson
Emerson is in my prayer along with the rest of the family!!!
Bonnie Ermilio
Hi. I haven't received any updates recently about Emerson. I sent her a card and it came back saying the box was closed. Can you send me an address to send her a card? I'm praying things will go well with her. She's always in my thoughts and prayers. I'm sending her lots of smiles and big squishy bear hugs. My e-mail address is: thebee711@hotmail.com. I hope you, Emerson and your family have a wonderful holiday. Your friend, Bonnie Ermilio
Kate
Eme, We all pray that this hurdle will be easily passed. We pray for a quick recovery. Mrs. White, Please know that we are always praying for YOU. You are always doing what is the best for your entire family. Just being able to take Emerson home is a gift enough to your entire family. Well wishes and lots of prayers for recovery Mrs Kate
Barbara
Please grant the entire White family, peace and strength while they face this latest struggle during this Holiday season. Please provide them all the support of your loving arms. Amen.
Deanna Bingley
No words to express what we all wish - You are in our thoughts and prayers. Stay strong Erika! My Christmas wish for all is health, especially little Eme!
Rev. Tracy Dougherty
Praying for Emerson and your family.
susan
eme is in my prayers
Michelle C
Prayers for you and your family!!
sue(moirasmom)
Sending lots of prayers for your family.
Leisa
I can not believe this. Last night i was in emergency with my boy praying we would not have Xmas in there then 2night i read this my heart is breaking for u guys. My love thoughts and prayers rest with u 2night.
Kate StClair
This is absolutely heart breaking...Please know that we are sending you lots of support and love. That sweet girl is a fighter...she's strong just like her Mom. Hang in there!
Kathy
Praying for your family.
Julie Balke
Will be praying for you and all of your family!
Heather Sutherland
My thoughts and prayers are with you. There really are not words to make you feel better, but know that you are being surrounded by love, support, and prayers from around the world. Draw on that strength as you need, and we will continue to refill it! May God bless and keep His arms around your family.
Debra Snow
Dearest White Family, You are all in our thought and prayers. Love & Hugs, David & Debra Snow
Lucetta
Erika, words can't stress how sorry I am for you and your family, on all accounts. I SO hoped for you all to be able to spend this holiday together, at home. That time will come, in once sense or another. My prayers are with you, as always. Lucetta, Angus' Mum.
Lisa and Rhyleigh
As I lay in bed unable to sleep being sick for the last few days as well as my Rhyleigh being sick my hopes were for a report back of a well Emerson smiling with her parents and her brothers at home on Christmas. It seems like a simple wish yet as we all know Eme is not simple. I am so very sorry Erika. I wanted nothing more then for you to get your Christmas wish. My heart breaks for you. I am praying overtime for your family and for Eme. I hope the doctors are able to figure out what is going on with Eme and help her get well soon. Lots of Love and prayers! Lisa
Simone DeFelice, NJ
Praying for you, Emerson and your family. God give you strength.
Kim Martin St. Louis, MO
Oh, Erika. Not the update I wanted to read this morning. I am sorry. Stay strong. Your family needs you, regardless of your location. With heavy heart, and abundance of prayer for Eme's medical team(s), your boys, Jim and especially for you. May angels surround Eme and guide her peacefully inaccordance with His will. You are loved. Take care, sweetie.
Jenn Y.
Many prayers are being said right now for Eme, you and all your boys... lots of love is being sent to you all... if I was anywhere near Omaha or Denver, I would be the first one there to help. I know your heart is heavy and your Christmas spirit is diminishing with this turn of events, but smile... you have three beautiful children, a wonderful husband, a family that loves you and many far-a-way friends that care. In this difficult time, it may help to remember that. Emerson is the luckiest little girl to have such a devoted and strong mommy... stay strong and know there is love and prayers being sent from all over the country today and always. Jenn Y.
Stacey Peterson
My thoughts, prayers and positive vibes are being sent from San Diego :) Eme is such a fighter, I admire her courageous fight along with yours and the family! Thinking of you Always, Hugs-Stacey Peterson
Cathy K.
Prayers for your Emerson, your family and for you during this very difficult time.
erika lyn smith
angels surround emerson and keep her safe.
Allie
My heart is breaking for you all, about both Emerson being sick and about spending Christmas apart again. Either one by themselves would be difficult. Know that we are all praying for your family, for Emi to improve and for your hearts and spirits to be wrapped in comfort by the Lord this week. Hang in there, and know that we are praying as hard as we can for all of you. With love, hugs, prayers and christmas wishes - Allie www.caringbridge.org/visit/allie1
Toni
Coming in from Trish's blog to let you know others are out there praying for Emerson and her family. I can't even begin to imagine how much your heart must hurt from day to day. But I do know that you press on with incredible determination and God's continued uplifting hand. I should be so strong (I'm not), and I truly am encouraged and inspired by you. I pray that the help and support you need, tangibly, comes forward in Omaha at this very time. Blessings, ~Toni~
Katie Hollingsworth-Lubbock, Tx
My heart is heavy tonight as I just checked in on you. So very sorry that Eme has taken a turn for the worse and that you both will be heading back to Omaha. My sincere prayers for you, Eme, Jim, Bradley and Collin--that's all I can do for you--pray, pray, pray...
Joan, Kylie, Karli, Kaylee
We are praying hard for our little Eme, you and the boys, Erika. I am so sorry!! I am so concerned for her. We will do some serious praying for all of you. God bless!! We love you.
Laura
My prayers are with little Eme. I was hoping she'd be happily playing with Zhus Zhus at Christmas. I pray that she'll recover from this episode so she gets some more quality time with her family, even if it's not forever.
Marlena Field
Thinking of you all tonight and wondering why things have to be so hard. I'm so sorry.
Amy
I'm so very sorry Erika. My heart is so heavy reading this. For sweet Eme, for you and your husband, and for your precious boys. How I wish there was a way for them to not be heartbroken for Christmas, and I know that you do too. I can't imagine having to go through the feelings as a mother that you are put through daily. Making the choices you have to make. I'm praying for each and every member of your family. I'm so so very sorry that you all are going through this. Praying for God to reach down and hold you all in His loving hands, for comfort for all of you, and for His healing touch on sweet beautiful Emerson.
amy patterson
Praying for you and your family.
Jennifer
Praying for you and your family.
Carina T
Oh Erika, our hearts are breaking for you, Eme, Jim and the boys! We have been so excited at the thought of all of you finally together for Christmas! I wish we had words of comfort, but right now words seem so terribly inadequate.... However we will be praying throughout the night! With much affection, Carina and David
Stacey
Erika... I don't know how you find the strength to continue dealing with all of this. Praying for comfort and strength for you and your boys and healing for your baby girl. I'm so sorry to hear that you won't get a Christmas in Colorado.
Tracey Hill Nies
Erika, I am so sorry. My heart is just breaking. I am praying Eme will be ok and that you will be able to stay in Colorado for Christmas. Not just for Eme's sake, but for all of you to be together (especially for Collin and Bradley).
Lori Hollingsworth
PRAYING FOR YOU ALL!!!!!!!!!!
Kathy Russell
My heart is breaking for all of you. We are praying that Emerson recovers quickly.
Susan
Erika, I am so sorry to hear this. Wish I had some words of encouragement. My heart is breaking for each of you. Our hearts and prayers are with you all.
Stevie-Michelle Klotz
I'm spreading prayer requests for you here in Saint Louis!! Please stay strong Erika!!! I'm praying like never before!!!
Sandee McMinn
Dear Erika, I've been reading about precious Eme for a good while. I'm so sorry she's back in PICU. Eme and you and your family have been in my prayers and will continue to be. God bless you all.
Kathi Hines
Lord, please bless this child. Send strength to her mother. Eme has been a miracle child. We pray for her tonight.
trish adams
Erika, I don't have any answers. The "whys" go on forever and ever without an answer. I'm so very sorry. From the deepest parts of my "transplant mommy" heart I'm so very sorry. The boy's broken hearts and Eme's broken body. It is more than one mommy should ever have to handle. I want so desperately for this to be different for your family. I'm keeping you all close to my heart and you are in my prayers. Sincerely, Trish Adams
Kathleen
Praying right now through my tears.
Alison Stanley
oops...typo...not "guarding angel" but "guardian angel."
Alison Stanley
Oh Eme, sweet Eme. My heart is breaking for you and your family. Why oh why must you be sick again now? I will beg and plead with the Lord to make you well enough to be home for Christmas Day. Your brothers miss you, your father misses you. Your family was looking forward to being all together at home. I am so sorry to hear that you are sick. No other words, simply prayers for you my sweet sweet child. Also, I am sending my guarding angel to your side (and hope others join me in this). Those angels will keep you safe in God's loving care.
Glenda Wilson
Dear Erika, Sigh.....I just don't know what to say. Like the others, I am so sad that this is happening to Eme and your entire family right before Christmas. I wish I had something wonderful to say that would just lift you right up but words fail me....all I know to do is pray fervently that God will pull Eme through this episode quickly so that even if late, you all will have the wonderful and blessed Christmas you have been wanting so badly. Much Love from Texas, you are near in our hearts.... Glenda Wilson
The Pruitt's
May God give you strenght. Our thoughts and prayers are with the entire family. Be strong White family. On a funny note: The Pruitt's will be having our 5th baby boy in June. So much for having a sweet baby girl. Any name ideas would be great. Lol. We love you guys!!
Melanie Oliver
Oh Erika - I'm so so sorry. Sending all positive thoughts and energy your way... Melanie
Charlotte
Oh, Erika, I wish I had the words you need to hear...words to help you make sense of all that is happening to your family...please know you have my prayers...Eme has my prayers...your boys have my prayers...the doctors have my prayers...you are in my thoughts!
Jenny
Sending many prayers your way Erika! May the Lord give u and your family endurance, strength and peace! Praying for the doctors and their wisdom on how to help Eme through this.
Kym
My thoughts and prayers are with you and your family. I pray little Eme turns around tonight.
Carolyn O'Cain
My heart and prayers are with all of you.
Lori from CO
Oh no I am in tears- I am so sad for all of you. We were at Denver Children's today and I had a funny feeling- pit in my stomach- that you guys were there. We saw Dr Soden and he seemed pretty distracted and concerned about something. We will all be praying- I'm so sorry.
Kathleen O'Neill
I have followed for some time. My thoughts and prayers are with the whole family. Kathy O'Neill Perry, Ga
Stephanie C.
I am so sorry. Many prayers are being sent from our family for sweet Emerson and your family. May God give you all that you need to get through today, tomorrow and always. Praying extra prayers that Gods hands be on Emerson the give her the strength that she needs to get through all these chanlleges that she faces. May God give the doctors the wisdom, knowledge and direction that they need to help Emerson through this and all the days ahead. Again many, many thoughts and prayers are being sent your way.
erika lyn smith
angels above, below, and all around all of the white family.
Rachel
All I can say is... I'm so sorry. I hope Eme turns around and can stay in Colorado. That's my prayer and wish for you. Hugs and Hope for a better day tomorrow, Rachel
Amy - IL
I'm so sorry to hear that Eme is back in the hospital and facing more tough times. More prayers for you all today and in the coming days.
Joy Armstrong
Erika, Eme, you, Jim and the boys are in our prayers. let us know if we can help you with the boys. Joy, Roger and Brett
Anna Lake
“This is my wish for you: Comfort on difficult days, smiles when sadness intrudes, rainbows to follow the clouds, laughter to kiss your lips, sunsets to warm your heart, hugs when spirits sag, beauty for your eyes to see, friendships to brighten your being, faith so that you can believe, confidence for when you doubt, courage to know yourself, patience to accept the truth, Love to complete your life.” ~Anonymous~ Thoughts and prayers of hope and strength to you and family!
Anne Dennon
I'll be with you in prayer. Know that you are not alone.
Melissa
I am praying HARD for all of you. God is with you.
LYNDA
On our knees in prayer!! Sending Love and Warm Hugs!! Ches, Lynda, Tyler, and Maria Black Forest, Colorado
Amy H. - Virginia
I appreciate that you take the time to update the journal, and am wishing that you somehow are able to rest, have some peace in your heart, and remain as strong as possible. You are an amazing woman, and never forget that your sons know you would do the same for them. I wish I could give your whole family a big hug. I also hope that Eme gets through her surgery this evening and that she rallies as she always seems to. She's had quite a day and so have you, Erika. HANG IN THERE! Keeping your whole loving family in my thoughts and prayers.
kathryn
My family and I have been praying for Eme and your family daily for months. The prayers will continue... with an extra vigilance throughout Christmas and New Years. Kathryn and the Michalski family
Sherry Boyle
Praying hard for Emerson, and for your family. May God hold you close.
Sandy D.
Dear Erika, Our prayers are with your family, each and every one of you. God Bless
Dianne Rios
My heart is breaking for you and your family right now. It is not fair, Eme deserves to be well, and you deserve to be together for Christmas. I will be praying for her to turn the corner quickly... maybe Santa can just come to your house a little bit late. Prayers, Dianne
Andrea Husser
Eme and Erika, My heart is breaking for you right now. I have been following your story for over a year and I was so happy to hear you were going HOME for Christmas. Prayers coming your way in massive amounts. God is watching over and will hold her close to his heart. I will be thinking of you ALL, especially those beautiful boys of yours.
Joan
Just read your update. My thoughts and prayers are with you and your family.
Valerie
Wow!!! So excited Colorado was in your update! :) Have a blessed holiday!! LOTS OF LOVE FROM THE EDINGER FAMILY! We will pray for great health!!!
Kathy Russell
What exciting news! You get to go home for Christmas! We'll be praying that everything goes smoothly, and we wish the whole White Family a VERY MERRY CHRISTMAS!
suzanne- aidans mama
merry christmas!!!! home thats awesome say to your family for me and give eme kisses! love you guys take care.
Lara, Colorado Springs
Hi Erika! I would love to drop off a zhu zhu hamster for Emerson...I live in Colorado Springs...I could meet you somewhere? Let me know :) Bye
Trisha Kurtzhalz - Helen's Grandmother
Driving home to Colorado!!! What joyful, holiday news. Prayers for a safe, non-eventful homecoming and sending love and Merry Christmas wishes to you, Eme and all your beautiful family. PS. You are so right - at 3 you can NEVER have too many opportunities to open presents. Come to think of it - the same is true at ANY age!
Deanna Bingley
Enjoy your time in Colorado! Can't wait to hear all the details. Hopefully it will be uneventful :) especially in terms of travel!
Mona
Merry Christmas!!! I am so thrilled to know that you will be spending the holidays together as a family. How wonderful and so deserving. I know you will enjoy every single second of being together. Have a lovely holiday and I will see you sometime soon. Give Eme a big hug! Love, Mona
Joyce J from IL
Yippie! You are in Colorado home again! I hope so! Have very Happy Christmas in your own real home with the family at finally! Hope it will keep Emerson very happy and playful with her brothers and cuddling up in her Dad's big arms again! I am sure you will be very happy resting a lot in your own home again and sleep better so Jim can take turns taking care of kids with you! Have very safe trip I hope you did make it fine back home in Colorado. It is very nice having your own mother assist with you to go home with the baby, great news I loved that news! That made me cry and being very happy for you guys!!
Alice M Shea
Dear Erika and Eme, You are always in my prayers. When I don't know what to say I know The God of The Universe is in Control and Eme IS HIS. I have my own little group of Tranplant Kids here in Boston but I just reached over to include Eme
Jenny
praying for you
Teresa
Enjoy your time at home with your whole family. I hope your travel was safe and quick. Merry Christmas.
Tracey Hill Nies
How frustrating. At least your frustration is at the post office and not related to Eme or travel ;) Safe travels to Colorado and merry Christmas!
Anne Dennon
What EXCITING NEWS! I'm thrilled for you. Will pray for a safe and smooth going trip (as in uneventful, Erica)! Please say "Hi" to your Mom for me. Merry Christmas to you all, (You just made mine very Merry) Anne
Joan and Kylie
I see that is what happened. Did you say home to CO???? That would be amazing. Fingers crossed and prayers going up for these two silly little girls!!! Love ya. JOan
Dianne Rios
Oh, what a snafu!! Well, the meaning of Xmas is not the gifts but the sentiment, right? And the most important thing is you and Eme traveling home for the holidays! I hope this trip is totally uneventful in terms of weather, delays, etc!
Lacie Eldridge
Oh my, that is a major sanfu with the mail. But with just the hopes of getting to go home for Christmas, I am sure all will work out fine. I am so glad to hear the Emerson has been discharged again and really hope it stays that way. Just wanted to wish you a very Merry Christmas. Be careful on the drive home and may your Christmas be blessed, cheerful and wonderful.
Annette W
Oh, my gosh...what a snafu with the mail. And I bet there was a lot of it!!! Hopefully it will all work out and as you say, it will be fun to have a second Christmas in January, especially since it is such a looonnng cold month! I have my fingers crossed that by now you are in Colorado with your mom and all went well on the drive, etc. (Say "hi" to her for me!) Have a beautiful, safe, happy Christmas with the family! It is soooooo wonderful you will be together! Hugs, kisses, and prayers, Annette W
laura yeider michigan
i can not get over how beautiful eme is everytime i look at your page to see how she is doing and i see that little face i can not help but smile......
Kim Martin, St Louis
What would we do without Erika and Eme? Who needs Chevy Chase movies when Erika's in the house! Thanks for reminding us that our worst days, are nothing compared to what others are enduring. I pray that you and Eme can find some quiet time to enjoy the beauty and splendor this Holiday Season. Stay safe, warm and in touch. Know how much our thoughts are with you from St. Louis, MO. Merry, Merry Christmas White Family. You are loved.
Alison Stanley
Happy Transplant Anniversary Emerson. You have much to be thankful for this Christmas. You have made GREAT strides. You are a strong girl (it is in your genes...look at your mother). May you continue to grow stronger daily. I look forward to celebrating in another 18 months (or 18 years). Praise God!!!! Love, Alison
Erika Lyn Smith
Angels above you angels below you Angels all around you and EME!
Jen G
Erika, you sure do know how to make traveling an adventure :)" I'll assume you are back with Eme and telling her all about your trip with the men in your life. Of course, she'll be listening attentively knowing full well she had fun of her own with her special visitors. I sent Eme a package, I hope you've received it. Finally, thank you for continuing to share Eme's story with the world. She has touched so many lives in ways that are indescribable. Take Care this Holiday Season...I'll pray that everyone stays healthy!!
KAtie
Happy Anniversary Eme! Merry Christmas and a HAPPY HEALTHY NEW YEAR.
Molly
Happy Transplant Anniversary Emerson!! Sending hugs & hellos from Rochester NY. Merry Christmas & Happy New Year!!
Tracey Hill Nies
Happy anniversary, Sweet Emerson! I hope you are feeling well!
Teresa
Enjoy your Transplant Anniversary today. Happy Hoildays to your whole family.
Ana and Savannah
Happy Transplant Anniversary Warrior Princess! XOXO, Ana and Savvy www.CotaForSavannahA.com
Joyce J from IL
Happy Transplant Anniversary, Emerson!! We are so proud of you surviving through so so many difficult times and God still keeps you on the grounds enjoying your life! Erika, you are very best mother and very best boss over the doctors and nurses teams etc to make sure Eme is taken care very properly! We all love you both and There is Christmas coming in and hope you will be home celebrating first Christmas in Colorado, did the doctors give you permission to go to real home in Colorado yet? We pray for that special day that Emerson really needs to deserve to be home with the family! God Bless all of you, the White Family!
Deanna Bingley
Happy Transplant Anniversary Eme! God Bless those families that chose Organ Donation! I have always been in favor of it, and will be at peace when my time comes, knowing that I could save the lives of others!
Patti
Happy Transplant Anniversary Emerson! I hope you are doing well! Always in our thoughts and prayers! XOXOXO
Amy in Wisconsin
Happy Transplant Anniversary Eme!!! Many prayers continue to be sent your way. Merry Christmas!
Jenn Y.
Happy Transplant Anniversary Emerson!!!! May you continue to enjoy live with that beautiful smile and all joy you have in your heart.
Lara Van Beek, Colorado Springs
go to www.liasophia.com/blingmommmy to view the lia sophia catalog online. All of my commission (40%) will go towards Emerson's fund. Click on "our jewelry" then "how to purchase". Type in Erika White as the hostess and then you can start shopping. All orders will be shipped directly to your home if you do not live in Colorado Springs. Otherwise, I will personally deliver to your home. If you have any questions, email me at larashere@hotmail.com
Lara in Colorado Springs
Hi Erica, I found a zhu zhu hamster for Emerson....where do I send it? Thanks :)
Mitzi in Maine
Delta, you are a disgrace!!!!!!!!! To treat any customer like that is horrible, let alone you...like you deserve to sleep on an airport floor with a blow dryer! Ok, got that out! lol Glad you had fun with your sweet boys! Memories were made :) It will be so great to see Emerson again! I wish I could see her face when she sees you! I never once thought that the money was used for anything but Em, don't worry!
Tracey Hill Nies
Hope all is going well back at the apartment! I'm sure you are busy. Thinking of you!
Jean Griesan
Oh, Erika! Your travel stories are priceless! I hope that you are back all snuggled in with your Eme. I'm sure that it was a sweet, sweet reunion with her. I'm so glad that you went and had some time with your "boys." You all needed that! I wish for you the best this Christmas season, wherever you are. I hope that you are feeling a little celebration and joy that your sweet girl is here with us! Always praying for you all, Jean
Nancy Ketover from Atlanta
If I had only read your note sooner- I would have picked you up from the airport and brought you to my house for a few hours of sleep and then back to the airport... I have been following your beautiful and courageous story through a mutual friend who is in my neighborhood. :)
Annette W
Your cruise sounded wonderful! I am so happy you had such a good time and were finally able to spend precious time with your boys and hubby. I am sure the warm, sea air was medicinal, too! Man, you sure have some bad luck with flying! But the important things are you got back safely (I assume!), that Eme was in such good hands while you gone, there were no "catastrophies" while you were away, AND you made such wonderful memories and had a much-needed break! Take care and enjoy holding Eme again.....Annette W
Tricia Best
Hey Everyone, I'm glad that you all got to go on a trip together. Sorry to hear about Erika's travel back. Ugh!! :o( Jon & I wish you all a very Merry Christmas & a Happy New Year!! I hope that this year’s holiday season is a great one for all of you. God Bless!! :o) Love, The Best's Jon & Tricia :o)
Cheryl from CO
So glad to hear that you got family time with your boys. Please don't ever feel like you have to explain or justify where money is going. The cruise was something you all needed, especially your sons spending time with their mom. They're just as important as paying the rent or caring for Emerson. God bless you all.
Deanna Bingley
I forgot to mention, the items will be shipped direct to your door.
Wonderful Deanna - thank you!!
Deanna Bingley
IF anyone is interested go to www.tupperware.com and choose the items you would like to purchase. E-mail me at deebingley@comcast.net with the item description and price, as well as name, address and phone number. I will contact you with your total, including tax and shipping. You can pay via credit card and 100% of profit will go directly to Emerson's fund. Please note that you can not place the order online, or it won't go towards her fund. In your e-mail just note that it is for Emerson. Here's to raising lots of money for the White family with all the options out there! Thanks! Deanna
Deanna Bingley
I am willing to do a fundraiser with Tupperware as well. I will get the details on how it all works and post the info.
Joan and Kylie
Well, I have spent many nights in the Atlanta airport. Not fun when you are trying to get somewhere. I am glad the cruise went well, I am hoping you made it back to Omaha this a.m. You know we were not meant to have craziness in our life. It is not bad enough we deal with the medical stuff on a minute by minute basis. Well, girl, get some sleep if you can mangage today. Snuggle up to Emerson. Give her a hug for us and when you get a chance an update on what docs are saying now. Love ya. Joan and Kylie
Lori from CO
I know this is from last year, but do donations still go towards Emerson's fund when you buy things through this site ? www.HopeForEmerson.com
yes - thanks for reminding everyone!!
Patti
Well, your life wouldn't be the same without something interesting to share with us; would it...LoL. I know the feeling...we have the same kind of luck! Anyway, I'm happy to hear you had a wonderful trip with your boys (all of them) and of course, sorry to hear you were stuck in the airport (that's scary too). But, I hope by now, you are home with Emerson and I also hope she is doing well. There is not a day or night that goes by without our thoughts and prayers.
Suzanne
Thinking of you and hoping you are getting some rest.....God, be with Erika tonight, and always and give her peace and love.
Joyce J from IL
Thanks and hope, Erika, you take much sleep tonight and relax with Emerson at the little apartment tonight! God Bless both of you. Hope you have nice week. I will wait for your getting ready to tell us exciting news/stories on cruise and on Emerson's progress. Are you going to Colorado for Christmas Day? I hope so I will pray a lot for you both! Hugs!
Lara in Colorado Springs, CO
I sell lia sophia jewelry and would be willing to donate all of my 40% profit to Emerson....we could do it all online...so anyone from anywhere could order. Let me know what you think.
Oh wow - that would be wonderful. Thank you so much!! Be sure to get us all more info :)
Lisa & Rhyleigh
So many people said what I was going to say. Never feel you have to expain anything to us...never! Lara if you read this I think she did receive a zhu zhu from a generous Ebayer who donated it. But I would gladly buy it if you need to get rid of it and will also throw in an extra $18.00 towards Eme's fund. =) I'm sorry that things ended badly but it sounds like you have enough good memories to wash out the bad once you are settled back "home". I can't wait for more of an update and I bet the boys had the time of their life. I think with the number of followers here we could all give you a place to stay each in a different state if you ever needed it. =) Just as an FYI - if you are ever stuck at LAX that would be me. =) I can only imagine Eme's face when she saw you - most likely the look of excitement and disbelief put together. For my 3 year old it's the same look if it's been a couple of hours or a day...lol. I know it might not bring in much money but I would gladly help out with a fundraiser selling silicone bracelets that could say something like Pray for Emerson or something like that. I also have a really great friend who buys gold and 10% goes to the host - even out of state I could help out with that. Just let me know how I can help. Can't wait to see pictures! Lisa
Lara in Colorado Springs
Hi, Did Eme get a zhu zhu hamster from anyone yet? Thanks :)
Kelly
Erika, We once had to sleep overnight at LAX... they were cleaning the carpets that night, so it was loud and damp everywhere. Not fun at all! So sorry that your trip has had unwelcomed surprises. You'll be with your baby-girl soon.
Lacie Eldridge
Ms. Erika, You don't worry about what other people think about you taking a vacation to Florida with your boys and husband. If someone judges you for that, then they need to step back and re-evaluate themselves as a person. Anyone who knows you will know that money did not come out of Eme's funds. As far as you paying for it yourself out of your money, that is your business. It's money that you all have earned and have every right to spend as you see fit. If they judge you for spending money that they say you can't afford due to Eme's medical, then they obviously have no value of family. You had every right to take a vacation and spend time with your husband and your boys. You, unlike the ones judging you for this, have family values. That is something you don't see very often anymore. So, hold your head high and know that you did the right thing. Besides, what difference would it have made if you would have just went home to Colorado, you would still had just as many expenses to go there. You did what any caring mother and wife would have done. Don't let go of those family values, be proud of them. Take care, Lacie
Joyce J from IL
Oh, Erika, you must be already in Omaha with Emerson, I hope so and I just called my church about your loss for the night and the church would offer you for a ride and foods, sleep in a place but we read doubles and realized the date was after midnight so you must be home in Omaha now so never mind the message I orginally wrote but prayed you survived through the night and caught the plane successfully. I bet Emerson got so thrilled to see your beautiful, suntanned face! We love you, all White family!
Joyce J from IL
Oh No, sorry to hear about your being struck in Altanta where my best friend lives there, too! I wish to ask her to give you a place to eat in and to sleep in at my expense but I do not know if she can make it or not because she has her grandma on short trip around Altanta, I know so far but from here to Atlanta is not to bad about 8 hours drive away and I would give you a ride from here to Omaha which only takes about 6 hours where we travel up there sometime if you would rent a car from there to Belleville, IL I would go ahead but you already have plane ticket for tomorrow, is it refundable or not so I do not want to see yours loss. Good News that Emerson is discharged and maybe she is sad that you were unable to be home by now! Sorry! We will pray for your survival through the night again and making it home on time tomorrow morning! I sure am proud of the babysitter for Emerson to do it for you for one extra day and maybe two if you are worn out! WE support you 100% and hugs for you for the safe and long night being in Atlanta. Keep yourself warmer! Hope you can find a cot to sleep in!
Vito and Ladea Dante
We are so sorry that you were stuck in Atlanta, Erika. We pray you are safely back in Omaha and reunited with Emerson. We are so happy that you were able to spend that much needed time with your boys and are glad it went well. Please don't ever feel the need to explain yourself to any of us. We are here to be your rock. We need no explanation. We have been blessed to know you and your family and you have our absolute heartfelt support. Because of Emerson and her story that you have shared with us, we all hug our children tighter and laugh off the small stuff. We all appreciate the health of our children more and have all found a deeper level of empathy and compassion. That is because you chose to share a very difficult time in your life with all of us. Thank you. Just know that you are continually in our prayers and hope for you and Emerson to return home to Colorado very soon! Take Care and God Bless!
Deanna Bingley
One more thing - You should never have to explain how or why you spend your money - That's your business. That trip was as important as anything else you've done!
Deanna Bingley
Erika - As so many of us have stated, you have given us so much that you will never see! You are a daily reminder of the goodness that is left in the world, as well as the amazing strentgh and fortitude a mother has for her children. I wish for peace and calmness in your world, Eme's full recovery, and your family back together. The others that need to be recognized are Jim and the boys, as they have shown a true selflessness while you and Eme have been gone. You deserve the Thanks on this one! I hope you're back with Eme and she has rewarded you with that beautiful smile of hers!
Lori from CO
oh Erika- I'm so sorry that your trip ended so poorly and that you weren't able to get back to Emerson last night- shame on Delta :-( I hope no one made you feel like you have to justify anything you do/spend your money on- because you don't owe anyone an explanation- period. As for not 'giving' anything you are not understanding how powerful your faith and strength can be in inspiring others to face their own adversity with grace. We have been dealing with serious chronic illness for 13 + years but can only imagine all that you have dealt with- and dealt with so admirably. I pray for all of you all the time and am praying that you will soon be home in CO for good with a stable Emerson. Lori lucky mom blessed with triplets including one with short gut
Charlotte
Erika, I must echo the words of all who posted before me...please don't ever think you are not giving back...you have given me SO MUCH...and we don't even know one another! I have been so moved by the spirit and the bravery of your sweet Eme...I am humbled and awestruck at the wonder of your love and dedication to your child...I eagerly check this site each day hoping for an update on how the two of you are doing...I marvel at your wisdom, etc., etc., ...I could go on and on...but, please know that,yes, you have given so much!!!! I, too, am sorry you felt you had to justify your trip...you don't!! I am certain there are plenty of us on this site who thanked God that you found a way to be with your sons and your husband...all of us knowing only too well the strain Eme's illness must be putting on your family. We understand and we care and we all support you in any way we can. All I can do is hold you and Eme close in thought and prayer...and I do so every day. I'm so sorry your trip home was so difficult, but I'm sure the expression on Eme's face when she saw you made everything worthwhile. Take good care and try to get some sleep!!
Tracey Hill Nies
Just sent you a message via FB with my phone #'s! USE THEM! T
Tracey Hill Nies
NO! Not more travel woes! PLEASE next time you are stuck (Ok, I hope there NEVER is a next time) in Atlanta, call me! I am 20 minutes from the airport and would love to have you stay here. Even if it's to sleep for a few hours and take a shower. I would happily forgo some sleep to help you out any time, Erika. I hope you are on your way home to Eme safe and sound. At least Eme is doing well and is out of the hospital! As far as asking and not giving, you have GIVEN so much to SO many by telling Emerson's story. I know this because I have followed Eme's journey for about a year and a half and marvel at your strength and wisdom. I look at my children differently and am reminded of my blessings daily. Thank you for that. I hope you, Jim, and the boys had a wonderful trip and lots of wonderful memories were made. I'm sorry that you feel you even have to explain why you went on your trip to Florida. I guess having been a special education teacher (w/some medically fragile children) for years, I am only fully aware of the strains this puts on a marriage and all of the family. I hope your time together helped. Thinking of you all. Tracey
Barbara
I couldn't have said it better than David T did. Never, never feel you are asking and not giving. You are giving way more than you can imagine. And Glenda was correct as well... Taking family time is a cost associated with this "transplant" life that you all lead. I pray the you made it back to Omaha with some semblance of peace. And that despite all the care and lack of sleep, once you feel Emerson's joy in seeing her mommy, you will be renewed once again.
Jules Badger, Sammamish, WA
Erika, I'm so glad to hear that you got a chance to get a break but I'm sorry that the journey there and back had to feel like a bus ride across country. Erika, you don't owe any of us reasons for how you spend your money or time. You are an extremely giving mom and it goes without saying that you and your boys and hubby needed to reconnect. You deserved that break and I'm sorry that you felt the need to clarify that the funds didn't come from the COTA account. I'm also sorry you felt you had to tell the Omaha team that you really would rather be there with Emerson. Of course you would! You deserve empathy and love, not criticism or judgement about anything. Needing a lot and not having a whole lot left to give is totally normal in this situation. Keep asking. People want to help! Bless you and your family and know that you are loved. In Peace and Love, Jules
Glenda Wilson
Erika, So nice to hear you had a wonderful cruise. Sorry to hear that getting back to Omaha has not been so easy...I think by now, nothing surprises you when it comes to traveling. Don't beat yourself up, you'll get there when you can. Finally, I want to say that I'm sorry that you felt like you had to explain your trip for fear of other's judging you spending money on it. I know that everyone who reads this will not have one ill thought about you taking the trip inspite of needing support financially. So many on here have had a child in the hospital for a long period of time and can certainly appreciate the stress it causes on a marriage and the siblings. It is absolutely vital that these reconnect times happen regardless of the cost. So, know that we are all happy you took the trip, it was absolutely as necessary as paying your rent this month....no one is judging how you spend your money and it anyone does, they certainly better not post it here because I've seen some of these ladies get pretty fired up in the last year! :-) Praying for a smooth flight home and the strength to get through the day until you can lay your head down for just a little while. Wishing I could come and help you myself... Glenda Wilson Corinth Texas
David T
O Erika - that stinks! I hope that Delta have the decency to offer you some form of compensation for this. On a more important note, you say that you are "needing a lot & being unable to give much of anything in return". I must say that I don't totally agree :) It is Emerson that needs a lot and YOU are the awesome mom who is giving herself to her little daughter in the most unselfish, loving, and amazing way. You are giving so much to us as well. You give us an insight into a world of heartache and pain, mixed with love and sacrifice, that many of us can only imagine. We are humbled by the experiences that you and Eme share with us. We also have the opportunity to pray for you and Eme and to see our prayers answered on a regular basis. Seeing God in action is both awesome and humbling at the same time. So please, don't think that you are not giving back, as you are. We thank YOU for letting us be a tiny part of Eme's journey. David and Carina
Anne Dennon
Good Morning Erica, Wishing you smooth going this morning from Atlanta to Omaha. There will be one very excited little girl awaiting your arrival and that hopefully will smooth out the prior evening's cold floor experience. I'm so sorry for the bumps in the road. Thrilled to hear the cruise was rewarding -- may the good memories linger on and on. Know we are thinking of you and of course you and Eme are constantly in my prayers. Stay strong and stay well. With love, Anne
ELS
I am sorry every time I click on the saved link it sticks in my previous message. Wish I could delete my own message!
I thought I had seen that one before :-) I deleted it for you :-)
Annalise
Erika- I'm so happy that you made it out to Flordia and have started your vacation. You need this time for yourself and for your boys. I hope you have wonderful weather when your on the ship and just enjoy ever moment. I'm sure Emerson is going to be fine and will enjoy her well rested mother when you return!!!
Valerie
ahh....your status brings smiles to my heart!! ENJOY ERIKA, you deserve it!!!! :) Eme is in good hands with the nurses, docs, and the Lord has her cuddled next to HIM!!! Have a wonderful time!!!!
Joyce J from IL
We are so excited that you are due to return back home"s" and will see Emerson again to cheer her up again! Give her lots of love and presents I expect that, right? WE can not wait how much fun you and your all boys have had on cruise over the weekend? I bet you got some good suntans? We are READY for your BEST story and Emerson's progresses while you were gone! Hope they will tell you to take her home as soon as you enter her room! Hugs, the Jackson Family
Lisa & Rhyleigh
Can't wait to her about your trip and Eme's adventures while you were gone. Hope you are all having a fantastic time!!!
Pam Crawn
I sure hope you guys are having a great time. You all deserve to get away and spend some quality time together.
Tracey Hill Nies
I hope you 4 are having a wonderful trip! I'm freezing cold here in Atlanta! Thinking of you and hoping you are getting lots of R & R, but also making some wonderful memories!
Michelle A.
Have a wonderful time with the boys and come back revitalized for Eme...you deserve much more. Will keep you all in our prayers.
jasmyn lloyd
hello... its jasmyn again, i see eme isn't doing so well but i really hope she gets better. glad she was well for a little bit to go have fun, wish i was their. well wishing you and the family the best of luck!!! love jasmyn
Anonymous
Dear Friends of Emerson, I am Amy Howarth - Campaign Coordinator for Emerson, along with Melanie Oliver - Webmaster. This Christmas we would like to Honor Emerson by remembering the 18 month anniversary of her 1st transplant on the 18th of this month. We are asking all Friends of Emerson to visit her donation page and pledge $18 (or any amount of your choice) to help off-set the continuing transplant related expenses the White family faces. Emerson's journey has been an inspiration to us all. Her beauty, determination and spirit has captured our hearts. As we give thanks this Christmas season for our own health and the health of our loved ones we ask that you lift the White family up in your thoughts and prayers and join us in our continuing efforts to help them through the many challenges ahead. You can pledge your donation online at COTAforEmersonW.com or you can send a check, made Payable to COTA & noting “In honor of Emerson White” in the memo line to: COTA. 2501 COTA Drive. Bloomington, IN 47403 Please pass this on to your family and friends or post it on your Facebook or MySpace pages. We wish you and your family a very blessed Christmas and a happy and healthy 2010. Sincerely~ Amy & Melanie
Patti
Whoo Hoo! Have a drink for me too. I really do hope you enjoy your cruise with the boys! You deserve it. Get some well needed sun and fun! Can't wait to hear all about it when you return! Always in our thoughts and prayers!
Deanna Bingley
Happy Sailing!
Becky
HAVE FUN!!!!! Eme is in good hands.
Jules Badger, Sammamish, WA
Yeah Erika! It sounds like you're intuition was RIGHT ON! I'm sorry to hear Emerson was sad today. But I know that you can serve her best when you get your own rest. Hope you have a wonderful vacation. In Peace and Love, Jules
Dianne Rios
Yay! So glad you got out of Omaha and you're even getting some R and R time to yourself! You need it and it sounds like Eme is in great hands, even if she's not enjoying it so much right now :) Yet another sign that Eme is doing well- acting like a typical toddler missing her mom! You enjoy your time with the boys in the sun!!
Ruth Smith
Good on you for going on holidays! Emem will be well cared for, and it's so easy to forget as a mum, let alone the mum of a very sick child, to take time out for yourself. I hope you have a wonderful time and enjoy every moment of it! Recharge your batteries for a little while! Love to you all, Ruth
Joyce J from IL
Happy Vacationer in Miami and try to get much relax and sleep before the boys and Jim will hug too much over you! Have fun catching your cruise and enjoy the four days! I am sure Emerson will be alright without you and she will be very spoiled by all doctors and nurses until you return! She might be very smart knowing you are on vacation that she might want to go along with you and the family. Just tell her that she will still go on vacation with you guys hopefully next year if she is enough strong to stay away from the hospital most of her life. Have fun and take much sleep tonight!
Annette W
All I have to say is "AWESOME!!!" I am soooo glad you went early; that would have been awful to go through again what you did to get to Geoff's wedding! And it is so great you actually had some time to yourself; you needed that so much! Enjoy the cruise...you, Jim, and the boys deserve this fun time! Eme will be fine...she is still protected by all our prayers! Those us in the frigid climates will be thinking of you on the beautiful seas and on the sandy beaches....Annette
Tracey Hill Nies
YIPPPPEEEE! I am so glad to know you're done in Miami. A night by yourself to boot! YEAH! I saw bad weather in the forecast and could not believe my eyes. Enjoy your vacation! Eme will be so glad to see you when you get back!
Candice Behm - Portland, Oregon
I would say much needed & much deserved. Smart move on getting out prior to the storm. I am sure special memories will be made. I can just imagine the look on your baby girls face when you return. Enjoy!
Michelle Rhodes of St. Louis,MO
Awesome! Go enjoy yourself and be treat like a princess and get all the moments with your boys! Smile.
Nicholle
I posted a few photos of Bandit playing in the snow on my Dogtopia Facebook page. If you go to my website and click on my Facebook link, you can see them :) Thought your boys would like seeing him.
Kim P
Have so much fun, Erika!! You deserve it!!
Mindy in Louisiana
You deserve this one day! Gather your thoughts and get ready for an amazing trip with your boys. How special!!! I am so happy you get to have this precious time. Please enjoy every single second. Eme is in great hands and will be just fine.
Maggie LF
Yay for you! You need this time. Please try to enjoy it. We are a short 2 hrs away from you. Still hot and sunny. Love this weather
Mitzi in Maine
Why am I crying when I read this update!!??? Because they are tears of joy! I am so happy for you that you are just walking down a sidewalk looking at jewerly!!!! Eme will be ok, she won't know you were even gone when you get back. She is a superstar at the hospital and people will be treating her like the princess she is...she'll be fine! :) I am so happy that you get to spend some time with your awesome boys! they will remember this the rest of their life! I know I don't have to say it, but spoil them rotten!! :) CHEERS!! carepage/avaann
Tifanny (Denver)
WOOOOOOHOOOOOO!!!!! Great idea getting out of there early. Eme is in great hands, and the dr's and nurses are there for her as well. The boys are going to remember this trip for their entire lives, and you REALLY deserve it! Relax and enjoy Jim and the boys Erika. I pray that you have calm seas, lots of love, tons of memories and fun! When you get back, Eme will have forgotten that you were gone. The loving hearts of Children...If we just listen and watch we sure could learn a lot from them. :-) From a very snowy and cold-as in zero degrees-Denver, Love and Prayers to all of you!
Barbara
Toni put it all very eloquently- yes all babies miss their mommies. Soon she will be so excited by the spoiling she is bound to receive it will be all better. As for your temporary tattoo- just wanted to make sure you were aware those don't handle oil/cream well, especially Sun Screen. So be careful when applying to be sure your Tat lasts the week :-) Hoping everyone has a joyous, peace-filled week. You are all surrounded by prayer.
ooooh, thanks - I didn't know that
Trisha Kurtzhalz - Helen's Grandmother
Miami - yahoo!!! So glad you got out before the storm. It's bringing some beautiful, Christmas cheer but not the best for travel! I hope you are knee-deep in a Margarita by now. Have a fabulous time - Eme is in good hands and will be full of smiles before you know it. Enjoy your little bit of "you" time and on to have the best cruise in the history of vacations!!!! Sending love & prayers from Vermont.
Toni
Remember that our great God and Father can ALWAYS go where we cannot. Emerson is not alone. She's never alone (though of course she misses and wants her mommy, as all kids do when mommy leaves.) As hard as it is to be away from her (for both of you), I have to think that God will use it to refresh you, which equips you to continue to do all that you do for those that you love. ENJOY THIS TRIP! Have been to Bayside many times. LOVE IT there. And also took a 4 night cruise out of Miami last year. If you happen to be on Norwegian, be sure to hike while on the private island. There's a little manmade pier just beyond the lighthouse. Beautiful little quiet spot. Blessings, ~Toni~
Debra Snow
Good for you!! Enjoy every minute!!!
Glenda Wilson
NO GUILT NO GUILT NO GUILT!!!!!! THAT'S BREAKING THE RULES :-) Eme will be fine, yes she's misses mom but if she was healthy she would probably do the same thing (I know, mine aren't much older than her). Have fun, Erika....make this the best trip it can possibly be! Wow, a night in Miami alone, that sounds like a dream :-) Glenda
Maria Connely
ENJOY! ENJOY! ENJOY! I know Jim, Collin and Bradley will enjoy your company, so make sure you soak in the sun and enjoy your 4 days with them :) As for your tattoo, somehow I managed to collect three - all representations of my family - a danish flag, a irish clover and a daisy for the little girl I always dreamed of :) You know Eme is in the best hands possible - I'm with Dr. B - boo hoo on the beach - you'll be back in the snow soon enough. Wishing you all a very Merry Christmas and amazing 2010 - you ALL deserve it! Love, Maria
Ellen F
The snow storm and your travel record crossed my mind.... I knew you are a smart cookie :) Have a FANTASTIC trip. Relax, get a pedicure, laugh, love your boys until they are embarrassed, sleep, etc. It sounds like Eme is in great hands. All my love and prayers, Ellen
Joan and Kylie
Hey!! Have a great time. Enjoy yourself and have fun!!
Quita Furr
Erika enjoy your time with your boys. They need it and so do you. Eme is being showered with prayers and has a wonderful team looking after her as well. Have a safe trip and a wonderful refresher. hugs from Texas!
Krystena
I'm glad you were able to make it out. I hope you are able to relax a bit. Love, Krystena
Nicholle
You left at the perfect time! Even Bandit, "the lover of snow" looked at me like "Are you crazy? I have to go outside in THIS!" Margaritas in Miami...what a wonderful way to prep for your cruise. And even a little "alone" time. Enjoy! You deserve it!
thanks again for everything!!! i miss him :( but know he's in GREAT hands!
Tammy
Enjoy your trip!!! You deserve it!
Lori Hollingsworth
So glad you were able to get out before the storm hit.....have fun....ENJOY your family....you desperately need to be refreshed! NO guilt allowed!! ;)
Anne Dennon
Smart you Erika. Enjoy, enjoy. We'll keep Eme covered with prayers while your gone. Bon Voyage and let the good times roll.
erika lyn smith
Erika May you and the boys have a lifetime if memories and goodtimes! You all deserve it so much. Eme will be laughing up a storm by tomorrow i am sure. God bless all of you.
Erika
What wonderful words Erika! What a wonderful way to end Thanksgiving! I am thankful for your insight and wisdom which continues to astound me. Love, ELS
Charlotte
Erika, am so delighted that you are safely in Miami! Have a wonderful time and take good care of yourself!!! I am sure we are all keeping Eme close in prayer, especially while you are away. You needed this time and your boys (all 3) need this time! Good for you...and God speed!!!!!!!!!
Shari
Erika: you are on my mind today. I don't comment often, but wanted to let you know I am thinking of you and praying for Eme and you. And hoping you get to go on your beauty cruise! :o)
Alison Stanley
Bon Voyage. Wishing you a blessed trip and a much needed reunion with ALL your boys...Jim, Collin and Bradley.
Pam Crawn
Have a wonderful, much deserved vacation with your boys, Erica. You guys all deserve to have an awesome time together. God's angels are watching over Emerson.
Kim Martin - St. Louis, MO
Erika - "it's all about me!" Need you to say this a number of times before and during your trip. You need to truly relax and enjoy this time with your guys. Allow yourself to be pampered. You truly deserve this time and they deserve this time with you. Enjoy each other. Eme is going to be just fine and her cheering and prayer squad will be on active duty in your absence. Our wish is for uneventful travel and a enjoyment from sunrise to sunset for you, Jim and the boys. Give yourself permission to have an awesome vacation!
Tracey Hill Nies
OMG! Your trip! Is it today or tomorrow?! Have a wonderful time! I hope Eme is feeling well and will have a great time while you are gone! Safe travels!
Patti
Enjoy your time with all of your boys! I know it'll be great! Eme will be fine too. Keeping you guys in our thoughts and prayers!!!! Cannot wait to hear all about your trip! Have a safe one!!!!
Joyce J from IL
We want to wish you and your family VERY BEST VACATION to E-N-J-O-Y your cruise time and RELAX daily until you are back on the grounds to come see Emerson with hopeful surprises Emerson might have for you in store. Emerson will be fine being in the hospital room with Katie and trusty nurses and doctors on spots so you do not have to worry about and enjoy your time being with your lovely husband and beautiful sons to have F-U-N. Hope you take tons of pictures before you leave Emerson and after your return and tons of cruise trip, too! WE will pray and will think alot of you all and Emerson, too!
Trisha Kurtzhalz- Helen's Grandmother
One day and counting??? Hope you have your bikini packed!!!!! ENJOY!!! Best wishes for a wonderful vacation - sending love & prayers from Vermont.
bikini?!? oh how I wish!!!
Ellen F
Bon Voyage White family! Enjoy your well earned sun and fun time TOGETHER! All my love and prayers, Ellen
Lucetta
I SO look forward to new pics of you with the boys and Jim. Clearly Em will be in great hands, and will always have SO many people continuing to keep her in their prayers. All best wishes for you, always. Lucetta, Angus' Mum.
Jean Griesan
Hi Erika! I am thrilled that you are going on this trip with your boys and Jim. I know that you'll feel like an alien for a while, watching everyone else live "normal," but I know that you'll get the hang of it. :) I'm excited for you to spend some "no pressure" time with the boys, and I hope that you and Jim can reconnect and remember why you are married. I know that I feel like that with Tom sometimes. I know that Eme will be in great hands, and I hope that you can just e-n-j-o-y yourself and what you have on this trip. Blessings on you all! Hugs, Jean P.S. I'll still be praying!
Lisa & Rhyleigh
I am so excited for your trip and it isn't even me going on it...lol I can only imagine the boys crawling out of their skin counting down the days. It sounds like Eme will be in wonderful care and I'm sure spoiled like crazy! I hope you return rested with time to rebond with your husband and boys and to an all better Eme ready to go check out some Christmas lights! Also don't toss your ZhuZhu just yet. They say this is all rumors and are doing a bunch of investigations. I hope all is well so Eme can enjoy it. Lots of prayers headed your way - as always! Lisa
Valerie
OH I WILL PRAY HARD THAT THINGS STAY "WELL" SO THE TRIP WILL HAPPEN!!! HAVE FUN!
Ana and Savvy
Cross our fingers, toes, and eyelashes too! :) Sending you tons of hugs and love, Ana and Savannah www.CotaForSavannahA.com
Tifanny (Denver)
Cyndi-your prayer is wonderful and speaks so many truths! Erika, I can only imagine how excited and also anxious you are for the trip. I am sure the boys are crawling out of their skin in anticipation! I pray you have a WONDERFUL and FUN time making tons of memories that will imprint on your heart and the boys and Jim forever. Eme is in great hands of the Lord and with her trusty nurses and doctors there with her. Have a blast, and be sure to send us pictures!!! Many prayers that Eme continues to get better and for your families happiness, health, safety, and Smiles!
Nicholle
My fingers are crossed that the trip goes well. I am thrilled for you as this sounds like much needed time away. Bandit is enjoying his first day at doggy daycare. And he loves the snow! Things are going well for him--it's like a little doggy vacation :) Hope Eme is doing well! Hope I can meet her sometime. She's adorable.
The Pruitt's
I will pray that all goes as planned. The Pruitt's
Trisha Kurtzhalz- Helen's Grandmother
I am so happy to "hear" the smile in your words! While I'm sorry Emerson is still in the hospital I am DELIGHTED you will be able to go away with your boys and truly relax. I can't think of a single soul who deserves more than you do. Sending love and prayers from Vermont.
Joyce J from IL
in case I will not be here when you prepare for your family trip in 4 more days left to go, I want to wish you and your family a safe vacation and have fun at cruise for 10 days. Erika, you will be fine being on vacation with Jim and the boys while your good friend you trust will take very good care of Emerson, I am sure! The hospital can keep her in the room where she is very safe and will be spoiled by everyone, I know! We will keep praying and thinking about your vacation and your safety and Emerson's health to gain more strength and well before you return back home, you might be surprised when the doctors tell you to take her home to Colorado, I hope so so Jim and the boys can help you prepare for moving back home, I hope so! We will pray a lot! Hugs, Joyce and family
Joyce J from IL
WE saw TV News and also online news so thought it would save you time to search for it so I can paste that to let you read. A consumer group contends one of the holiday season's must-have toys is unsafe. But the maker of the robotic Zhu Zhu Pets hamsters defended its product Saturday against a study by San Francisco-based GoodGuide that said higher-than-allowed levels of the chemical antimony were found in the toy. Good Guide named Zhu Zhu Pets hamsters one of the top-selling toys with low ratings after finding antimony, which can cause health problems, on the hair and nose of one of the toy hamsters, called Mr. Squiggles. The group assigned the toy, aimed at 3- to 10-year-olds, a rating of 5.2 on a 10-point scale. But the toy's maker, St. Louis-based Cepia LLC, insisted in a statement that its product is safe and has passed rigorous testing. The company said it was contacting GoodGuide to share its testing data and determine how the report was founded. "I have been in the toy industry for more than 35 years, and being a father of children myself, I would never allow any substandard or unsafe product to hit the shelves," Russ Hornsby, Cepia's CEO, said in the statement. Zhu Zhu Pets, which retail for about $10, have become this season's toy craze, following in the footsteps of Tickle Me Elmo and Cabbage Patch Kids. The items fetch $40 or more on resale Web sites like eBay and Craigslist. That's what brought it to GoodGuide's attention. GoodGuide CEO Dara O'Rourke told The Associated Press on Saturday that his group bought three of each of the year's 30 hottest toys and tested them multiple times. Antimony was measured at 93 parts per million in the hamster's fur and at 106 parts per million in its nose. Both readings exceed the allowable level of 60 parts per million, said O'Rourke, an associate professor of environmental science at the University of California, Berkeley. O'Rourke said GoodGuide's test results, released Friday, also indicated the possibility that some toys contained phthalates, chemicals that were subject to tougher standards in the Consumer Protection Safety Improvement Act passed last year.
Jennifer
I saw an article on Zhu Zhu Hamsters. You might want to check it out online. Said something about higher amounts of the element antimony than allowed.
The Chancellor Family
Do they have a "Best Mother of the Year Award?" If so...you so deserve it! You are suh a wonderful Mother, and have such a beautiful family...Eme is a strong girl...she wants her Mommy, Daddy & Brothers to go and have a great time on this vacation! We hope Eme enjoys her Christmas present! God Bless & Merry Christmas! :)
Cyndi in Michigan
Dear God, Thank you for the opportunity to bring Erika, Eme, and the whole White family before you. Lord, please give Erika peace and make it possible for her, Jim and the boys to be able to go on their much needed vacation. Thank you that You have provided the very best possible care for Eme while they're gone, including Katie. Bless their time together as a family. You alone know what the future holds, but help them realize and remember You have a plan and ARE in control. Help them find comfort in the knowing of just that... Thank you for providing a caregiver even for the puppy. You are taking care of everything, and we are SO greatful! Praise You for being God!! In Jesus' name, Amen
Ruby
I hope you have the best time on this trip and are able to really relax. Enjoy the boys and your hubby for a change. Im glad Eme is better.
Susan
Erika, so glad to hear that things are better with Emerson. And even more glad to hear that you are still going on your trip. I know it will be difficult to leave her but what a blessing for your family to be together. I wish you all the best during this Christmas season.
Nicholle
So glad that things are looking up for you and Eme. Great news on the puppy front! Bandit learned how to use the doggy door at our house tonight all on his own and is doing well on his house training. What a cutie!
Cindy in Colorado
So glad things are at least a little better today! You go and enjoy your trip and enjoy being with your husband and the boys!!
Glenda Wilson
I will echo everyone else...so glad things are a little quieter today with Eme...just in time for you to have a little R&R with your three special guys. You think about your sweet girl while you're gone but don't for one second let yourself fall into any thoughts of guilt while on your trip....you deserve this break and your boys and husband deserve a few days of fun and sun with you...in a perfect world, Eme would be there, too but we all know that nothing is perfect in your life right now. So again, don't waste what little precious time you have worrying about what you can not change. Have fun, fun, fun!!!!!! Go to every single buffet and eat, eat, eat....you can run up and down the stairs at the hospital to work it all off when you get back :-) Have a wonderful and safe trip, Glenda Wilson Corinth, TX
Annette W
Soon it will be "Bon Voyage!" Yeah! I am so happy to hear Eme is doing better, and even happier that it looks like you will be able to take the cruise. You need that so badly! Of course, Eme will be in excellent hands while you are gone. I know saying don't worry is useless, but she will be okay!!!!! There are so many there to take care of her. You need to take care of yourself and have fun, fun, fun with your hubby and boys! We smile, too, when we read letters with better news! Annette
Tracey Hill Nies
Glad to hear Eme is doing better. WOW! 4 days! PLEASE do yourself a favor and get some sort of a treatment! Massage, facial, mani/pedi-all of the above! It will be nice (for you)to sit by the pool while the boys swim! I'm glad you have Eme in such great hands while you are gone! Keeping everything crossed for your trip!
Deanna Bingley
So happy to hear you are still able to do the trip and even happier that you plan on relaxing! Eme will be in good hands while you are gone and a recharge will do wonders for you. Enjoy your trip - Can't wait to hear all about it!
Noelle Krimm
Erika- I'm so happy that it looks like you'll be able to have your trip with your boys. It is so important!! Remember your bathing suit. I forgot mine on our last trip and ended up swimming in my husband's gym clothes so as not to disappoint the kids. Not pretty. Have a great time!!!
Dianne Rios
I'm so glad to hear Eme is slowly improving and you (fingers crossed) will be able to get away and enjoy some time with the rest of the family. It sounds like Eme will be in great hands while you are gone!
Kathy Russell
It's so good to hear that Eme is improving. And I'm relieved to hear that you still feel comfortable taking your trip. As always, our prayers continue for you, Eme, and your whole family. Have a wonderful time!
Amy - IL
Prayers will continue and I am glad you should still be able to take your much needed break.
Janice
Just to let you know Im praying for Eme and your family. Never forget that the Lord is right there beside you!
Tracey Hill Nies
Just checking in. Wanted to you to know I'm thinking of you. I just saw your comment about the biopsy too-YEAH! Hope you both are getting some rest and that Eme is improving.
Michelle from St. Louis,MO
I am going to look at the brightest star in the sky and make a special wish for Eme and you. Will pray for her to feel better again and hopefully to return home again. Hang in there, Momma. There are speccial angels out there looking after Eme and you. It would be a nice miracle for Christmas for Eme. Who knows? Will let my candle shine throught the night as in honor of Eme and you. Spread the word to let the light shine in honor of Eme and you.
Joan and Kylie
Warm thoughts and prayers coming your way. It is actually suppose to snow in La tonignt. THis is a major event here. Ha. Keeping Eme and your in our prayers. We made an ornament in her honor along with Kylie to hang on the tree of life.
Barbara
I just added this quote to my Christmas letter, and it made me wish this for you too... Peace. It does not mean to be in a place where there is no noise, trouble or hard work. It means to be in the midst of those things and still be calm in your heart. (unknown)
love it :)
Annette W
I wish I knew what to say, other than you have done ALL you can do and could not have possibly been a better mother, advocate, or person. I am sure it is hard to "think straight" right now because you are so exhausted. But try to put more in God's hands. You can not do everything! Just Him helping to find someone to help with Bandit shows He is watching over you...and Eme. I know you know of all those who are praying for your family...nobody has given up! We all hope and pray, too, both of you will be back in Colorado for Christmas.... Love, Annette W
Deanna Bingley
Thinking of you both and making my Christmas wish to see Eme smiling and all of you home in Colorado! Keep fighting Eme and you too Erika!
Nicholle Reisdorff
Bandit is settling in nicely at my house, Erica. We took some photos of him playing with our dog, Pete, and son, Seth. He's right at home. I have the day off tomorrow at Dogtopia so I'm planning on keeping Bandit at the house until Saturday when I head back to the store. He's a good boy:) I've read lots that's on this website. My heart aches for you and I sent a prayer request out to some friends. We will pray for you and your family! In the meantime, please don't worry about Bandit. He's going to be just fine.
Oh thank you so much - you have no idea what a weight that lifts off my heart :)
Trudy Kistler
Just know that I am Praying, Praying, Praying and sending love your way.....
Tracey Hill Nies
Keeping Eme in my thoughts tonight. Thinking of you and hoping tonight is better than last night.
Jules Badger, Sammamish, WA
Sending prayers your way that they can figure out what is wrong. I'm so sorry that this is so hard. Hugs, Jules
Candice Behm - Portland, Oregon
Beleiving ALL of you deserve more & praying like crazy for Emerson, you, & your whole family (pets included!)
Molly-Rochester, NY
I'm thinking of you both tonight! Sending hugs,prayers and smiles your way! Take Care!
Joan and Kylie
Call some favors in...or just call some of the great nurses we have in Omaha to give you a break. Get some sleep. For now it is watching and waiting. I know the mental fatigue can get you . We are keeping little Eme in our prayers. YOU TOO! I will be your positive right now!! Eme is a fighter!! Miracles have happened in that place before. We are praying for another one. As Elmo says, "We are praying on a Christmas star, for a Christmas miracle." (We watch way to much of the red monster!) Hang in there. Is Dr. L on this week? We miss you. We are praying for that break for all of you.
Laurie & Shania
Erika I'm so sorry. You guys just can't get a break. We're saying extra prayers that Eme starts feeling better. Sending prayers and (((HUGS)))
Trisha Kurtzhalz - Helen's Grandmother
Holding you close in my heart. Sending love & prayers from Vermont.
Anne
Oh,Erika! I don't know HOW you are slogging thru this but for God's grace alone! I will send up prayers all day for you to be strengthened and to know His Will for Emerson and your family. Stay strong,dear mother!! You've come a long way and you'll make it the rest of the way!!! You've got the whole world praying for you and God Himself on your side.
els
Erika your incredible insight has taken you this far. Keep the faith it will not fail you. Listen to your heart. Regardless of how or what happens we will be with you the entire journey. Angels above, below and all around you and eme. Erika Lyn Smith
Valerie
Ahhh...Erika I am so sorry that she got readmitted. When your hopes are high and then they get shattered you feel broken, not to mention Eme looks sicker today. :( You both are strong but that can only last for so long. You both have been through SO SO MUCH!! It's great to see you are reaching out for help! What wonderful people you have met in Omaha....such a blessing! I told Aaron I so wish I could help you out!! YOu two have been very special ladies in my life and have changed me forever! I am praying for you everyday...I wish you lots of love and I pray that the Lord will guide you through decisions that you feel you can't make. My heart truly goes out to you!! Hang in there!!! With LOTS AND LOTS OF LOVE!!!
TB
We are praying that Emerson gets over this illness quickly and without heading too far back down the "sick" road. She had been doing so well and it seemed as if you all were enjoying life a bit more. Speaking of that, I have wondered if you have ever considered bringing your boys to Nebraska, putting them in school there and giving in to the idea that Emerson may need to stay closer to the hospital there. Of course your husband probably needs to stay where he is because of work but maybe he would be able to travel back and fourth more often and the family could begin the task of learning to live together. Then when Eme is ready to leave Nebraska you all have not missed all this precious time together and if she is not able to return to Colorado then your family has had the close time that they need. I realize that it would not be an eazy task but nothing about this whole process has been easy and it seems that the end result would be so worthwhile. Why not let the children have the time together that they desire and let you have all of them in the same place to enjoy all that the Lord has given you! Sending you love and hope in this difficult time with many prayers that she will get past this and return home with you soon.
Tifanny (Denver)
Oh sweet Eme and Erika. I'm sorry this "episode" happened. Everyone here has wonderful things to say and I agree. Put your faith in God's hands and He will help you both through this. Trust in Him. We are praying for you!
Lisa & Rhyleigh
Poor Eme...and poor you! You have the right to feel everything you are feeling. I can't begin to imagine your position. The unknown is a scary thing. I wish I had some words to make everything go away. Some sort of magic spell to make everyone sleep until she is well (Sleeping Beauty) We all expect Emerson to be this little fighter - she has shown so much strength when even the doctors thought there was no hope. I can see though how sometimes she might just not want to fight - she is just a little 3 year old who wants to go home and be a princess and play with her puppy yet she keeps finding herself back in the place she knows more then her own home. My words seems discouraging but please don't think they are meant to. I can just see how all this can weigh so heavy on your heart. Just when you think you found the key to getting her well it's always something else. But then she shines - like the princess she is and she fights like the warrior she is and she wins her exit from the hospital. Until next time. This seems to be the life of Emerson. But she is so much more then a little sick 3 year old. Emerson is not her illness. Emerson is a princess who likes to be pretty. She is a typical 3 year old who wants the video played again when it is over...and over...and over. She wants to go outside and touch the earth and laugh and play with her brothers. She wants to pop bubbles and be silly. My prayers tonight is that she will get well very soon and that this time in the hospital will lead to another discovery which will help lead Eme to being about to be out-patient even longer so she can get out and be Emerson. My prayers are also comfort for you...and sleep! Lisa
Joyce J from IL
Oh, very sorry that Emerson has longer illness with more development of problems lately, so many things they discovered and trying to get her to feel better. I know you are very frustrated but please think about Emerson's strength to be healed sooner. Just rest and think and look up through the windows to the sky talking to heaven asking for giving Emerson a chance to gain her strength to go home again with you for goods. And, we are glad that you found someone take care of Bandit for a while and we are wondering about your cruise vacation next week, do you think you will make it or what? I notice one comment about the nurse wanting to help take care of Emerson and living in the same apartment complex that I would think it is very good idea to have her live across the hall so she can help you take care of Emerson so you can have more sleep better! Maybe that nurse can sit with your baby while you can go ahead to take cruise vacation if the baby is alright!? We sure pray for Emerson to be enough strong when you return back from vacation and find out that she is much better and able to go home so you do not worry to stay another few weeks in the hospital, not even through the holidays again. We all in the world always will pray for you and Emerson so much! Hugs are biggest for all of you, the White Family... God Bless both of you for now! Love, Joyce
Cindy in Colorado
Erika, I wish I knew what to say to lessen your worry, but there's nothing. All we can do is hope for the best. This roller coaster ride exhausts me, I can only try to imagine how it is for all of you. Trust in Eme and trust in yourself. Home in Colorado, we are here for you, always!
Dianne Rios
I'm sorry Eme is doing poorly right now. I hope she perks up again, or she just needs some more steroids in this time of illness. I pray that God gives you guidance during this difficult time, and helps guide you toward the right decisions for Eme and the whole family.
Faye
Im sorry to hear that Erika. I wish things were different for you. i hope things will get better
Tracey Hill Nies
Checking in to see if there are any results for the biopsy. Thinking of you and hoping Eme is improving.
Oh - the biopsy looked good, no evidence of rejection :)
Annette W
So sorry to hear that it will be a longer stay than hoped. Hopefully the Norwalk virus will decide to take a "walk"; either that, or "run" thru her quickly and go away. The anti-biotic situation has to be scary, but SOMETHING will work! You can only do what you are doing.....but, please, get yourself some rest. Eme is where she has to be right now; you need to get some sleep, etc. Everyone worries about the BOTH of you! Hugs and prayers to you....Annette W
Joan and Kylie
I am keeping fingers crossed for Eme. Norwalk kept Kylie in-patient for five weeks. Nasty, nasty, nasty!! Take it one day at a time. She is a fighter!! Love ya. Joan and Kylie
joey and daisy
erika, a year ago, daisy had norwalk. she projectile vomited to far, she threw up on our dog half-way across the room. it is nasty. then in-patient, i got it. we were quite a sight. she was in-patient for a week after the therapy you mentioned. we will keep our fingers crossed that you are in no longer (even less?!) than 7 days.
Emily Greisch
Erika, I don't expect you to remember me but I was a nurse at the med center and I took care of Emerson in the PACU after line placements a couple of times. I would just like to offer my help. I see that she is back in the hospital but I would be glad to come over and help if you need anything. The last time I took care of Emerson You and I discussed that we live in the same apartment complex so if you haven't moved I am just around the corner! My email address is egreisch@hotmail.com. Please Please email me and let me know if I can do anything to help. I know I'm basically a stranger but i have some experience with kiddo's like Emerson and would love to help. I have another friend that lives in the complex who is also a nurse and she would love to help as well. Please take advantage! Sorry for the lengthy message! I'll be thinking of Emerson hopefully she starts feeling better soon! Take care
Jules Badger, Sammamish, WA
Thinking of you Erika. Do see if you can get some time out of the hospital for yourself (if that's even do-able). I'm so sorry the stay will so much longer than you'd hoped. I'm praying you can still set sail with your boys. Sending lots of supportive prayers your way. In Peace and Love, Jules
Tracey Hill Nies
I'm glad to hear they've figured out what's wrong with Eme, just sorry to learn what it is. Of course it is Eme, so she'll kick the Norwalks's butt too. I just hate to hear there's another battle and that she's broken out in hives. Hang in there, Erika. Maybe some of the help on the calendar could come give you a break at the hospital instead?
Erika
What wonderful words Erika! What a wonderful way to end Thanksgiving! I am thankful for your insight and wisdom which continues to astound me. Love, ELS
Tifanny (Denver)
Hello there my Nebraskan Princess and the Angel with the strongest wings I know. I hope this set back doesn't bring your spirits down too much Erika. I know I'm feeling a little bummed. It sounds like you are so unimaginably tired. Keep your faith and continue to love Eme the incredible amount that you do. I'm so sorry to hear she's so bored. My love and prayers are with you guys today and every day. Keep your chin up Sweetie.
Joyce J from IL
Ughh! Again there are more development of problems lately! When can Emerson be back to normal girl like us? She seems she is getting more frustrated that she can not stay at home again and back to Colorado home again yet? WE are praying for her to stay so strong so I guess you are ready for cruise vacation next week so I sure hope you already have someone sit with Emerson for a week or so while you will be away from her! We will pray more for all of you five people!! Love, the Jackson Family
Amy - IL
Ughh is right. Prayers for Eme, you and the doctors & nurses as always, adding on some for a much needed trip to CO for the holidays.
Alison Stanley
BUMMER!!!!!!! Big bummer that Eme is back in the hospital. I am sorry to hear that and still praying for a Christmas in Colorado. I hope this stay is short and informative. May it bring answers to what the heck is the reason she keeps going back in. Again, sorry to hear you are back, Miss you and sending much love to you, Ali
Katie In O Fallon Il
Emerson: Get well soon angel girl. Your Puppies want to kiss you. Mommy hang in there. Prayers and love XO Action Jacksons Mommy
joey and daisy
dear erika, we know it very well, wondering 'when' and 'if' and watching what seemed like everyone else discharging and not returning, for a while at least. and that was just the beginning, 7 months in nicu. emerson is clearly a extraordinarily strong spirit and i believe she will continue on the path towards healing and a good quality of life. she has come so far, it's mind-boggling. and not surprising. as you do, please lean on us all who are here to help and hold hope.
Trish Adams
Thinking of you girls this morning and wishing there was something I could do to make her better. My disappointed heart hurts for all of you and knowing it can't compare to the disappointment you all must be feeling each admit makes it hurt all the more. Just wanted you to know you were being prayed for today. Sincerely, Trish
Patti
I'm so sorry the two of you are back in again. I pray for comfort and ease for you and Eme and hopefully, this thing will work itself out. Hang in there, Erika. I realize how difficult and tiring this all is on you, but if anyone can maintain the strength and positivity, you can. You are always in our thoughts and prayers. Wish I could be there for you!
Linda Lee
Hi Erika, I'm new to your site. I've spent the past few days and a couple nights getting caught up on your past years and photos. You have a beautiful family! I pray for Eme and for you all. Love Linda
Kathi Hines
Erika, You are a brave, strong woman. I will continue to pray for Eme and your family. You are incredible, the way you stay so focused on the many issues facing you. May God give you strength and guidance.
Faye
I would like to see Em go home to be with her family! you are in thoughts
Jules Badger, Sammamish, WA
Erika, I'm SOOOOOOO sorry to hear that she's been admitted again. I know how much you wanted and needed a good run outside of the hospital and it seems like you have a lot of tough conversations and decisions on your plate potentially. I'll be thinking and praying for your family now more than ever. I know we don't know one another personally but I so wish I could give you a hug. I'm sure you desperately need it at this point. Know that you are showered in love and prayer. In Peace and Love, Jules
Ellen F
Erika, My heart is heavy reading about the big issues that are on your plate (again). Accute instincts and the powerful White fighting spirit have brought you so far that we just have to have faith that you have more happy times ahead. You remain in our prayers!! Love, Ellen
Erika V.
Hello Erika, I visit your site regularly but I have never signed the guestbook. My family and I are always praying for you and your family. If possible, could you email me your address? My family would like to send you a Christmas card with a special gift in it. My email is evance23@yahoo.com. Sending you love and prayers, Erika
PO Box 31366, Omaha, NE 68131
krystena
I didn't realize - just checking in. I'm hoping it's not rejection. Keep us posted. Love, K
Tracey Hill Nies
Oh, Erika. I am so sorry to hear you and Eme are back at the hospital. I hope they figure out what is wrong quickly. Keeping you in my thoughts and hoping you are back at home soon. Tracey
Lisa & Rhyleigh
So much has gone on since I last was able to get online. I am so happy you had a wonderful Thanksgiving. It sounds like everything just worked out perfect! A puppy and then Daddy showing up. Wow they must have been thrilled! The photos are so cute! As for the new post I am so sorry to hear Eme is sick. I will keep you all in my prayers that she is able to get back to the apartment soon. It sounds like you are thinking very logicly about the situation. It is very hard to think long term with such an unknown situation but you are right to want Eme to bond with her Daddy and brothers and them with her. I will just keep praying for every symptom to be relieved and condition to be able to be named and finding the right dose of everything to keep her balanced which I know is beyond difficult. One medicine makes you well however causes 10 other side effects that cause other issues. Balance is what she needs and that is what I will pray for. If her meds and everything can find the right balance hopefully every other wish will fall into place. Lots of love and prayers, Lisa
Annette W
Oh, dear Erika, I am so sorry Eme (and you!) are back at the hospital. I am sure it is frustrating, too, not "agreeing" with the doctors even though, I am certain, they are trying their best. I am praying that Eme and you will be home in Colorado at Christmas time. Right now all you can do is what you are doing...a day at a time. So many are hoping and praying for you! Thank you so much for the list and ideas! I did not realize that you live in the same town as Nicki's mother-in-law! Samll world! Take care....Annette
Joyce J from IL
Thanks for the children's xmas lists and very sorry to hear about Emerson's battle with being sick and being home...back to the hospital, back to the OR that is very sad to hear about that but we will keep praying that will give Emerson more strength to be strong again to be home for Christmas! Let us pray so harder and more time! We will be there for both of you! I guess the boys already returned back home again, didn't they?
Amy - IL
As always you are in my prayers, praying for a short hospital stay and quick recovery for Eme, strength and wisdom for you as you deal with this and make decisions on her care and of course compassion and knowledge for the doctors and nurses working with you and Eme.
Charlotte
Prayers, hugs, positive energy and beliefs in miracles coming your way from Michigan.
Joan and Kylie
Hang in there, Erika. You and Eme are in our prayers. Maybe just a virus. Get some rest. Let us know if we can do anything. Love Joan and Kylie
Anne Dennon
Erika, Know that I'm holding you and Eme thightly in my prayers.
Carleen Gerjevic
Erika, I'm so sorry to hear that Eme's fever continued and that she is back in the hospital. BTW, you were probably wondering why she had two different shoes on yesterday. Sometimes a girl just can't decide which pair to wear, so she solved that problem by wearing one of each. I like her sense of style and forward thinking. My thoughts and prayers are with you and Eme. Take care.
David T
Poor Eme! Carina has bad venous access and is usually stuck at least half a dozen times before someone finds a vein - I can't imagine how stressful it must be for Eme to have to go through this time and time again. We continue to pray for Eme, you, and the medical team, and that this may just be a minor bump in the road to getting that delicate balance of meds just right, and in getting the two of you home some time very soon. Dave
Vito and Ladea Dante
Just checking in and are sad to see that you are once again in the hospital. We are praying for a quick visit and a long outpatient stay for you both. We will pray that Emerson's long term prognosis is good and that you will soon be able to move home and be with your boys. We are so glad that you had a wonderful Thanksgiving and think Bandit and Bradley are ADORABLE!!! Sending positive energy your way from Castle Rock, Colorado!!! Christmas is a time of miracles!
Patti
It sounds like you had amazing Thanksgiving! That's what it's all about!!!! Wishing you many, many more happy days! Bandit is absolutely adorable. How is Bella dealing with the new little one? Still on the search for my special gift for Eme....I have not and will not give up!!! In our thoughts and prayers always!
Ruth
www.cotaforemersonw.com has become a favorite sunday point for me
Lori short gut mom from CO
So glad you had such a wonderful Thanksgiving !!! The puppy and his boy are adorable ;-) The 3 tricky triplets toy for Emerson was too tempting for me not to get it :-)
Erika
What wonderful words Erika! What a wonderful way to end Thanksgiving! I am thankful for your insight and wisdom which continues to astound me. Love, ELS
Laura
Thank you for the list, but Wal Mart says you are not listed? Help!
oh goodness - can you try again & make sure you've spelled my name correctly (erika with a "k")? I'm accessing it fine...
Tracey Hill Nies
Wow! I missed a lot while I was in Michigan! Once again, Erika, your words bring me to tears and back down to earth. I thank you from the bottom of my heart for reminding me of the important things in life. Sometimes in the craziness of the holidays, we need to step back and remember what is most important. I am so glad you all had such a nice Thanksgiving. It's great to hear Jim was able to sneak in a surprise the kids! Good for you for asking for help. It's hard to do, but it sounds like it needed to be done. I know words only mean so much, but I REALLY wish I was closer. I often think if I only could get a free ticket...Nebraska here I come! I am so happy that Eme is doing so well. Thinking of you often and wishing you all well. Tracey
Erika
What wonderful words Erika! What a wonderful way to end Thanksgiving! I am thankful for your insight and wisdom which continues to astound me. Love, ELS
Tammie Dubs
Erika, I'm so glad you had a wonderful Thanksgiving with your family. We love the pictures of the newest family member! He is very cute! It looks as though Bradley was enjoying every minute. Don't think for a minute that we've forgotten you. I just don't post very often buy I read your updates regularly. We, as several others around here, still pray for you all. Vonn is still adding Eme to his prayers at night. xoxo back at you! Tammie
Jules Badger, Sammamish, WA
Erika, What great news!!! It sounds like you all got a little taste of "normal". I'm so happy for you all. Thanks for the reminder about what is important. It is easy to lose sight of. Sending you warm wishes of peace and joy. Jules
Maria Connely
Happy tears rolled down both cheeks as I read your Thanksgiving entry... I am so happy you had a Thanksgiving weekend full of happy suprises, all being together at the top of the list!
Stacey Morrison
I am so happy that you got to enjoy a wonderful Thanksgiving full of surprises with your husband and the boys (and a new puppy too!). You have no idea how much I wish I lived anywhere near Omaha so I could jump right in and help you out. Please, know I'd be there in a heart beat. I know how incredibly overwhelming Kaden's care is and he doesn't have nearly as much going on as little Miss Emerson does. Ugh..those ostomy messes in the morning are a nightmare..makes you just want to throw your hands up and go back to bed, don't they!? I'm glad you seem to have an amazing group of people who have jumped in to help you...there really are angels among us! Happy Thanksgiving. Much Love, Stacey Morrison
Pam Crawn
I am SO excited to hear that you had a wonderful Thanksgiving. It is always nice to read your updates as you always make me think about what is really important and that is not stuff but life. Continue to have a blessed holiday season.
Annette W
Thank YOU so much for reminding us about the truly important things in our lives. Your letter was beautiful; you certanly have the gift for words. I am soooo happy you had such a nice Thanksgiving! How fun to have a new puppy in the faimily...how awesome all of you were together! I pray each day in December is "uneventful" for you and Eme and filled with only with those smiles and giggles! Thinking of you....Annette W
Colleen McQueen
Erika, Happy Thanksgiving... Nobody deserves a better holiday season then you!!!!! and your family. You are amazing!! May God bless... you and Jim with strength to endure this journey, Eme with continued health, and the boys with love and support. I think of you everyday and pray that some day soon your family’s journey will get easier. I am so happy that you are going on the cruise! You all need it! including Eme. You leaving her to recharge yourself will not only be good for you but for her.. You will come back with a fresh look on things.. and I personally don't know two boys that deserve it more. I hope and pray you have a GREAT cruise and a WONDERFUL holiday season… May it be filled with a thousand more memories, giggles, and family moments! I don’t know of any family more deserving! Always in my thoughts and prayers!! Colleen
Barb
Erika, I am sure that the donors family will love the letter that you wrote to them. I myself got a letter from the parents of the little girl that my daughter so lovingly gave her liver to. It was a long time ago but I still read it once in a while but will treasure it forever. Believe me they will treasure your letter also. A piece of their child still lives on in Emerson. That is how I look at it. It gives you some comfort to know that. Seasons Greeting, Barb
Ellen F
Happy Thanksgiving Whites!! Praying for you in good times and bad. Glad this week ended with SUPER good times! I LOVE the photos. You have talents with words and for capturing beauty on film. Thanks for sharing! All our love and prayers, Ellen
Erika
What wonderful words Erika! What a wonderful way to end Thanksgiving! I am thankful for your insight and wisdom which continues to astound me. Love, ELS
Joyce J from IL
Wow, Beautiful pictures of Bradley and Bandit and I expect that to help Bradley feel more protection with that puppy back home again! I bet Emerson loves Bandit, too! Glad to hear that Jim was home with you guys for Thanksgiving Day and you all had very good foods to eat. Sorry you can not spend that special events with everyone of your families out of Omaha but I sure pray it will happen for Christmastime. I hope Emerson is feeling better everyday! No changes on Emerson means GOOD NEWS, I hope so! Yeah, tomorrow is BLACK Friday so we are going to chase after the special sale on the laptops for my sons, too!! Big Deal for that!
Doris
So thankful you had a wonderful Thanksgiving. We pray that the next one will be even better. We went to Hershey to be with my sis and part of her family. We had lots of hugs and laughter. We are so thankful for all our family and friends. We will be with our 2 girls that their families on Sat. for another Thanksgiving. What a wonderful God we have who has blessed us with wonderful family and friends. I do enjoy reading your letters so much. Keep it up. We want to know about all of you and the blessings God is giving you. You're an inspiration for all of us to NEVER GIVE UP! God bless.
Dianne Rios
Happy Thanksgiving!!
Tammy
Happy Thanksgiving to you Eme and your family!
Kim P
Happy Thanksgiving, Erika and Eme!! Hope all is well! Love, Kim
Michelle and her family in st louis mo
Wishing you and Eme and families a very Happy Thanksgiving !
Joan/NE
We are sending Thanksgiving Blessings to all the White Family. We will continue to keep you in our hearts and prayers. We are also saying a prayer for all the special volunteers who are helping your family.
Cinda Nethercott
Hoping that you all have a wonderful Thanksgiving! Praying for continued blessings in behalf of your family. I'm always in awe at how I am continually inspired, by not only you, but by the goodness of people whenever I read these posts (never fails to touch my heart). Thank you so much for sharing this journey! Enjoy turkey day!
Deanna Bingley
Happy Thanksgiving to the whole White Family! I am Thankful for finding Eme's story because I have learned so much this year and my heart is filled with awe and love and the giving of so many people! Happy Thanksgiving to each and every one of Eme's Supporters!
Behm's - Portland, Oregon
Wishing you a Happy Thanksgiving. Hope Emmerson as well as the rest of you have a good day. As always saying many prayers.
Ana and Savvy
Erika, We wanted to wish you and your amazing family a Happy Thanksgiving. Sending our love and prayers always. XOXO, Ana and Savannah www.CotaForSavannahA.com
ELS
Happy Thanksgiving my friends. I am thankful and so blessed to have Eme and Erika and all the White's safe in my heart. To all of Eme's online family...Have a safe and happy thanksgiving! Erika Lyn Smith
Heather S.
Ericka, I really, really wish I was near you to help with Eme. I know it is hard and even though all I can offer right now is words know you guys are always with me in my heart and prayers. You are the best mom I know and you are awesome. Happy Thanksgiving and we love you guys.
Shari
Hope your Thanksgiving day is blessed beyond measure! If there's anyone who deserves it it's YOU!
Lisa & Rhyleigh
I hope you are enjoying time at the apartment with Eme and the boys. I hope the new-found help has been some relief to you. I know it will take some time to transition yourself to allowing someone else to take the reigns and some time for them to learn Eme and her needs. I hope all is going as smoothly as possible. Enjoy your Thanksgiving tomorrow with your family and lots of prayers that the next one will be at home! Lisa
lingerie
I loved going through your blog, you have a amazing delivery style! I have forwarded a link to my friends, and shall definately be returning back for more reading.
Tifanny (Denver)
HAPPY THANKSGIVING! We will be thinking of your family and sending Love and Prayers your way. Enjoy your time as a "whole" family :-)
Jen G
Happy Thanksgiving White Family!
Danielle
Erika - Happy Thanksgiving to ALL your family. I hope you are enjoying time with your boys. I am all the more thankful for my wonderful crazy 2 year old triplets because of you and your family. You showed your strength all the more when asking for help and you are a hero in my eyes. Thank you so very much for sharing your family with all of us. I too would like to send something to you children from my children for Christmas. My email is FSUNolegGal@gmail.com When you have a chance I'd love some ideas and an address where you would like me to send. I'm a big fan of giving the gift of reading so please let me know if something pertaining to that would be welcome for the boys. Positive healing energy flowing your way as ever.
Check out the wish lists at walmart.com. Bradley, also, wants to start the series "The Time Warp Trio" - I'm getting him #1,2&7
Anna Lake
"When you come to the edge of all that you know, you must believe in one of two things: there will be earth upon which to stand, or you will be given wings." ~ Anonymous ~ Continued thoughts and prayers for you all!
Vito and Ladea Dante
Erika, Our thoughts and our prayers are with you. We are so sorry that you have had to do this all on your own. I have contacted my cousin, Jan, who lives in Omaha. She and her husband Dave are wonderful people with HUGE hearts. I have given her the information for the Care Calendar. I am sure that she will be in touch very soon. I wish I could be there to help you myself. Just know that we are thinking of you and will continue to search out more help for you in the coming weeks. Take Care and God Bless!
Rev Kenneth Parker
Jenny, from AngelsonWheels contacted me with Emi's story and asked that she be added to the Prayer Partners Prayer Letter (or PPPL) which is published twice weekly to the 300 plus Christian Prayer Chain. I just wanted to let you know that she is now listed and if you would like to have a copy of the prayer letter to read her entry or possibly join the prayer chain, just send me an email to kpsrooster2@aol.com and I will be glad to comply with your request. I will be praying for your Emi. She is a darling little girl. Brother Ken PPPL member
Christine
Katie I have sent you an email...
Jan Huddle
Dear Erika - My heart aches for you and all of your family. It is always easier for us to give than to recieve but when we ask for help, it indicates a certain degree of growth and you have given all of us a wonderful gift - the opportunity to help another in need - I am not close enough to give any hands-on help but I have a little something I would like to send you that might help a little. I was wondering if the hospital has a sort of "general delivery" where one can send cards/letters to patients & where you could recieve a letter. Believe me I do understand about the address thing. It disgusts me to think there are people out there that regardless of their victims circumstances, will rob them if they can. My email is muffinhud@hotmail.com and you could contact me there. I dont know Tammie Dubs but we both know some of the same people and it was thru Vonn's website that I first learned about Eme and Emily You ARE strong and an inspiration to many of us. You are always in my prayers. In the name of Jesus Christ. Jan Huddle
Erika & Emerson White, PO Box 31366, Omaha, NE 68131
Jenn Y.
Just wanted to wish you all a very Happy Thanksgiving! You have a lot to be thankful for this year. God Bless!
Laurie & Shania
Erika, It's great to see how many people are reaching out to you! I've always wondered how you've been managing Eme's needs. Shania's 3rd grade teacher has a daughter going to college in NE to become a nurse. I think it's her 4th year. You probably want someone with more experience. Shania just adored her! I can ask if she's available at all. Let me know if you're interested in her. I wish I could do more or was in a position to help in some way. We're always praying for your family! Have fun with the boys!! HAPPY THANKSGIVING! crumrila@yahoo.com
Joan and Kylie
It sounds like prayers are being answered. I hope you are enjoying the boys this week. I am glad there are some people to help out. I hope you have a very blessed Thanksgiving. Love Kylie and Joan
Kathy Russell
I'm so glad to see you asked for help, and that so many angels have stepped up to the plate. I wish I wasn't so far away (in Ohio). I'd be there in a heartbeat. I will continue to do the one thing I can do, and that's pray for you and all the people who will be helping you, and of course for Emerson and the rest of your family. Have a wonderful Thanksgiving!
Tifanny (Denver)
Erika, you have me rallied. I am a member of the Camaro Club of the Rockies and we are working together to help 3-4 families here in Denver. I would love it if we could help your "Colorado Family". Is there something we can do for all the boys for Christmas? Food, toys, decorations, etc? Please let me know. Also, if anyone has a family out here that they know could use some help, please email me with information so we can do something for them. The Camaro Club of the Rockies, or CCOTR, is a group of 2010 Camaro owners and their families all across the Rockies. We recently did a Drive for Childrens for TCH here in Aurora and had a Corvette escort, about 12 Camaros, and even had some people drive down from Montana, just to help out for 3 hours. We passed out goodie bags to the kids with hats, coloring pages, stickers, oil changes for the parents, lol. We even got to park in front of the building so the kids could come down and check out the cars. The group felt great about doing it and have been looking for more opportunites to help out in the community. Parry's Pizza in Parker also donated free pizza to all of us, and it's the best NY style pizza in the Denver. Please email me your suggestions and the names of families that we can maybe help with food, toys, clothes, etc. Any way that we can make a kid smile and make the seaon a little better for the parents. dove437@live.com
Kerri Rosenbaum
Hi Erica. I don't know if you remember me. I was the nurse at Dr. Danaheys office who helped with Bradley. I remember you had Eme, but did not know she was so ill. I left Monument after I had my baby girl in May 2007. I am so glad to hear that your baby is doing well and so sorry you all had to go through so much. I think about ya'll often and have always wondered how Bradley is. I will keep ya'll in my prayers and wish for the best for your family through the coming years. You always inspired me with how good fo a mother you are, and hope you know you continue to be an inspiration and I am so proud of you! Keep up the good work. Hugs and kisses to your beautiful children. Have a happy Thanksgiving.
Annette W
I am so happy that you have reached and found so many angels, and they are answering your call. Nobody knows how you have done all this for so long. It wat past time for you to accept the help these lovely people are willing to give. A special thanks to Melanie and all those who have helped and continue to give you support. It warms one's soul.... Happy Thanksgiving to you and your family; enjoy the boys! Love, Annette
Tifanny (Denver)
WOW Erika. I have always respected you and admired how strong you were, but now I really truely see it. You endure more than most of us have ever worried about. You have been stronger than I ever could have imagined. Asking for help is a strength, not a weakness! If we didn't ask for help we would fall apart. I wish I lived in Nebraska that I could come and help! I'm sure you are hearing that a lot right now. I almost feel kind of broken that I live out here and don't have the financial ability to do anything. You are surrounded by amazing women and moms, Angels walking on earth. It would be great to see someone pick up this story and make a movie about you. The challenges you have gone through, Eme's struggle, the difficulties of raising a family in two states... Perfect to help people understand what is really important in life, and Christmas time always seems to reach people a bit more. I am always thinking and praying for your family Erika. And this Thanksgiving, I'm glad to have followed your story with Eme. It has touched me to my soul and taught me so many things about life.
Jenn Stacey
Thanks for the address Melanie. I wanted to be sure that was the current address.
Patti
Listen, you are the strongest woman I know (okay, I don't really "know" you, but you know what I mean). Anyway, I'm glad you've asked for help and it brings me to tears to see all that have stepped up. I realize I'm not local and I cannot just hop on a plane at any given time, but I'm certainly going to check into it. I'm so proud of you! Hang in there! virtual hugs and kisses to you and Eme!
Angela Tew
I too am local in Omaha and I would love to help out if I could. My trips are only 4 months though, so my time is somewhat limited, however I would love to bring some meals by or help out on the weekends. My email address is angelhoff25@yahoo.com so just send me your info so I can sign up and help. I'm also going to contact our local multiples group to see if anyone else can be of assistance to you
Melanie Oliver
...an additional note to those of you looking for a mailing address. It can always be found under the "Home" tab above - then click on "Hospital Information". P.O. Box 31366, Omaha, NE 68131 Thanks!
Melanie Oliver
Thanks to all of the wonderful folks who have offered to help Erika! The Care Page link has been posted under the "Activities" Tab above. Click on "The Care Calendar" for detailed information. I've also posted the link on Erika's blog...although that didn't quite come out the way I planned. For questions regarding the Care Calendar, please contact Katie Vanie at katie00224@gmail.com. Thank you, Everyone!
Tammy Clark
Sorry Email address is seven-little-monsters@hotmail.com
Tammy Clark
I am all the way in Canada!!! So I can't be of physical help! But I would love to be able to send something you way! Could I please have an address to send it! Thanks Tammy!!!
P.O. Box 31366, Omaha, NE 68131
Jenn Stacey
Hi Erika, I was wondering if I could get your address as I have a little something to send to Eme. Thanks! Jenn Stacey staceyje@insightbb.com
P.O. Box 31366, Omaha, NE 68131
Jules Badger, Sammamish, WA
Erika, I'd really like to be able to send some funds to help you pay to get care (if you don't get enough volunteers). You can email me at julie_badger@yahoo.com. I pray for you both often. But, as a caregiver myself (in a non-life threatening situation) I know how easy it is to burn the candle at both ends until there's no candle left. So, I pray especially for you. I pray that you know that God is with you as are all of us that follow your journey and do everything to lift you both up in these challenging times. You asking for help is a gift to yourself. You get to be human. That's a beautiful thing to reach out and get help. With you as always. In Peace and Love, Jules
Joey and Daisy
Just waiting on the carecalendar Erika. And praying as always.
Please click on "Activites" tab above and then click on "Care Calendar" Tx
Angie - Omaha
Hi, I live in Omaha and I would like to help in any way that I can. I don't have a medical background, so I could cook/clean/run errands/play with Eme. Please send me the calendar to sign up. My email address is j_benkis@yahoo.com. Thanks!
Amy - IL
I loved your words that it takes a village to raise a 'normal child' and several states for Eme. Never fear, we have more than several states trying to help so don't feel alone. Prayers as always for you, Eme, the doctors, nurses and for all of your helpers.
Deanna Bingley
Sorry - an e-mail address might help - deebingley@comcast.net
Deanna Bingley
Erika, I'm so thankful to see the outpouring of generosity at your request. I think I speak for everyone that's too far to physically help, that if it were in our powers, we'd be on the next plane to take our shift. Living in Michigan, I'm a bit far away, but I know it's your hometown (I work not far from your High School), so if there's something that can be done here, please let me know. You are STILL one of the strongest, most devoted mothers I can think of, and you asking for help just reinforces that. Thank you for sharing your little girl with all of us. You remind me daily to hug my kids a little tighter!
Mitzi in Maine
I am so glad to read that things are working out with the volunteers! I really wish I could do more. What a treat it will be to work with Em! I must say I am jealous! :) Maybe you will have some time to actually pack for your trip with your boys!! Or you could just buy all new clothes :) Praying for Em and have a great Thanksgiving! Em has touched my heart so much. carepages/avaann
Jenn Y.
Erika, I check this site daily, sometimes multiple times a day (today for example)! I am always checking in through good times and bad times and ALWAYS praying for you! God does not give us more than we can handle - at times this statement seems hard to believe, exp. when we think he isn't listening, but he is always there to see us through our journey; sometimes though he can't give us the answers or hold our hand, he just guides us and gives us strength. Hang in there a little longer... the haolidays are the hardest and darkest hour for those facing them alone or away from home; you are not alone ever, there is always someone there with you, in spirit at times, but always there. Love, Jenn Y. in NY
Maria Connely
Erika, Do not consider yourself defeated, consider yourself human. You have been running on adenaline, hopes and prayers for so long, and it's gotten you to where you are thankfully today, but you need help. I wish I was closer and able to help sit with Eme, grocery shop for you, or even do a load of laundry. If there is anything you can think of that can be done from afar just post it, and I'll do it. Thinking of you today and always...
Adult Tx Nurse
I take care of the adult transplant patients at the Med Center. I am not sure how many of my coworkers read Emerson’s site and are aware that their help is needed. We have been overstaffed, calling off nurses each shift. Erika, would you care if I put a “need for help” post up in the staff break room? We do not take care of little kids but we know all of the fancy transplant medications and clogged feeding tubes and exploding ostomy bags are our specialty.
We'd love your help...would you mind sending your contact info to Katie at katie00224@gmail.com? Thanks!
K.
Here's what I deal with. Face full of tears, can barely speak, zero engery...tail tucked between legs, I finally ask "someone specific" for help. "Please come asap". The next day, I call to see if they've left home and I get them out of bed and they ask, "When do you want me to come?" You shouldn't have to ask... It is as hard to face that kind of neglect, as it is to deal with the situation you're in. Knowing that you've poured your heart out and still no one reaches out to you can really do more damage than if you had have just not asked :( I wish I lived closer. I would do everything I could physically to help. I find that you will most often get help from strangers. True friends and empathetic family is hard to find. I hope some good citizens of Omaha are willing to open their hearts and schedules to help you out. Much love, Krystena
Amy - IL
I am a little far to stop in to help but I'll be praying for plenty of helpers to be nearby and able to help, strength for Erika and of course good days for Eme.
D.
Yes, when you can, please post the calendar so that we can sign up for times.
Amanda Blomenkamp
Erika, I am a nurse. I graduated from Clarkson College in May. I would love to come help out. I can help any evening except Fridays. I work 830-5. My phone number is 712-899-0426 and my email address is amandag86@yahoo.com.
Kathleen
Sorry, my email address is klecln@verizon.net.
Kathleen
I am in California so not much physical help for Emerson but I would love to send a donation directly to Erika. Can you send me a mailing address so I can do that? I hope your burden is lifted even a little bit. God bless you and your daughter.
Jenn Y.
I so wish I lived closer and could help out anyway I could - laundry, cleaning, cooking, playing with Eme, etc. I live in NY though. You are always in my prayers and I am always thinking about you and Eme and all 3 of your boys. You are the strongest person I know and I have met many parents that have children with special needs/health issues. You are an amazing momma and please don't feel like you are giving in, asking for help is a sign of strength. Love and hugs today as you are in need of lots of both.
Amy H.
How I wish I lived closer! Virginia is a bit too far to travel, and plus my youngest has medical needs so couldn't leave. I wish the team that so carefully cares for her in the hospital would help you in advance/prior to discharge and rally the local services to help you BUT it sounds like some of your great friends/followers from this site are coming. HOLD ON! You are a remarkable mother and tomorrow will be a better day. Sending strength and smiles.
katie vanis
Ok everyone, I have set up a www.carecalendar.org site and will have info published here as soon as I have verified the specifics with Erika. If you have planned on helping, there will be a calendar so that you can sign up based on the type of help (medical/non-medical, errands/groceries, meals, etc) you are able to provide...I want to make certain that we stay organized in order to not create any unintentional chaos!
Pat Biksacky
Hi-just a suggestion to all the wonderful folks who are going to help. We know that Eme is very fragile-please-make sure you are in good health-no colds, etc, so you don't bring new germs to her environment. I'm praying that this will be a godsend for Eme and Erika. I'm sure it will be!
Noelle Krimm (LF)
I wasn't actually criticizing. I just remember going home with my transplant baby and feeling overwhelmed and I didn't call a single person who said "Email me and I'll come." or "I'm just a phone call away." But the people who said "I'm coming at 2pm on Tuesday, what is your address?" were extremely helpful. That's what I was trying to say. Maybe it's just semantic but it makes a big difference. I didn't mean to suggest that you could get to her without finding out her address. I'm sorry I made people mad by trying to help. I'm glad someone can organize it. I considered doing so but as I leave for a 6 day road trip tomorrow, I am not the most likely candidate to have a bit of follow-through and I would hate to drop the ball. That would only make things work. I'm going to go give meds to the baby now. It's the way I "relax."
Tiffany
I have been following Emerson for quite sometime. There is a great website www.carecalendar.org. There all volunteers can see where, when and what need is requested - it is all organized on a calendar. People get to pick the times and dates they are able to help. Then that info is posted on the calendar so the next person will see that date is already taken. It is great! I am happy to set it up. This way there is no question that several people will just be showing up at her door. I do need Erika's info to set it up - address and such. Noelle, if you could email where the volunteers need to go and her immediate needs (meals, errands, time with Emerson). I can set it up. Then I will post the link for everyone. I live in Dallas, Texas. My email is simontiff@att.net.
Chris
Noelle, Maybe since you cant be there, you need to step up and help organize with the email addresses on here. Even seeing who is going from this page doesnt mean its all going to organize on its own so she doesnt have 5 people knocking on her door at the same time. Did you take time to realize we dont even know where she lives? Yes, there has to be some contact from someone. Thanks Katie for jumping in to do this and not sitting back and criticizing. Prayers for Eme and Erika.
Melissa
Noelle, Maybe some of us gave our Email, because we have no idea where Erika lives or how to get there? Relax!
Lisa & Rhyleigh
Asking for help is the strongest thing you have done to date - it only proves how strong and wonderful of a mother you are. Oh how I wish I lived near you however California is a bit far. I would feel honored to share Eme with you for even a moment. It is so great to see people responding that they can help. Please everyone remember not to bother Erika with this. I think if anyone showed up on her doorstep and she already had someone there she could use your help also. Erika maybe look into some little things to help out - Vons.com or other markets can deliver groceries. Look into a fluff and fold laundry services. I can't even begin to imagine what you are going through. I will pray lots that help finds you. Lisa
Candice & Riley Behm (Portland, OR)
Your entry makes my heart ache for you. I am saying many prayers & wishing I lived near by to help out.
katie vanis
For those that have offered to help Eme and Erika...first of all, THANK YOU! I have started to organize a schedule. You may contact me at katie00224@gmail.com and I will put you down for a "shift" so that Erika is not trying to keep track of this. I have helpers tomorrow & Tuesday in addition to Wednesday and Friday eves. Again, THANK YOU!
Thank you, Katie! ... for organizing this.
Ali
I am a pediatric nurse in Omaha and would love to help. I've been following Emerson's journey and have been praying for her. However, I don't have your contact information. My email is alimarie87@gmail.com I know you would like me to contact you but I'm not sure how so I'll just leave my email just in case.
kathryn
sorry - the post should say "both by Convatec", not ny Convatec.
kathryn
Erica, Convatec makes some very good urostomy pouches that connect to a foley bag at night to get rid of gas and to keep the bag empty. SurFit Natura and Active Life are what we use, both ny Convatec. (Their pediatric urostomy pouch has a small outlet that does not drain as well, so we have not had success with it.) Their Durahesive wafers (versus Stomahesive)work best with ileostomy drainage. Convatec will supply you with samples if you ask, or perhaps Eme's wound care nurse can give you some. They are very easy to drain in the daytime, just open the spout. Prayers are with you, Eme, and your family.
eileen
last one for tonight. can someone please let me know what the ages of em's brother's are? I would like to make a christmas box for the family and would like to know thier ages so i can include them as well. please e-mail me at Eileen1220@aol.com this does not have to be from erika, if someone else can answer, please do. Thanks!
Bradley is in the 2nd grade and Collin is in the 5th grade. Hope that helps.
Noelle Krimm (LF)
This is a message to all of you kind, loving people in or near Omaha who said that you are willing to help: Erika sincerely needs your help but she has asked that you simply tell her when you are coming and how long you will stay. Everyone who has offered to help has asked her to call or email and she has already stated that she won't/can't. Please don't ask her to do that. Her hands are way too full. It seems like a call or email would be easy but when you are as strapped as she is, it is not even possible. Why don't you just post the date and time you are coming here on the Guestbook. She'll know where to find it and so will everyone else who wants to make sure they aren't overlapping with someone else. Please don't sit around waiting for her call - just get to her. She needs you!! And a big thank you from all of us who wish we could go to her and we can't.
eileen
does anyone know if the united way has some services they could provide to erika and em and her family?
eileen
my heart is just breaking for you, I have been following your journey and have never written a reply. I wish with all I have that I was nearby to help you and Em. There is no shame in asking for help. I totally understand what you mean about not hvaing to call for help, people need to tell you when they will be there. If there is anything anyone can think of that I could do from California, please suggest away, besides making a monetary contribution, I am at a loss. I am wondering if the make a wish people could be of service to you? just a thought. what about the television station(s) that covered your story when you were trying to get the insurance worked out, I am sure if the people of your area were made aware of your need, someone could start a volunteer drive for you. again, just an idea. i know that disney is doing a voulnteer drive and giving away tickets to theme parks for people who volunteer. I wonder if there is a way that Em could be signed up as a volunteer project? I know my sister is knitting caps for a hospital for her project, seems logical that there is a way to add Em to the list of projects/people needing volunteers.
Mitzi in Maine
Well, from my title you can see I live in Maine. If I was within 10 hours of driving distance to you, I would drive and help you for days on end! It looks like you are getting a great response from this journal and some wonderful people are pitching in! You(or someone) should post a general schedule and people should just fill in when they can come. You are still doing a GREAT job and if you are getting help for yourself, you are getting help for Em. A well rested, refreshed Mom is a happy Mom! :) There is NO way you could possibly care for her alone endlessly. It is not humanly functionable. I just made that word up? My heart breaks for you and I know you are exhausted. Relief is on the way! :)
Joyce J from IL
You should ask for HELP from everybody who live near you and can be free more than one hour and do not need to bring their own kids without your approval and make sure they are registered and licensed nurses and doctors, experiences with the medical attentions. It is best to trust the strangers through pictured drivers licenses before you can let them come in! OK! WE will pray for your strength to be gained that you will be alright through the holidays! Emerson, keep up and stay so strong again! I wish to live closer to you both but too far away from here so I will always pray for both of you! Hugs, and Happy Thanksgiving Day! The Jackson family
Melissa
Erica - I live in Omaha and I have been following Eme's story for quite a while now. I would love to be able to help you. I am available Sunday if you would like some extra help getting ready for your boys. I don't have much in the way of medical experience but am a teacher and a mother of four. Please email me at sneezerb@aol.com
Joan and Kylie
Okay all of our wonderful nurses in Omaha...Emerson and Erika need your help!! Give her a call because she is to overwhelmed to call anyone!! Thank you.
Joan and Kylie
Girl, it is okay!! It is normal!! I wish so much that I could be closer to help you!! I guess all I can do is give you moral support from afar!! I know in my heart help will come your way. There are some great nurses that we have in our transplant family that I know will jump on your pleas. It is okay to ask for help..and when it comes, take time for yourself!!! If mommy is not well, no one is. Take the boys to a movie!! It will be okay!! I promise. I will keep you in my prayers and my heart. Know that we are thinking about you in Louisiana. Hang in there my friend. Love Joan and girls
Jackie H
Erica-I am in Omaha. I am not a nurse, but I am a mom. I have been following your family and Emerson's journey for some time now. I would love to help. I can clean, bring groceries and have some medical experience caring for handicapped and elderly and am familiar w/ the basic care of an ostomy. I work during the day, but my job is not too far from UNMC, so I could run errands or help you some evenings after work. Please call me or email me. j.heywood@cox.net 402-679-0869
samantha richter
sorry Erika i missed type my email its samr_04@hotmail.com this is lizzys mom again plz email me and i will get in touch with you thanks
Marianne
Please email me and tell me what city you are located in Nebraska. I would like to help. lovinglife1957@aol.com
Jules Badger, Sammamish, WA
Erika, It is SOOOOOOOOOOO OK for you to say that this is too much! Spandex and cape are not required in this life. You get to get help. I'm so sorry. This is unfair and unjust and totally expected that you would be as tired as you are. I wish I were closer. Is there any chance some of us can band together to pay for some nursing care for Eme so you can get some rest? Please let us know. You can reach me at julie_badger@yahoo.com. I'd be happy to coordinate the donations. Let us know. Jules
Lori short gut mom from CO
Erika- I have asked some triplet moms I know (several who are nurses) if they can help. I would also like to help when you get back to CO. I can only relate a little to what you are going through (triplets- one with short gut and when he finally came home..gtube and broviac, TPN, 36 doses of meds a day, 3 tests on each of 10 diapers a day++++) but I did have relief at night and someone to help clean, so even though I can't imagine just how exhausted you must be I can relate a little tiny bit and know what it takes support wise to make things do-able.
Samantha Richter
This is Samantha (Elizabeth's mom) i only live a few min away please email me at smar_04@hotmail.com and i would love to help you out. i will contact you back as soon as i hear something. hugs and prayers Sam
Teresa
Hello, To say hang in there is not enough. I hope that youa re contacting the people that have offered to help you. I am too far away to be there, but I have prayers for you and Eme. I hope you are getting some help tonight. Have you expressed these feelings to the hospital staff? Can't they get you some support?
Rachel
Erika, I've been following for a long time now. I wish i was closer to help. But I'm across the country on the East Coast. I will offer my prayers up for help to come. If you need anything else- gift card for groceries, toys, clothes, PLEASE email me and I would be happy to send something like this to you. Much love, Rachel themarinis@hotmail.com
Jenny
I am new to your site, I came here from another site I follow. Keeping you lifted up in my prayers Sincerely Jenny
Stacey
Erika- I've been following Emerson since I read about her on another caringbridge page. I'm a nurse at Creighton and would LOVE to come and help. I have a lot of experience with kids (I used to nanny and worked in the PICU at CUMC for a while). I'm not sure how to contact you other than here but please let me know if I can come by-maybe sometime tomorrow or later this week? My email is StaceyCampbell2@gmail.com. Hang in there! Many people are praying for you, Emerson, and the rest of the family.
Shari
Oh Erika! I hear your despair and real need for help. I have a friend who lives in Omaha. I will call and ask her if she can help you. Her name is Mishel and she is wonderful. In the meantime, try to hang in there! It's OK to ask for help! I am praying for you and Eme.
Athena
hugs Erika! I hope you get some help!
Neva Field
Erika, I'm so glad you decided to book the cruise! The day you posted that you were dreading telling the boys that Disney would be cancelled, Marlena and I were just so sad for them. They SO deserve this! Take care Neva (Lucy's Oma)
Kristen Denzlinger
I have been following your story for awhile. My daughter, Kristabelle, is also a transplant patient at UNMC. She had an isolated small bowel transplant 2 years ago. When she had an ostomy we used a pouch that was actally a urostomy bag. It had a drainage tube and jug that we hooked her up to at night so we didn't have to get up to empty it. Of course there were still times when the bag would leak but it helped. I can't remember the brand but I'm sure one of the wound/ostomy nurses could help. I would be happy to come and help sometime but right now Kristabelle and I are both sick (just discharged yesterday after discovering it was just a cold). When I'm sure that we are totally healthy, maybe I could come by for a couple of hours while Kristabelle is at preschool. My e-mail is kristendenzlinger@hotmail.com We pray for your whole family daily.
Kim Tonnessen
Erika, I've been following your story for some time...where in Nebraska are you? email me to let me know ktonnessen@wi.rr.com
Amanda
Erika, I've been following your story for almost a year now. I heard about you guys from Katie, I worked in the ER at the med center with her. I would love to help you guys! Please email and we could talk more about when I could come, I work nights 3 days a week so my schedule is pretty flexible. My email is a.dethloff@hotmail.com. Thanks, Amanda
Suzanne
Thinking of you, Eme and the rest of your family today and always. I pray that you'll be back in Denver soon.... Much love and blessing to all of you.
Kathy Russell
I just want you to know that we are still praying for continued improvement and good health for Emerson. Hopefully you are both enjoying some quality time at the apartment, and things are on track for being h... for Christmas. Meanwhile I hope you have a wonderful Thanksgiving. Even though this has been a tough year, I'm sure you are thankful for how far Eme has come. God bless you.
Jen G
Erika: I was at my local Hallmark Store and they had the ZhuZhu Hampsters! I bought the yellow and light brown ones for Eme. Please let me know if you've already received these particular ones. Also, how do I get these to you? Hope everything is going well for you at the apartments!
Oh WOW - lucky find!! Let me go through some boxes that recently arrived & I'll let you know :)
Dianne Rios
I was so glad to hear Emerson responded so well to the oral steroids! Clearly, since you have been quiet, Eme is back to her old, spunky self! Enjoy your time away from the hospital!
Tracey Hill Nies
Leaving at the crack of booty for Michigan. I don't get internet service consistently while I'm up there. Just wanted to wish you and your family a wonderful Thanksgiving. I'll be thinking of you all and hoping Eme continues to improve. XOXO Tracey
Patti
Just thinking of you guys. Hope you are doing well. Thoughts & prayers always!
larryjanicetaylr@sbcglobal.net
Im praying that things are at least stable for Emerson, and Mom is getting some much needed rest. May God Bless your family Abundently!
Tracey Hill Nies
Hoping you two are busy back at the apartment! Keeping you in my thoughts.
Lisa & Rhyleigh
Hope all is going good at the apartment. For those who missed it - it looks like people are still looking for the hamster - they got one and it is being sent their way. Still praying lots! Lisa
dolores encinias
we are looking at every store in our area of southeast colorado for the little hamster. no luck so far but am not giving up. you have remained in our prayers since our daughter, Christy Roberts told us the story of your precious daughter..GOD BLESS YOU (MOM,DAD AND FAMILY.)
Valerie
You know Emerson the best! I am glad you went with your gut! I hope this helps Emerson....another diagnosis to treat, but at least it would help put some of the pieces of the puzzle together. Your trip to disenyworld with the boys will be AWESOME! What a blessing it is you were able to arrange it all! You're amazing! Keep up the strong work...I am praying that the Lord will continue to give you the strength that you need to continue on each moment and that he will keep Emerson's body safe! Take care and God Bless!!!
Deanna Bingley
Way to not give up Erika - A mother's intuition is more powerful than anything! Glad Eme is getting back to her usual spunky self :)
Tifanny (Denver)
I meant sticking to your guns... although you DO have to stick to your guys too! :-)
Tifanny (Denver)
So excited to hear you going to take the boys! They need it and you need some special time with them. With the angels surrounding Eme, I'm sure she will be in great care. Keep sticking to your guys Erika. you may not have your Phd, but you know your daughter and you need to continue to listen to your gut. It just might be little angels whispering in your ear! I sure hope Eme has lots of fun with all her Zhu Zhu pets! take care, lots of love and prayers for you, Eme, your husband and the boys.
Mitzi in Maine
I am glad Em is doing better! I hope you get to leave the hospital. It sounds like your trip will be so exciting! RELAX!!! let people wait on you hand and foot! Go to the SPA everyday!!!!!!!!!!!!!!!!!!! cp: AvaAnn
Laurie & Shania
Eme has the best advocate; Mommy!! I'm glad that Eme is doing better! Hopefully now the doctors will know what is the best way to treat Eme. You guys really need a break. A cruise sounds so exciting for all of you! You all deserve it! I know the boys are going to love doing something fun with Mommy & Daddy! Even if I don't post as often as I should, I'm always praying for all of you! Love you guys!
Kim P
Good job advocating for Eme, Erika! You always knew when something wasn't right with her. I hope she continues to improve! Love, Kim
Amy - IL
Great news, mom always knows best. We'll pray for lots of good days out of the hospital.
Annette W
You go, girl! Mothers DO know more than docotors sometimes! You absolutely did the right thing by "going around" your doctor, as is evidenced by Eme's improvement. I am sure he understands...he must appreciate your knowledge and caring. Hope you get back to your apartment...that will be the best medicine for both of you! Prayers always, Annette
Lisa & Rhyleigh
I'm so glad Eme is once again on the mend and super excited you guys are heading back to the apartment! It is so exciting that these issues are being found and hopefully will help her get even closer to once again going home. Keep on those instincts and never feel bad for anything you do for Eme even if it is going over someones head or behind someones back - you have every right! Still lots of prayers! Lisa
BETH
AS HER MOTHER YOU DID THE RIGHT THING FOR YOUR DAUGHTER. YOU KNOW HER BETTER THAN ANY DR. GOD BLESS YOU. KEEPING YOU BOTH IN MY PRAYERS.
ELS
I am so glad to hear Eme is doing better and I knew she used the feeding tube...Lack of sleep and painting the house are catching up with me. =0) I am so glad to hear Eme is doing better today! God and all of us certainly do love her. You are incredible as a mom and listening to your instincts. I always tell my adolescent parents that you know your child best so if something is off please tell the nurses. Hugsssssssssssssssssssssss and angels! Erika Lyn Smith
Sarah in NM
Hi, I just wanted to say that I've been reading for over a year now (never commented) but that I'm so glad that you are starting to get some answers. My daughter has panhypopituitarism and is cortisol and growth hormone deficient, among other things. I'm so glad that you went around the drs. to get Emerson the help she needs, b/c as you well know cortisol deficiency is nothing to mess with. It'll be amazing to see how she does with the growth hormone also!!! You and your family have my prayers!!!
My son has panhypopit too! It looks like it might be a part of the underlying metabolic disease both he & eme have
Lara in Colorado
I don't post to much, but I read your journal everyday. Good for you!!! Mom's do know best and you are your child's best advocate...so glad that she is feeling better! Our prayers are with her with all of you! God Bless! p.s I did a cruise last year....it was a blast! You will have such a good time and I think you made a great decision about doing something with "your boys". Bye Lara in Colorado
Joan and Kylie
Hmmmmmmmmmmmmmmm..we have been there a few times. Mom right, doctor not wanting to listen. Do we know our babies or what? Well, I am glad that things are looking up. We are praying for a Turkey Day with both girls out..no hospitals!! If you get a chance, send me an e-mail with address once again. Kylie helped clean out my purse. We have a few packages for Eme and no address to send them to. Take care. Love Joan and Kylie
Tracey Hill Nies
SOOOO glad Eme is doing better AND that you'll be back at the apartment! Enjoy the time! Good for you for standing your ground. If you don't go in to the medical field after all this, perhaps the law?!
Danielle
Erika - Mommy instincts are important. You are such an amazing advocate for Emerson. Its hard to imagine they know Emerson nearly as well as you do. I'm soooo glad that they listened to you and hope Emerson continues to improve. You are both in my thoughts as always....positive healing energy heading flowing your way.
Patti
Good for you! I love it when you're right and I'm glad they finally did something. Happy to hear Eme is much more alert and responsive today. Hang in there; you always do! Always in our thoughts and prayers!
Jenn Y.
So glad to hear that Eme is feeling better and that you are optimistic about her improving with her latest diagnosis. Who knows, maybe this was the missing piece of the puzzle. Eme is strong and a fighter and keeps showing everyone that she is here to stay!! God Bless.
David T
Erika - good news and more answered prayers! I want you to know that every time you post that they have found something else to add the Eme's list of problems, Carina and I rejoice that the doctors now know a bit more about Eme and what she needs. We continue to pray for Eme, you and her medical team that as each new 'issue' arises you will have the strength to fight for Eme, the medical team will have wisdom to use this new information, and that Eme will grow stronger and stronger. David
Trish Adams
This is SO tuff. All I can say is you did the right thing. I know you already know this, but maybe hearing it from other transplant mom's who have the same "team" might reassure you even more? At the end of every minute, every hour, every day remember that YOU are her mom and YOU deserve to be included in the treatment decisions. If you still aren't on the same page then I would request a care conference(what coordinator is on this week? You'll have better luck with some than others in getting assistance with this. If your on the floor ask Cindy and share with her your concerns). If you have questions, concerns, anything at all about the treatment for this disorder and how it all connects with transplant issues then ask them to sit down and talk it out with you. They know you well enough by now to KNOW that you won't sit idly by and wait for something catastrophic to happen to Eme. Trust me, they KNOW what you did was what you felt was in her best interest. I'm proud of you. Keep stepping on toes until someone says "OUCH" we better sit down with her make some treatment decisions. Thinking of you today. Trish
Cindy in Colorado
What a nightmare!! I realize it's a balancing act but she doesn't look right it should raise a red flag! I agree that stepping on toes is not important right now. You are doing your job!!! Stay strong, we're with you
Heather@ boy, girl, and a pug
Ugh! When will the drama stop! I can't even imagine how you must feel. This is awful for all of you and I am so sorry you have to go through this. I have been reading your blog, well, forever, it seems! And I pray for you every night. I talk about Eme to people like I know her! I am so proud of you and your family for all you have been through and continue to go through. My health journey doesn't compare to Eme's but feel free to stop by my blog and check it out. www.thesnydernews.blogspot.com keep your chin up honey, and know that there are people out here praying for you all! Love-Heather PS I think I have another Zhu Zhu for you!
Trisha Kurtzhalz- Helen's Grandmother
YOU ALWAYS KNOW BEST WHEN IT COMES TO EMERSON!! And you did absolutely the right thing by ignoring politics and trying to get some answers for your daughter. I'm just so sorry that you were put into that position. Praying big time that the oral steriods start Emerson back on the right track. Discharge??? Are they crazy??? Sending love and prayers from Vermont.
ELS
Erika- Is Eme alert enough to take PO meds? Sounds like from your post she will not wake up long enough to even sit up and swallow PO medication... If she is too groggy that is another reason to push for the IV steroids... Angels all around you and Eme. Erika Lyn Smith ErikaLynSmith.com
very true - she actually doesn't take anything by mouth, though, everything is pushed through her feeding tube
Sara
Erika- Hang in there! It is very clear where Eme gets her "fight" from. Put on your armor and continue the battle. Lots of prayers heading your way.
kv
You (and you alone) know Eme best - and you are her best advocate! You have been right in the past and need to follow your gut! If something doesn't 'feel' roght to you - look for horses, not zebras..step on all of the toes you need to until you get to the bottom of things! I will stop by on my way in tomorrow night, let me know if you need anything sooner!
Amy H.
ERIKA!! Don't for one second even consider that you weren't PC or that you stepped on the team's toes. I doubt that you would have felt pressed to the point of calling the endo yourself if the team had communicated with you in the best way. They can't simply make decisions - and be the final word - especially if they aren't explaining enough or answering your questions regarding her hormone levels. You should be given choices with all the options/effects laid out. If more hormone increases her immunosuppression - but not enough hormone means an unresponsive Eme - then YOU should have the choice. I'm disappointed in your team and hope tomorrow they take the time to give you the info and choices you need - not just make a choice you're not happy with, while you have Eme in a position that clearly is not good for discharge as they write her up to go home. You have been doing this for year upon year now. I sure hope you are able to have your time in Disney with the boys and that Eme has another fast rebound. Sending strength and smiles. Try to hang in there and keep fighting mama! You are doing an amazing job.
K
Let's hope she doesn't have an infection TOO because with a level like that she won't be up for fighting! If I recall her infections are far to 'WILD' to have contained themselves this long. I think YOU would have known by now but then again, this is Emerson. Regardless, you're right, her level is scary low. Hopefully, everyone will be on the same page soon :). Hang in there. I know it's been a while since you've had to pull out the big guns and as you said, it is far more stressful having to prove yourself.... Love you guys, Krystena
Noelle Krimm (LF)
I'm so sorry! I'm frustrated for you!! I know that feeling so well. More than a week after transplant, Jack suddenly became completely unresponsive. Since his liver numbers looked good, his team kept saying "He's great. We see the light at the end of the tunnel now. Don't you?" And I finally was like "Please come all the way in to his bed and tell me what you see. This is not better! This is worse!!" They finally got the point and acted on his behalf but when I read your posts, I imagine I am right back there in that moment only they are refusing to give him what he needs and I just want to scream. I know that you know what's best. Hang in there and keep fighting for her, Mama! In the end, it was an overnight attending who had been on vacation and had never seen Jack before who figured out what was wrong and fixed it quickly. Maybe tomorrow will bring a new set of eyes or a new perspective. And hopefully the oral steroids will bump the numbers up a bit. Fingers crossed.
Lindy
Still here, still praying for your incredible little EMe and your family. Keep on, keepin on... thank you so much for keeping us up to date. We will keep you in ours prayers continuosly.
Anne Dennon
I'm with you Erika. Don't back off from political policy or be afraid to ruffle feathers. I understand that leaves you in a vulnerable position but "Mother's instinct" rules and the doctors are not with her beyond making decisions. Stand strong and know many are behind you. Prayers continue. Anne P.S. Do you need a second hospital's opinion? Seattle Childrens is fabulous and I understand it would require an incredible amount of background \ info but never too much for Eme.
Tracey Hill Nies
You know Eme better than anyone, Erika. Keep fighting! I hope she's feeling better. I hope knowing she has Addison's will help her toward a more smooth recovery. At least you are familiar with it. Thinking of you! T
Lisa & Rhyleigh
I hope you are able to get more answers about the recent discovery of Eme's Addison's. Your right about being frustrated about changing things before you know what should be done. I am so glad to hear about the cruise - I was going to warn you about the passport issue - I see below you said they require only id's & birth certificates, that is good. I know some cruises require passports now which can take forever to get. I am sure the boys were thrilled and can't wait for that time with you. Eme will most likely be ultra-spoiled while Mommy is away so I know there is no worrying about her. Lots of prayers that they will figure out how to get Eme bouncing off the walls again and yet get her new-found Addisons under control as well. Lisa
Cinda Nethercott
Erika, you have good instincts! Eme has a heck of an advocate in her Momma! Thinking of you both and praying as always (praying extra hard for those doctors)!
Jen G
Erika: Glad to hear you decided to take the big step and enjoy some R&R for yourself. I know your thoughts will be on Eme, I just hope you find some peace that only a cruise (with awesome food & deserts) can provide! I'm sure all your boys will love and cherish your company, even though they will be sharing you with your thoughts of Eme. On the medical front, sorry you have to, yet again, learn more medical terms and make even more decisions. For that, I pray for peace and strength to fight thru this new developement! Good luck and my prayers will be you now and always!
Joan and Kylie
Hang in there!! We are praying for Eme!! Stand your ground. I know occasionally I would have to with Dr. B. When is Dr. L back on?
Anne Dennon
Thank you for updating. I'll get right back into "heavy duty prayer mode".
Joan and Kylie
I am so sorry for yet something else. I will also be calling Omaha tomorrow. Last night Kylie started vomiting, stooling and no energy. She has had no energy. I pray that the doc's find some treatment for Eme that will start to bring everything together. I understand the frustrations. Hang in there. We love ya. Joan and Kylie
Cheryl from Oregon
To the "MOM OF THE YEAR" candidate: Dear Erika, this is my first time signing your guest book, however I've followed your unbelievable journey for nearly a year (a prayer request for Emerson was posted on a friends daughter's COTA site). I check in daily and find your journal entries truly inspiring and uplifting...even when the news is unsettling. The biggest medical challenge I've faced with my two sons is the flu, so I can't even begin to fathom the emotional toll having a child with extreme medical concerns would be like...I could only hope that if that time ever comes for me, that I am one-tenth the woman you are in juggling all that is necessary...you truly are amazing! Anyways, I just wanted to share that John F. Kennedy was an "Addisonian", as was his sister Eunice. Helen Reddy also has Addison's, so Eme's chances of being president, or a famous singer, aren't tarnished by this new development. With her awe-inspiring family support, and her extraordinary vitality, either scenario could be in her future! Hoping tomorrow treats you gently, Cheryl
Wow... I'd say Eme's in good company :) Thanks so much for posting!
Joyce J from IL
Below the paragraph, I had to use __ because this one was not allowed due to bad word what it says so you will know what I mean and it should say as on __ is EX.
Thanks so much for all the great information Joyce!!
Joyce J from IL
You may want to discuss with the doctors about this one! Treatment Overview Addison's disease develops when the adrenal glands, located above the kidneys, are not able to produce enough of the hormones cortisol and aldosterone. Treatment is usually lifelong. After proper treatment is started, most people with Addison's disease can lead healthy lives. Treatment includes: * Medicines to replace the hormones cortisol and aldosterone. Many doctors use a short-acting medicine called hydrocortisone, given 2 or 3 times a day. In some people, long-acting medicines such as prednisone, methylprednisolone, or dexamethasone can be used. You may also need a medicine that can function like aldosterone (usually fludrocortisone). Hydrocortisone is used because it can function like both of these hormones, although some people still need to take additional fludrocortisone. You will need a higher dose of medicine during childbirth; when you have an injury, surgery, or a serious infection; or during severe stress, such as the death of a loved one. * Increasing salt in the diet. Because people with adrenal failure tend to lose sodium, you will need extra salt (sodium chloride) in your diet, especially during hot and humid weather and vigorous exercise. But because people with Addison's disease retain potassium, you need to avoid salt substitutes, which usually contain potassium chloride salts. * Regular medical checkups to monitor symptoms and blood pressure. Your doctor also may need to do lab tests to evaluate and monitor blood levels of potassium and sodium. During a stressful event, such as a severe infection, trauma, surgery, childbirth, dehydration, or an emotional event such as the death of a loved one, you could develop an adrenal crisis. Your body is not able to produce enough cortisol for the stressful condition. If an adrenal crisis is not treated, you may die from shock caused by a serious drop in blood pressure. You would need treatment in the hospital. Recent small studies suggest that women with Addison's disease may benefit from taking a hormone replacement called dehydroepiandrosterone (DHEA). Some women who take this medicine every day may experience a greater sense of well-being and improvement in depression, anxiety, s__uality, and sensitivity to insulin.3, 4 If you are considering DHEA, talk to your doctor.
Joyce J from IL
Treatments: Home Treatment Addison's disease develops when the adrenal glands, located above the kidneys, are not able to produce enough of the hormones cortisol and aldosterone. Home treatment is very important. If you have Addison's disease: * Take your medicine daily as recommended. Medicine should be taken at the same times of day when your body would normally need the hormones (usually more in the morning and less in the evening). Let your doctor know how you are doing. For example, if your face is puffy or if you are gaining weight or bruising more easily or extensively than usual, the amount of your medicine may be too high. If you are still fatigued, have no appetite, or are feeling generally unwell, the amount of your medicine may be too low. * Don't restrict salt in your diet. Your body needs a certain amount of salt. With Addison's disease, your body may lose too much salt. You may need to add extra salt to your food during hot and humid weather or when you are exercising and sweating. * Seek medical help in an emergency. If you have symptoms of adrenal crisis, take your emergency medicine (such as dexamethasone) as directed and seek medical help immediately. An adrenal crisis is caused by a stressful event, such as a severe infection, trauma, surgery, or dehydration. Your body is not able to produce enough cortisol for the stressful condition. If this is not treated, you may die from shock caused by a serious drop in blood pressure. Have an injection of emergency medicine ready at your home, work or school, and in the car. Know when and how to give the medicine. Have instructions written out, and teach someone else how to give you the medicine in case you can't give it to yourself. Replace unused syringes of emergency medicine each year or if the solution begins to look cloudy or colored. * Carry a medical identification card or bracelet (such as a medical alert bracelet) that states that you have Addison's disease. This information helps medical personnel decide whether to give you a cortisol shot if you are unconscious, severely injured, or unable to answer questions. * Monitor your weight regularly, especially if your appetite has been poor or you have been vomiting. Weigh yourself at the same time of day and wearing the same amount of clothing. Ask when your doctor wants to be notified about weight loss or frequent vomiting. * Monitor your blood pressure. High blood pressure and swelling may indicate that your medicine needs to be adjusted. Also, if you notice that you become lightheaded when you first get up in the morning, your blood pressure may be low. Sit on the edge of your bed for a while before standing. Let your doctor know if this problem becomes worse. In addition, you need to be prepared for and deal with minor illness or stress. During illness or stress, you may need to: * Increase your medicine dosage. Talk with your doctor about when and how much you should increase your medicine dosage during a minor illness or time of stress. Have clear instructions written out for which medicine should be increased and how much you should increase it. * Know when to contact your doctor if you have either stress or a minor infection that won't go away. If you notice signs of a severe infection, such as high fever, frequent cough, or burning with urination, call right away. * Contact your doctor right away if you are unable to take your cortisol medicine because of nausea or vomiting, or if you have ongoing diarrhea.
Joyce J from IL
Erika, do not listen to ANON and ANON, you better shut up and stay off the site if you want to insult Erika. Then you better stop! Never hurt or bad words to my friends, Erika and Emerson.
Joyce J from IL
I read this one that is very simple to show what it does or doesn't to see if Emerson has or doesn't have what difference with the doctors opinions or guesses?? READ below, please! Symptoms Addison's disease develops when the adrenal glands, located above the kidneys, are not able to produce enough of the hormones cortisol and aldosterone. In most cases, the adrenal glands fail slowly and symptoms begin gradually. But symptoms may appear rapidly if the adrenal glands are destroyed suddenly, such as from trauma or severe bleeding (hemorrhage). The most obvious and common symptoms of Addison's disease include: * Fatigue and muscle weakness that gradually get worse over time. * Weight loss. Profound weight loss is a common symptom. * Loss of appetite. Other symptoms include: * Darkening of the skin, or hyperpigmentation. This occurs especially: o Over new scars. o In skin folds. o On the lips and tissue lining the mouth and nose. o Over joints such as the elbows, knees, knuckles, and toes. o In the creases of the palms. o On the nipples and surrounding areas (areola). * Lightheadedness or fainting when getting up from a sitting or lying position. This is called orthostatic hypotension. * Nausea, vomiting, diarrhea, and belly pain. * A craving for salty foods. * Shakiness. People with Addison's disease sometimes have low blood sugar. * Difficulty concentrating, increased irritability, and depression. Because symptoms develop slowly, they often are not obvious until an adrenal crisis (Addisonian crisis) occurs. An adrenal crisis is caused by a stressful event, such as a severe infection, trauma, surgery, or dehydration. The body is not able to produce enough cortisol to cope with stress. If an adrenal crisis is not treated, you may die from shock caused by a serious drop in blood pressure. Symptoms of an adrenal crisis include: * Severe vomiting and diarrhea that lead to a dangerous loss of body fluids (dehydration). * Extreme weakness, lightheadedness, or feeling that you are going to pass out. * Sudden pain in the belly, lower back, and legs. * Abnormal behavior, such as restlessness, confusion, or feeling fearful. * Changes in level of consciousness, such as having difficulty staying awake, or a total loss of consciousness. * High fever. * Pale face and blue lips and earlobes. A wide range of illnesses—many of them not serious—can have symptoms similar to those of Addison's disease, although they are usually not as severe. Other conditions with similar symptoms range from diarrhea and other gastrointestinal problems to more serious illnesses such as hepatitis or cancer.
Erin Koesters
anon- shut up and stay off of this site! you have no idea and make me sick! We love you Erika and Emerson and do what YOU want to do out of your unselfishness as a super mother!
Doris T
I truly hope you ignore anon (who was not brave enough to post their real name) The rest of us know how you constantly are thinking of Eme and your family's best interests. No one could possibly do a better job than you have, Erika. Sending prayers to you.
Amy - IL
I'll be praying for wisdom for the doctors and that they will listen to you, mother's intuition is so often more accurate than medical knowledge.
Alison Stanley
I can hear in your voice the frustration. Fight on sister, fight for righteousness, fight for your daughter, may the doctors listen. Right now, I am going to pray for peace for you and for wisdom for the doctors... Come Holy Spirit. Come Fire of Love. Holy Paraclete, third Person of the Divine, be now at the bedside of Emerson and fill the hearts of her family members with Your peace. Her mother is anxious and needs Your Divine assistance. Along with peace, bring enlightenment to the doctors. Help them to see what is best for Emerson...what will restore her energy and fighting spirit (she inherited from her mother). Light within her that spark that so defines her. Sacred Heart of Jesus, hear our prayer. Amen.
Annette W
I am so happy that you, the boys, and Jim will be doing something fun soon! You need that soooo desparately. What a perfect idea a cruise is...there will be so much for the boys to do! And you will get some nice sunshine and some rest! (and lots of good food!) I hope the doctors listen to your ideas about the genetist. You are so knowledgeable...and your instincts are always right-on! I am daily sayng prayers for you and Eme...you are so special.... Annette
Jean Griesan
Erika! You go girl! I'm SO proud of you for booking the cruise with your boys. You and the boys need some time to do "normal," even if it's just for a few days. Above all, you and Jim need some time together. And, I'm proud of you for staying on top of Eme and her condition. You as a mom know your girl better than anyone. Don't take "no" for an answer when you know something's not right. Please know that we're all behind you, rooting you on in your fight. Go get 'em! Hugs, Jean
Heather
Ericka, from reading recent posts I saw you guys are planning a cruise, please don't forget you need to get passport cards for all of you if you don't have passports. Second, I saw you were looking for something for Eme, a hamster. I will check around here if you haven't found one yet. And third, I will keep you guys in our prayers in hopes that things will get better and maybe sometime in the future we can get our girls together to play. Happy Holidays and remember to breathe.
The cruise ship co said we only need driver's licenses & birth certificates :) thanks - I was concerned abt that too!
Charlotte
Erika, the news about your planned cruise with your sons and husband was really heartwarming...good for you! They need time with you and you with them...I am so happy for you. Your dearly loved little Eme will be fine and well cared for...she will no doubt have a ton of attention while you are gone...not to mention all the prayers she will have from us. You are absolutely doing the right thing...especially for your sons!
Lori Hollingsworth
wonderful news about the cruise......YOU ALL deserve it SOOOO MUCH! Will pray that you can really enjoy it and that Eme "cooperates." :) Thanking God for providing you with this wonderful friend/nurse that you feel so comfortable with. Also, praying for this new diagnosis! (when God closes a door.....He opens a window!)
Amy - IL
Sorry to hear about one more thing for Eme but like you said maybe getting this under control will bring some more quality days for all of you. Yay for the cruise, sounds wonderful!
Cindy in Colorado
Sorry to hear about something new with Eme but maybe this will bring some answers! I'm so glad you are taking the boys and going. My heart was just breaking for them. I wanted to scoop them up and take them myself! Eme will be just fine and you need the break. Enjoy your family!!!
Lori Marquez
Hi Erika, I continue to pray for Eme every day, She is in my thoughts every day. I am so glad that she can venture out of her room. She must have had lots of fun with the vomunteers coming in to see her. It sounds like Eme and the volunteers brightened each others day. If there is anything special that Eme would like for Christmas, just let me know. I am so glad the boys are excited about the cruise! They deserve it! You guys need some time together! God Bless, Lori
Dianne Rios
I'm happy to hear you and the boys will be getting some quality time away! Good for ALL of you! And though it's not good news to hear about the Addison's disease, I too hope that this is a piece in the puzzle that will help her get home.
Kathy Russell
I'm so glad you decided to take a trip with your "boys"! It is much deserved by all of you and I hope you have a wonderful time. Our prayers continue for Emerson. Hopefully with this new diagnosis they will be able to figure out what to do for her to keep her healthy. God bless all of you.
Deanna Bingley
So happy to hear that you get to spend some time with the "boys". Enjoy your trip! Can't wait to see pictures.
sue frey
My grandaughter had a liver transplant at the age of 6 months and now needs another at the age of 6 years. Just wanted you to know so you would know I can relate. Just wonder why you chose the cruise instead of 4 days at a Disney Resort. Eme would never know and guess what we have been there 2 times since Molly's Make a Wish Trip. You can never see it all. I would be so afraid that you all or one of you would get sea sick and the whole thing would be ruined. Just a thought - But nothing is Disney especially at Christmas time. You can't believe the beauty and the fantasy. Go on line and just look at it.. We have 3 boys plus our Molly. They all deserved it as much as her for the sacrifices they have made. The view from Grandmas eyes. Sue
We're boaters, so sea sickness isn't a concern. There are lots of reasons why we chose a cruise - mostly we got a GREAT deal!
Tracey Hill Nies
YEAH! A trip for all of you. What a wonderful present for each of you! I am so happy for you I could cry!
Laura
Erika - It seems like our girls have so much in common. My daughter had a lung transplant and a few years later we got news she has ADDISON! She has daily steroid treatment and when she crashes she crashes HARD! My daughter as well wants the ZhuZhu hamster but of course can not be found! And she only wants Yellow! She calls them "zoom zoom hamsters" If you need to talk about addisons let me know. I am here but not on line often. Not to scare you, but next to the staroid treatment you may also look for potassion issues to come as well. My daughter has huge issues with this as well now. Sense the large doses of steroids have been started. he steroids take away the potassium in the body. Lots of prayers and good thoughts.
ELS
Wow! Erika you continue to inspire me with your incredible forward thinking. Good for you and the boys, and we all know Eme will have a blast with a her friend while you are away. Happy Thanksgiving early! You and your family are a blessing to my life. Erika Lyn Smith
Anne Dennon
Way to go Erika!!! ... proud of you to take this huge step forward. The trip will do so much good for all of you ... probably EVEN Eme. Keeping you all in my heart and prayers. With love, Anne
Amy - IL
How fun to see everyone working to send some cheer to Emerson. What about the boys? Any wish list items you won't have time to search out?
Tracey Hill Nies
I have to laugh because I hadn't heard of this toy until your post. I was at a toy store yesterday and this woman was wheeling out a cart with toys to be shelved. I looked and there were a bunch of hamsters! I stopped her and asked if they were THE hamsters (of course I would buy one for Eme and one for each of my kids). She told me no and I was so sad! Sad even though I don't know what I'm missing! I hope Eme gets her Zhu Zhu and that she's feeling better!
Jackie, LF, mom to Trey
I have a yellow or grey hamster available. Which one do you need or prefer? I haven't sent it yet. I was hoping to make it to Omaha today to drop it off at the hospital but not enough time between school drop offs and pick ups. Possibly tomorrow or I will put it in the mail. Does Emerson have the hamster ball coming yet?
grey would be great & no, I don't think there's a ball coming :)
sherri
toy rus has a grey zhu zhu hamster online
Deanna Bingley
My message below says I want to know I brightened my day - huge typo of course - I meant to say brightened the kids day! Sorry!
Michelle
Hi, I have been following u along and my daughter who is 5 yrs old and asked what can we send Eme something ? I told her that we will ask u(mommy) first and send me the address so Eme will have a gift but need some hints or ideas of what she would like to have.
Deanna Bingley
One more thing - Can you send me an address to send something? Every year I find a cause to support and this year Emerson has captured my heart completely. BUT.. so have your boys. I have plenty of ideas for Emerson, but can you please send ideas for Collin and Bradley. Please don't say they don't need anything - I really want to know that I brightened my day. My 3 children ask every day how Emerson is and they want to send something too. They were on a mission to find the Zhu Zhu hamsters!
Deanna Bingley
Erika - Are Hanna clothes really certified latex free? I never knew that. That's all my daughter wears! What size is she in, 80-90? I noticed Eme wearing the same dress my daughter has and thought, Erika's got great taste!
Yep! She wears a 90 :)
Patti
Those things are awesome! I'm so glad you are getting some. Yes, I'd love some other ideas for Eme (but please send them to my other email address if you still have it) so you don't get a million of the same thing!!!Thanks, Erika!!!!
Laura
Since the seller paid for Num Num, I decided to order Eme Zhu Zhu Pets Go Go Hamster-Wheel & Tunnels so she can have some fun with her hamsters. Just letting you know so we don't get double orders. :)
That's great!! I think the accessories are getting scarce too!
Barbara
Erika- I am only sending one! (Pipsqueak- yellow)I just found one on ebay for well under $40 (I forgot how addicting ebay can be- glad I found one Buy It Now- or I might have stayed up all night bidding!) And thanks for the other idea of things Emerson might need... Hannah Anderson clothes. Thanks for sharing Emerson with all of us! Peace and Prayers to you all!
Leslie Irons
I wish I could help with this one, but my daughter wants them so bad too. LOL... They are def. the hott item this year. I have been reading the other post and I'm so happy that Emerson will be getting one or two! :) She's very deserving. It's great she will have something that makes her smile. Post pics when she gets them. cotaforgilliani.com
Lisa & Rhyleigh
How wonderful! Emerson is very deserving of a Zhu Zhu as she has been such a good girl this year! I am sure she will be thrilled. Erika -Please post pictures for us to ohhh and ahhh over when she receives it. Will this be a gift that waits until Christmas or an early gift??? Lisa
Well, I was thinking Christmas. With such a great response, though, we'll see... Santa may just visit early this year :)
Laura
I want to thank the seller who I won the hamster from on ebay. S/he agreed to donate the hamster to Emerson and has shipped it today. I do not know this individual's name but they deserve a big thankyou!
Oh Laura, how sweet! WOW - a huge thanks to you & to the seller. Thank you so much!!
Laura
Also wanted to add that I don't want reimbursement of any kind. I always do a good deed at Christmas. This one will be in memory of my grandmother who worked as a nurse all her life since I cannot give my grandmother a present in heaven.
Laura
Got a hold of a Zhu Zhu from ebay. It's on route to you. Just wanted to post so multiple people wouldn't order one. Praying for Eme. :)
Barbara
While it is insane for You to spend $40 on this toy- I think any of us would be more than willing to spend $40 on something that we know would make Emerson smile! Even though you do not know me personally, I often find myself trying to come up with creative ideas for Eme (I have 3 3 year old niece and nephews) or wishing I still traveled to Omaha... anything. So $40 is not much to let us feel like we are helping! Now you'll just may need to figure out what to do with multitudes of zhu zhu hamsters...
No, No, No Barbara - that's crazy!! Thanks though! If you really want ideas, I'll think of something else :)
Jackie, LF, mom to Trey
I have an extra hamster. I was at Target the other day and they had a whole bunch. I already have 4 for my children and a niece but my son started asking for a different color so I picked up another one. It is Emersons if you still need it. It is great to read that Emerson is playing and feeling better.
If you really don't need it, then that would be great - I'd love to have 2 or 3 for her! Thank you so much Jackie!!
T
Try Hallmark.
joan
I wish I knew yesterday. I had one in my hand and I wondered what the big deal was. Now I know. I will try to go and see if Target still has it. IF so, you got it. Love joan and Kylie
Karen in Canada
Hmmm! I haven't heard of those little zhu zhu guys before, but I will definitely keep my eye out for you!! Maybe Ill have some luck here in Canada! Isn't it the funniest, when they little ones find something they just can't get enough of! :) Sending peace, love and hugs your way as always!
Lisa & Rhyleigh
I haven't seen the commerical but I have heard of them. I looked it up and I was thinking really? These have been out for years and years now. They must be marketing them differently. They are the little hamsters that roll in the ball right? I have even seen them in pet stores for cats to chase around but again this was some time ago - funny what becomes the in thing suddenly. Was Eme playing with one in a ball or one by itself? Although I was just reading that this new version makes farm animal noises - thats weird a hamster that moos, and crows??? lol kids are funny - I wish I had the million dollar idea for the next big thing in kids toys. =) us crazy parents will do anything for our munchkins! I will for sure keep my eye out - I live minutes from a 24 hour Walmart and often find myself there late at night when they are stocking shelves, maybe I will get lucky! =) Lisa
Melanie Oliver
I just gave one (Zhu-zhu pet) to Sara two weeks ago for her birthday - got it on Amazon.com (because they are vitually impossible to get anywhere else) and paid the $20. It was well worth it. But you are right....I just went back to the same place I got hers and the price has doubled...in just two weeks. That's crazy! I will check Target and WalMart every time I am there and grab them for you when/if I see one.
Jenn Y.
You got it!!
Tifanny (Denver)
Also, regarding the Zhu Zhu pets. My son (3) and niece (4) exclaim in excitement "I want that!" whenever they see the commercials. Lovely manners I might add! LOL. I've been on the search for them and have found that you can sign up at Target.com to be notified when some become available. I've signed up for the 3 pack as well as the individual ones. keep us posted on whether you get your hands on one. I'll be happy to send one out if I can get it. (Hoping for the 3 pack!)
Tifanny (Denver)
Praying for your strength, praying for Eme's health, praying for the boys in understanding, and praying for your husband being away from you. There are angels all around your family, and we are all here with lots of love and prayers.
amy patterson
thanking of you two ladies and praying always!!!
Joyce J from IL
Good Idea so you can take big break for a while so you can catch up lots of works and problems to be straightened out! I am sure Emerson has very good times having nice voluteers play with her. ARe they the registered nurses or just out of hospital voluteers working with the patients what they need to have them help them? I know you have been had some hurt about few problems but we pray you keep your strength gained again and calmed down for a while! Remember we support you 100%.
Jules Badger, Sammamish, WA
Erika, I'm so sorry that you're struggling so much. I know you really wanted to be home for Thanksgiving, I'm so sorry that the option is off the table. I will be sending you lots of prayers for patience and joy in these coming weeks. In Peace and Love, Jules
Tricia Best
Erika, I just wish all of you could catch a break. I'm so sorry to hear about Thanksgiving, the Disney trip, & I hope that won’t be the case for Christmas. I will be praying for all of you. Most importantly I hope Eme is okay & does a lot better. I apologize that I haven't posted in the guestbook in a really long time. I have had some personal challenges of my own going on including getting the swine flu (yep, I’m one of the unlucky ones that got it) & being out really sick for awhile. I have tried to keep up on the updates w/ all of you. I know this is really, really late but I wanted to wish Eme a Happy Belated Birthday from both Jon & I. My wish is that all of you have a wonderful Holiday Season this year no matter where that might be. I also wish for Eme to get better & stay healthy & you strong (although 3 years is along time for being strong; you inspire me). Sending lots & lots of warm wishes & love your way. Love, Tricia :o)
Jean Griesan
Hi Erika! You've been through a lot in the past couple of weeks, and for that matter, for the past three years. Please don't feel guilty for getting a teensy bit of time for yourself - a little time to breathe, to enjoy some coffee, and maybe get some sunshine on your body. We all have our limits, and honestly, what you've done amaze all of us. Please allow those volunteers to enjoy the amazing and sweet Emerson. You will bless them and they will go home talking about her and you, and it will give Emerson some new friends to enjoy! So, savor those peaceful moments, and be guilt-free about this. With love, Jean
Maria Connely
Erika, I saw a commercial this morning, and thought it might be a gift Eme would appreciate from home. Hallmark stores are carrying Chrismtmas books that you can record your voice as narrating. I thought she may appreciate hearing the voice of her brothers and Dad, reading her a story, in case you find yourself in the hospital this Christmas. Glad to hear your are having visitors!
great idea - i'll look into it!
Tracey Hill Nies
Yeah for volunteers (and breaks for you)! Once word spreads that they can visit sweet Emerson, there will be a waiting list!
Deanna Bingley - West Bloomfield, MI
Erika, You give me (and I'm sure so many others) such strength. You are a daily reminder of what is good in this world, a valiant fighter and devoted mother to ALL three of her children. You have had to make some tough choices, and while the boys feel disappointment today, I have a feeling that deep down, they are proud of you and know that if they were in Eme's shoes, Mom would be right there fighting for them! I found Eme's story through a friend's link on facebook and have prayed for her ever since. I wish for Disney for the whole family, but more than that, I wish for a long-term reunion back in Colorado for the whole family. Stay Strong - You have touched so many lives and are an inspiration to more than you know!
Joan and Kylie
I am glad to hear she is perking up a bit. I am so sorry about Disney..not cxled, just delayed. I know that won't help the boys at all. We will pray for that Christmas at home. I actually spoke to our docs that way today. We are dealing with a few small issues with Kylie girl. That darn FK. We are trying to get stable levels but no such luck. She has been a bear for a few days. Her dose is too high. Well, let me know if we can get you anything (from La) that is. Miss ya. Kylie has to check on Emerson everyday. It is so cute. I need to send you a copy of the pictures of have of them. Bye for now.
Stacey
That is GREAT about the volunteers. I volunteered at Children's Hospital in Dallas when I was in high school and STILL have wonderful memories of helping kids! I'm sure the volunteers are enjoying it as much as you are!
Karen
Hello again.....E's team is at HSC in Toronto Ontario, they are very familiar with the goings ons at the transplant centres across NA, a lot of information was shared at the conference in Italy in September regarding small bowel transplantation...Emerson, Ethan and all the kids who are part of this small, unique and special group have made a huge impact with so many They are all amzing with amazing families behind them all..... Karen & Ethan
Mitzi in Maine
I hope you can get a weekend escape. I could picture Em dodging it for the elevators..poor thing! I pray something works out for that doll of yours. cp: AvaAnn
Anonymous
It's me again!! Eme's sleeping & I'm savoring the peace & quiet :). I wanted to write once more to answer a question I've been asked frequently - "why doesn't your family move to Nebraska?". Without question that would be the obvious solution to our separation. There are two main reasons why we haven't done that, though. First, my husband is a business owner in Colorado. We rely on his income immensly right now to get us through this difficult time - it allows me to focus solely on emerson & not have to worry about paying the mortgage or putting food on the table. Further, our retirement is tied up in the business which is built, in many ways, on relationships he's formed in Colorado. Could we sacrifice all that to be together? Yes, but it would be a big sacrifice. The second & probably bigger reason the family hasn't moved is simply because we never saw this coming. We always thought we'd be home in a "couple months" & the separation always seemed doable (especially for the sake of keeping the boys in school with their friends & staying in a community that has supported us so much) for a "couple months". The day eme was admitted I could never, in my wildest imagination, have guessed the path ahead would take us away from home for 2 full years. If we'd known that in the beginning, indeed we may have made different decisions. Good thing I didn't know, though, because that would have made this journey all the more difficult - it is somehow more manageable in "couple month" increments! So... here we are again - hoping to be home next month. Hopefully this time it will actually happen!! I hope that helps to answer the question!
Joyce J from IL
Yippie, go to Disney World! I want to see all of you go there for Emerson's exciting event as a family get together and it might help her off her mind! I expect that you have your vehicle back, already! I hope so! For Elevators that Emerson really wants to go home, maybe she wants her real home in Colorado what she saw and had good memories that she did live there before and recently again and maybe wants to spend time with her Dad and brothers whom she misses so much, I believe, maybe Bella?? Why can't the nurse travel with you all taking care of Emerson's necessary medicals in Disney World vacation so the nurse could check on other patients, too? Yes You are right you can test on all team and doctors to find out if something is funny or different you could figure out but 3 year stay in the hospital is most longest one for Emerson and YOU. Sounds somewhat funny and different to me with other patients who had almost same problems as Emerson! HUH I really am interested in more studies on each sick patients I read all journals and other comments, also! It made me wonder why Emerson can not leave the hospital enough sooner. If Emerson is on high risk list, I could understand but look at her wanting to leave the hospital to breath out more fresh air she is been dreaming about. Poor Emerson who needs lots of love and attention... The doctors need to think so quickly to make you and Emerson happy again! Emerson did go to Michigan, did go to Chicago and did go to Colorado home so she might need to be adjusted where she is at and that should help her feel better, not sick again! My prayer is for Emerson to be released from the hospital and she can go to Disney World and can go home for the holidays. I would think she should try out for Thanksgiving day after her medication done after 14 days, she should feel much better????
Doris
We're still here for you and will be until Eme is out of the hosp. for good. Hope you get your weekend away from the hosp. --you deserve it!! God knows you need restoration too. Take care.
Lynda
Oh Sweet Emerson -- we will certainly continue to keep you close to our hearts in prayer! Bless you, Ches, Lynda, Tyler, and Maria (from Black Forest)
Kammy from LF
I am so sad that you all don't get to go to Disneyworld yet and for all the Eme is going through. For the last year, Joey's docs have ordered an Immune Cell Function" test to measure if his immune system is over or undersuppressed. The Dr. did state that they really don't know what to do with the results if they are somewhere in the middle, but if they are low or high, he felt it was an indicator of being over or undersuppressed. I don't know if this test applies to Eme, but though I would throw it out there. It has been new to us. Praying that things get easier soon and that Eme keeps bolting for the elevator :)
Amy - IL
I'm so glad you both got to get out of the room, I am sure it was good for the two of you. Prayers will continue and if you ever think of something you need or would perk up Eme's day (cards or pcitures to decorate the walls, dvd's, a fabulous tiara for Princess Eme) I would guess we all would jump at the chance to do it so let us know.
Maria Connely
You and Eme never cease to amaze me. That she bolted for the elevator doors once you were advised you could leave the confines of you room once again goes to show her own determination to continue to fight the good fight. I know your hopes are to be home for Christmas, but just in case, is there something Santa's helpers can send Eme to boost her spirits in case you are watching the twinkle lights from your hospital room? Much love, Maria
Elizabeth
Hi Erica, I am so glad Emerson is doing better today. I can't help but notice how hard this seems to be on you (harder than usual, I guess) and I wanted to ask if it is at all possible to move your family out to be closer to you? I just cannot fathom how you are going through all of this by yourself... Honestly, you do not give yourself enough credit, what you are doing is amazing, it is you and a team of doctors led by you, that is keeping your daughter together. I don't know how one person can do that without collapsing under the pressure. Anyway, I was wondering and thought I would ask... You both are in my prayers. Elizabeth
Cathy
OM Goodness! She is TOO Beautiful for words! How sweet and funny that she ran straight for the elevators! I don't blame her one bit! She knew right what she was doing! LOL! I will keep your little sweetie pie in my heart. God Bless you all.
Lisa & Rhyleigh
Sorry the doctor couldn't overturn the Disney trip but you can't say you didn't try! I am so glad to hear that Emerson is allowed to leave her room - that must have been thrilling for the 2 of you thinking that you were just going to have to try to keep her occupied in there for a week or who knows how long. Too funny that she headed right for the elevator. I know how badly you want to go home and you know how badly we all want that for you as well but just remember for Eme she is home - home is where you are - or her nurses and although it is sad that she doesn't know her real home I will keep on praying that she will one day. You and Jim need that and so do the boys. I would like to put you on my Christmas Card list - I know you are uncertain where you might be but where ever you think is best. I wish I could send all of you gifts but all I can afford is the gift of prayer - and maybe a picture drawn from one 3 year old to another. =) My daughter Rhyleigh sees Eme's pictures and once she used to always say she is sick now she says I want to go there. I want to play with her. =) Blessings, Lisa
That is so sweet. Tell Rhyleigh Eme says "HI"! Your support & your prayers are the best gifts of all - thank you so much.
Jen G
I just wanted you to know I meant no disrespect to you and what you go through every day. You are a survivor, Erika and thank you for your honesty. It was just something I thought of today as I'm off to meet my attorney to finalize my son's special needs trust.
omgosh Jen - I didn't think that AT ALL, please know that. It was a great question & it made me think!
Karen
Erika I have been following your blog for many many months, I started while my son waited for his gift. At the end of February he rec'd a stomach, snall bowel, liver and pancreas.....the journey since then has been very very hard with his suffering multiple complications, today he is home but his situation relains very difficult. I have spoken of Emerson with his Drs and they know of her. As I read your posts I feel a great sense of understanding, we share a story of similarities-unique paths but one that has brought me to your day to day story. Thank you for sharing your thoughts, your hopes, your triumphs and heartbreak. Know that your words have touched our lives....I continue to hope for wellness and comfort for you, Emerson and your family Karen & Ethan(age 9-my hero)
Wow - your doctors know of Emerson? What hospital were you at? Amazing how one little girl can touch so many lives!
Anonymous
I wanted to quickly respond to Jen's comment below. Not to be defensive in anyway at all, but simply because she posed a great question. "Do I ever wish I didn't know all the medical jargon?" Absolutely... I wish I had a little girl who could walk through the halls on her own & who could eat chicken nuggets for dinner. Without doubt, I much preferred my blissful ignorance before this. I never wanted to know what a gait trainer is, I didn't want to know the ins and outs of TPN or Vivanex formula or broviacs or roux-en ys or ..... the list is endless. However, given the reality of what IS, I wouldn't have it any other way. So, the end answer is no - I don't really wish for that anymore. It's absolutely impossible to stress how quickly these kids can deteriorate. I've heard countless stories of children post bowel transplant who've walked into an ER & died 10 minutes later. I'm not suggesting Emerson is the sickest or most fragile child in the world by any means, but she is sick & she is fragile - even on the days she "looks" good. Dr. B very recently told me my knowledge & vigilance is the only reason Emerson is still alive. He said the minute I let my guard down is the minute things will start to change for her. It's crazy, I know. It doesn't seem possible, I know. It's my new world, though, & if it's the only way to have Emerson in my life, I wouldn't do it any other way! Thanks for the question!
not sure why it didn't print my name at the top - it's from me :)
Jen G
Erika, first I would like to extend my deepest regrets that you won't be able to fulfill your promise to your kids regarding Eme's MAW trip. I can only imagine your disappointment and lack of words to say to your boys. Hopefully, you can surprise them with the trip at a later time. Also, I often wonder...do you ever wish you didn't know all the medical jargon? I know as a mother and caregiver to Eme, you NEED to know and understand all the terms they are using daily, but do you ever just wish you could focus on how good she looks on the outside? For me personally, I learned more terms than I ever cared to know as a 30 year old new mother of twins. My boys spent 2 months in the NICU and thereafter I deal with at least one admission a year with my son who has Down Syndrome. I pray that today, you can focus on how "good" she looks on the outside and somehow leave the rest behind. As always, I continue to pray for you, your entire family, Eme and the doctors who haven't given up hope for that beautiful little angel! She still has a purpose here on earth and I wish nothing but the absolute best for her!!
Tracey Hill Nies
Baby steps, baby steps. Just look how far she has come! Just the fact that you are talking about her walking through the halls-WOW! I'm sure it is frustrating, though. Since you are with her every day, the progress must seem so much slower. From here, the progress boggles my mind and warms my heart! Hoping you have a free pass this weekend! XOXO!
Donna
Figure out a way to take those boys to Disneyworld, those boys have gone through too much to be denied a trip. As hard as it is to say this, leave Eme at home and go with Jim and the boys they need to spend some quality time with you!
K.
I'd say the "weekend" is a reasonable goal to focus on :) I hope you do the weekend out. I'm sure you've gotten a little taste of the outside world and miss it even more these days. You know ever since you posted Eme's pictures at American Girl.... I WANT TO GO! ;) Oh my, how I would have LOVED that as little girl and probably still would. I was a little mother at heart even as a child. I dressed my babies and fed them well but I can assure you they were never taken to get their nails or hair done! WOW! Anyway, maybe I can dress Evan as girl for the day & go(he won't remember it).haha Love ya! Krystena
Patti
I did read your post from Sunday and didn't respond to it...which is not normally the case for me. I sometimes just don't know what to say other than I'm still praying for you and your family and that I continually hope that you guys catch a break for a change. I really do wish that I could bring more to your life than that. I just haven't figured it out yet, but hopefully, I will soon. Anyway, as always, you are in our thoughts and prayers. Stay strong...if anyone can, it's definitely you!
kv
I am absolutely crushed for you, for the boys and for Eme about Disney. I know that you and especially the boys have been anticipating this trip since you first decided to start the MAW process. If that wasn't bad enough,your post yesterday about watching Christmas decorations go up for the 3rd year in a row brought tears to my eyes knowing how you wanted nothing more than to be HOME already. On a more positive note - I am so glad that you have the ok to wander the halls...when the walls start to close in and you feel trapped, take a walk, even just for the slight change of scenery that it brings. Nothing I say here will change these things, but I am just a call or text away if you need some YOU time. Thinking of you guys tonight (as usual) =) Katie
Stacey
Thanks for updating today. My heart has been heavy for you after hearing of your further delay in returning home and the cancellation of your Disney trip. We continue to pray for Emerson's health to improve and for you to be together as a family again.
Joyce J from IL
OH Huh that was not fair! I wish the doctors and their teams have been working so properly and straightly with you..I really feel bad for you being frustrated by now since you can not be home for Thanksgiving Day that would hurt your boys and Jim mostly! I bet they hate being in the hospital on holidays for three years, what shame on the hospital doctors! Very sad! You just tried your best to cheer Emerson up by traveling a lot but the bugs spread out real nasty! I wish there was not swine flu starting yet! SAD again and crying for you and Emerson especially for your boys, too! WE will pray for you and Emerson to come home for Christmas for a test, this year! Oh No, the doctors can not cancel Disney World trip that will hurt Emerson and the boys real bad. The doctors better will give ok signal by next year, early part! Shame on the doctors being so cruel to you over Emerson. I bet you are not too happy about that. Please do not take it serious, just calm down and worry about Emerson right now and she needs you mostly, also! I am sure Jim can handle the boys so well! Pray for all of you to solve that problem to be straightened out in few months!
Trish Adams
My disappointment for each of you runs deeply. I know what it feels like to see those lights hung outside UNMC this time of year. I know how desperately you want to have the holidays at home. I know. I'm not sure what to say that might encourage you even just a little. Just know that we continue to stand with you as you raise your daughter and fight for home. How I wish things were different. I truly do. Trish
Lisa & Rhyleigh
I can't even imagine the disappointment you are feeling right now and the feeling in your heart of telling the boys. Is there any way at all someone could stay with Eme while you and Jim take the boys to Disney even if it is just for 2 days? Or maybe Jim could stay with Eme while you have that time with the boys? I can't even begin to imagine your position and wish there was something I could do to make things just a little easier for you. I often find myself reading back to your posts from some time ago. I was doing this last night and was reading the time when Eme coded and reading the Note to Self post - what an amazing post that one. One of my very favorites even thought so much pain is behind it. I think it is something everyone should do is write a note to themselves reminding them of things to remember to do and not forget. I am as I know you are so thankful for where Eme is today. I know it breaks your heart to think of the boys and Jim in one state and the 2 of you in another and I know it breaks your heart being told Disney has to wait for Eme but maybe it doesn't have to wait for the boys. I know the biggest thing that breaks your heart is the unkown - what tomorrow will bring. It must be so hard to sit in that room 24/7 but maybe you can bring just a little happiness to it each day - start celebrating everyday - be it with bubbles or streamers - a in room beach party for 2. All things red - all about the number 3...just remember how hard your entire family fought to get to this point and that every day is worth celebrating! Keeping all of you in my prayers!!! Lisa
Thanks for reminding me of that post. It brings tears to my eyes. What a tough time, but what a lot learned!
Lori SBS mom from CO
Erika- I'm so sorry that this is happening and that your holiday plans and make a wish plans are on hold. I can't help but think that bladder installations might help as well as IVIG ? (wx3) articles.complexchild.com/00013.pdf My son has colonozided bacteria in his gut that has been treated for years with IV gentamycin given to him thru his gtube. I have had many bladder installations of anti inflammatory drugs as well as antibiotics directly into my bladder- and I know Emerson's situation is vastly different I can't help but wonder if this would help. I am praying all the time for Emerson and for your whole family as well as her caregivers for insight and wisdom.
we're talking about it :)
Marlena Field
I have a lump in my throat and knot in my stomach imagining the disappointment you must feel about your plans. I have always loved and trusted Lucy's doctors, but at times like that I have felt like "the whole world" was against us having a normal life (knowing of course, that Lucy was just being cared for in the best, most prudent way possible). Still, seeing those Christmas lights going up . . . You are SO right. It is time for your family to be at home and together again. Wish I had something more tangible and immediate than hopes and prayers to offer you and Eme (and Jim and the boys, too). Those admissions after being outpatient for a "long" while are the pits . . . Erika, I'm so sorry, I can't even begin to imagine. I'm so glad you have your car. Do everything you can to keep yourself on an even keel. Nothing but love (and hopes for all things miraculous) from our family to yours.
Tifanny (Denver)
Sounds like it's time to get together some donations and do an auction to get those boys to DisneyWorld... Keep praying Erika! Let me know what I can do. Love and Prayers, Tifanny
Julie Balke
Erika, I can't imagine how frustrated you feel. I so wanted for you to be able to go home and be with all your kids at the same time. Sometime the paths we have in life leave us with so many questions. All we can do is put one foot in front of the other and pray for guidance along the way. Keep being Eme's biggest advocate. She needs you. You are her voice. Many prayers and thoughts your way. Julie
Ellen F
Erika, Eme sure reveals the miracle of the delicate balance of life. It's amazing that any of us can be healthy with so many dependent systems, resistant bacteria, and other quirks out there. Just as amazing is the healing powers that have brought Eme so far into this journey. Your doctors are seasoned to tackle this new challenge. You are seasoned to continue to ask questions and advocate for Eme. We are seasoned to pray for your family. It has all worked before and we have to believe that this too shall pass. My heart does break for Collin and Bradley. Our children are so needy. I get horrible guilt treatments when I can't drive on field trips. It is hard for kids to see beyond their immediate circumstances. Yet, your boys are certainly learning the most valuable lessons of life. They will cherish every moment of family time so much more than my children will. They have had to rely on God so much harder than my kids have to date. All of these lessons, though we don't wish them on our children, will serve them well in their long lives. It just is not easy, and that is an understatement. Keep going my friend. From my vantage point, you have done so well with each new challenge. So many powerful forces are fighting in your corner. All my love and prayers, Ellen
Toni
Ericka, I don't know what to say. I feel so...knotted up (for lack of better words) about the outlook regarding going home. I sooo want it for you and Em and your sons and husband. I am truly heartbroken for all of you. And I will continue to pray (wish there was more I could do. I'd offer to sit with Em if I lived anywhere nearby, so you could head to Disney with the boys. And yet, I know that's not the answer either.) Oh Ericka, how I wish greater peace and calm for you. Blessings, ~Toni~
Joan
Just checking in as I do daily. My heart just breaks for you as I can see you are torn between being there with Emerson and being with the boys. Please don't feel so guilty although I know it has to be hard. You are doing an awesome job as a Mommy and can only do so much.
Sherry Boyle
I continue to pray for Emerson and your whole family. I'm sorry to hear about all that is going on in her little body right now and pray that God will guide the doctors to just the right solutions for her problems. As you have said, Erika, this is no way to live. My heart goes out to you.
Tracey Hill Nies
Glad to hear they've figured out the bug is that Eme has, but sorry to hear it's so resistant. I'm so sorry to hear about the Disney trip being canceled also. I sure hope you two can get home for Christmas. I'll be keeping you in my thoughts. Thinking of you two all the time and checking in often!
Teresa
Hello, I have been checking in every day or so but have not posted anything. You both are in my thoughts and prayers. I'm sorry you are where you are but glad that you are in the right hospital with the right doctors. Take care of yourself.
Krystena
My goodness I hope you can be home for Christmas this year. I am so sad Eme won't get to go to Disney :( But...this just means you will still have it to look forward to. I always seem to "function" better when we have something to look forward to. Maybe she can go in the spring - fingers and toes crossed. It sounds like if there is a solution to killing this organism, they will find it. Give Eme my love, Krystena
Doris
Erika, I am so sorry for all the disappointment in your lives. I wish I had the right words to say to help you but I'm at a loss. We are still praying for all of you and know God never gives us anything we can't handle, so we trust in Him. I just wish I were closer and could hug you and buy you a cup of coffee and doughnut. Keep the Faith, God never fails. Doris
Joyce J from IL
Just Checking in and thinking about you and Emerson, hope she continues doing very well daily! We told the people in our church that we need more prayers for Emerson and also, you, too and told them about Eme's condition so we pray a lot about her. Hope both of you stay so well and stay away from the germ bugs around lately since the weather turned back to very warmer temps again everybody went out to breath out of their lungs and feel fresh again!
Jill Parks
Just thinking of you and Eme....prayers, hugs, and best wishes....
Melanie Oliver
Rebecca and others....check out the link "Holiday Shopping for Emerson" under the "Activities" tab above. This was established before the last holiday season, but I would assume that it's still active.
Rebecca Stevens
I don't know why I thought of it, but as folks are readying themselves for Hanukkah, Christmas, Winter Solstice...we should all consider the fine retailers on line who will also make a donation to Emerson and other transplant patients... If someone has done this and wants to tell us (the online-challenged) how to best do it, I think it's never too early...there's a cute Sears Commercial running here in Denver, don't know about Omaha, Erika, but it's a young couple saying they're waiting for "Black Friday" and the saleswoman says, "oh, every Saturday is Black Friday here!" I'm thinking if folks are shopping anyway, sort of like if you're praying anyway, say one for Emerson...kisses for you and you are too funny trying to auction her off. I'll bet there are no takers. Then again, point out Guardian Angels are tossed in for free! All of 'em!
Jen Wakefield Carpenter
Holy smokes... I haven't checked in in about a week because your posts were only coming every week or so. I like them better every week or so... I'm so glad to hear that Eme is doing better than from the beginning of the week. Hang tough there Mommy. You'll both get through this with flying colors. It's what you do. ;o) Big hugs. Jen
Tracey Hill Nies
Hope Eme is doing better and that you are home soon!
Shital Patel - Shyam's mom
A good Wednesday - we'll take what we can get!
Dianne Rios
Wow, Eme's guardian angels have DEFINITELY been working overtime! I'm so happy she is doing better and back to her spunky self. Prayers for continued health so you may all go enjoy Disney!
BOBBI HAWKINSON
Valerie has kept us updated and had us pray during her flight back to Omaha. I am so glad she is doing better. Happy Thanksgiving!
Leah Wells
Holy cow!! I missed a couple of weeks cuz my darn computer is still having issues - and I missed the weeks with a flurry of activity!! I'm praying for you all and will pass the updates along to all of the amazing prayer warriors on my end so that they can pray, too. Glad that you got to be home for a brief time. Can't wait until it happens for the long-term!! Much love and prayer ~
Amanda
Hi Erika, I've been following your story since the insurance problems last winter. As a new mom to a 6 month old little girl your story just amazes me. I don't know how you do it! You are a very strong woman and your daughter is absolutely beautiful! One question...I'm sure you have addressed this before but I was just wondering why Eme can't have a supra pubic catheter? I would think that this would make both your lives easier! I'm always thinking of you guys and I'm keeping my fingers crossed for a health trip to Disney World! Amanda
Lisa & Rhyleigh
Oh I am so happy for both Eme and you! All I can say is God is great! It's little miracles like these that often get overlooked. It's amazing how many little steps there were between the point you guys were in Denver to get her where she is right now and how every little thing went right! I will keep praying for her to get well soon so you guys can go back to the apartment. Are your car and Bella still back home with Jim and the boys? Lisa
Tracey Hill Nies
Yeah! I'm so glad she's out of the PICU! Keeping my fingers crossed for the 6th!
Valerie
OH SO GREAT TO HEAR!!!! She is such a silly girl! I am glad that sent you back to Omaha. They know her so well now. This outcome is a true blessing!! HIS HANDS WERE HOLDING HER TIGHTLY! :) Sending lots of smiles your way!!! GOD BLESS YOU LITTLE EME!!!!!
Laurie & Shania
I'm so happy to hear that Eme's stay in PICU was short! Thank God you have a good team in NE! They know Eme so they knew she needed to get back to NE! We want her healthy for her Make a Wish trip!!
The Pruitt's
Oh Erika, You handle the bumps in the road better than anyone I know. You are a great woman - mom - wife - friend. The world is better because of the example you set for us. I only hope that I am half the mom you are. The Pruitt's have new news... We will be expecting our 5th baby in June. Hoping we have a sweet little girl like Eme. We have had enough boys. I know what you are thinking -- we are crazy. Yeah, just little, but very excited to have hopes of a little girl. Hope Eme comes home soon. Give her a big hug from us in OKLAHOMA. The Pruitt's Rhonda, Chris, Collin, Bradley, Alexander, Parker and our June BABY.
sending loads & loads of pink girl vibes :) !!!!!
Cindy in Colorado
Thanks for the wonderful update! Love to hear good news! Keep up the good work
Joan and Kylie
That is the news we want to hear!! Those Guardian angels and their boss do amazing things.
els
Thank you Eme's Guardian angels! Keep up the awesome work! erika lyn smith
Amy - IL
Great news, glad to hear Eme is feeling better. Prayers will continue for good days for you and Eme.
Patti
Good news to walk into this morning! I pray for continued rapid recovery and many more smiles to come from Eme. Hang in there girls! Always in our thoughts and prayers. Hugs across states!
Sara
Expect Miracles! Pray Big!
Kathy Russell
Thank the Lord! He continues to hear our prayers for your precious little one. Hoping and praying for continued improvement so Eme can get back on track with the h... word and the Disney trip.
Joyce J from IL
This is much better to hear that Emerson is improving and moving to other floor that means she must catch a bug but now she beats it down so I pray that she will complete her health problems before she is able to travel to Disney on Dec 6th so she must love it on her first vacation to Disney that would be very exciting! Do not forget to bring camera along, ok! Erika, I sure hope you take enough sleep and rest through the nights again! God Bless all of you!
Elizabeth
What a relief. I am so glad that she is feeling better!!
Rebecca Stevens
What a little warrior. Not to mention her mommy. Please know I am praying and keeping positive...she's an amazing little girl.
Candice Behm - Portland, Oregon
Continual prayers for sweet Emerson & your whole family.
Erin Koesters
Woosh! I am tired just reading this. We love you two! Remember I am just upstairs, or a phone call away! Love ya- Erin
Anne Dennon
Once again Alison, thank you for your beautiful prayer. My thoughts and prayers remain vigilant for Eme. Anne
Ruth Turner
Hi Erika, I haven't written in a while -- was so-o-o hopeful that the trip home would go well, and that Eme would be home for good very soon. I am so sorry that now that doesn't appear imminent. I do not know how you cope; though you say you feel overwhelmed, still, you continue dealing with whatever comes up. Stay strong, and know that many prayers and hugs are being sent your way for Eme, you and your boys and Jim. Love, Ruth
Joan and Kylie
She WON'T miss the princess meal or the castle!! WE are sending good vibes your way and lots of prayers!!
Alison Stanley
Oh Erika, I am so sorry to hear of the recent turn of events with Emerson's health. Lord have mercy on this little girl. I have been continually praying (even on the good days). Today, I will leave yet another prayer in Eme's Guestbook. Heavenly Father, thank you for the healthy streak you gave Emerson Nicole. We are grateful for the time she was out of the hospital and visiting with her brothers, cousin, grandmother and close friends, like Aunt BB. Her mother served her tirelessly, attending to all her medical needs day and night over the past month and we thank you also for giving her the strength and courage to do so. Now, as she lays ill in the PICU, we ask your favor once again. We know that we can ask for your help infintely. There is no limit to the number of our petitions. Please heal her of her most recent malady. Through the power of the Holy Spirit, may she quickly and miraculously recover so that she can see her family during the holidays. Please Lord, make her well again. Give her mother peace, comfort and hope. Take care of Emerson's father and brothers in Colorado. Give them special graces to endure this trial, especially Collin who sometimes struggles with the separation from his mother. Build this family up in your love. We ask for this through the powerful and mighty name of Jesus Christ, our Lord forever and ever, Amen. God Bless the White family.
beautiful Alison - thank you :)
Cindy LF
Erika, I got a new puter and lost all my fav sites...you guys are one of my super favs. I'm back....but I haven't stopped thinking of you and praying for Emerson, you, the boys and super daddy too! Blessings to you as you sit in the red recliner waiting for Em to pull through this one. She will! We all believe in the strength of Emerson! Hugs to you, Cindy
Dianne Rios
I'm sorry Eme is not doing well, but I also pray that they averted many problems by treating her so aggressively. I will be praying that things turn around quickly.
Tracey Hill Nies
Hoping tonight's a better night and one night closer to a healthy Disney visit!
EMILY TAYLOR-WHITE
Hang in there girls!!! Sending hugs and prayers from Florida!!!!
Joyce J from IL
Oh good! Eme is gaining her strength again and hope it will stay more everyday while her team are working so harder on her before her first longest week trip to Disney! I hope she will make it through that exciting event. You, Erika, need more sleep and rest. Tell Eme not to give your mom scare again! You, Erika, did catch it early and made it smoother and easier to help her feel more better, I hope it will stay for good now!
Daisy and Joey
As always, you are on our minds and in our hearts. Keep Healing Emerson! You strong strong girl.
Joan and Kylie
We will just plan on seeing pictures after the wonderful trip in Decebmer. The villas you stay in are great, a little home away from home. Give the Kids the world is wonderful. It is a lot to pack in for one week ,but Eme will enjoy it. What room are you guys in? Kylie continues to fight respitory issues along with her ear. Her prograf levels have been out of wack so she is grumpy alot. Well, take care and prayers are going your way. Love Joan and Kylie
Lisa & Rhyleigh
I hope all this is just what Eme needs to get better! Thanks so much for keeping us informed through all this. Lots of prayers that she will bounce back and be all well and ready for her trip in December! Lisa
Danielle
So very happy to read things are improving. Hope things stay on that road. I hope you can get some rest today Erika as I'm sure you got little last night. Positive healing energy flowing Eme's way ALWAYS!
Kathi
Sending prayers for Emerson from North Carolina!
Amy in Wisconsin
Many prayers continue to be sent your way!!!!
Jean Griesan
Oh Erika. I read your blogs from the past few days, and tears are running down my cheeks. I don't know what to say except that this is SO not fair. However, in thinking about everything, I'm SO glad that you guys got home, even if you had to rudely leave on really nasty roads. I hope that you got to reconnect to a few of your old Children's nurses, therapists, and doctors. I'm sure that they were mightily blessed to have Little Miss Emerson back there and in-state, even though she didn't look so hot. I will start faithfully praying for a recovery and a good plan of attack on this new "thing," whatever it is. God bless you all! Big hugs, Jean
Ana and Savannah Anselmo
Eme is always in our hearts! XOXO, Ana and Savvy www.CotaforSavannahA.com
Mindy McCartney in Shreveport, LA
What an incredible, brave little girl you have. I haven't written in your guestbook in awhile, but I have checked in often and enjoyed your pictures. What a beautiful baby girl you have been blessed with. Stay strong mom, you are where Emerson gets her strength from. Know that there are many praying for her and for your family. Love from Shreveport!
amy patterson
just letting you know that I am praying...always praying.
Patti
Always in our prayers...hang in there ladies! I know you can beat this Emerson. We are all here for you....yes, virtually, but still here. I know it doesn't always feel like it, but know a day never goes by without you in our thoughts and prayers. Hugs and kisses to both of you!
Cinda Nethercott
Praying praying praying for Eme, always! Giving thanks for the good days and pleading for strength to come on the tougher ones. I hope you got at least some sleep and things will be brighter today! Thank you for all the updates!
Melanie Oliver
You both are in my thoughts constantly. Sending all positive vibes your way... Melanie
Nancy
I read your updates every day and pray for Emerson to be healthy and well. Please know that some of us do not sign the guestbook everyday, but are thinking of you and your family. Hugs to both of you.
Tracey Hill Nies
Glad to see she's a bit more stable. Thank goodness they caught it early. Hope you both are getting some rest.
Ruth (LF - Australia)
Erika, prayers for you and your family. Hope they caught this early and Eme can shake it quickly. Your family are in our thoughts.
Leisa (LF - Aus)
Again my love, thoughts & prayers are with you honey. Keep fighting the good fight Eme - you are a winner in my eyes!
Laurie & Shania
Erika we're praying that it's a quiet night, so you can get some rest. We're saying extra prayers for Eme!
Marlena Field
Oh, Erika! I just tuned in--I had really hoped Eme's outpatient streak would continue. You're always on our minds and forever in our hearts. Hoping for sleep/definitive answers for you and comfort for Eme.
Noelle Krimm (LF)
Thinking of you and Eme tonight. Checking in often and sending you as much strength and healing energy as I can muster.
Joan and Kylie
Just checking in on Eme and still praying. Let me know if you need anything at all!! joanfl@cebridge.net. Stay strong!! Try to get some rest, I know that is real possible in the picu, but you need it so you can keep up. I know. I am about to the run down point!!
Cindy in Colorado
We at home in Colorado are sending Emerson all the strength we can (with some extra for you). Keep your head up! Thanks for sparing all of us some of your thoughts and keeping us updated. Try to sleep!
Amy H.
Oh, Hang In There! I hope you get some rest this evening and that Eme's blood pressure stays high enough with no fluid build up in her lungs. She's such a fighter and you're such a great Mom. You remain in my thoughts and prayers.
Lisa & Rhyleigh
We will be here! Lots of Prayers, Lisa
Jules Badger - Sammamish, WA
Erika, You're always in our prayers. I'm so sorry that the roller coaster ride continues and you don't get an emotional break from this. I know you're desperately seeking normal. Do try to get some sleep if you can. I'll be thinking of you tonight and sending you love and prayers. In Peace and Love, Jules
David T
Erika - enjoy a restful night in the LRR :) You are as always, in our prayers. David and Carina
Anne Dennon
Thank you Erika for the update. Love and peace, Anne
ELS
sleep sweet eme!
Christy A.
Praying for Emerson ! Christy A.
Amy - IL
More prayers from Illinois, you are in my thoughts and prayers through out the day.
Glenda Wilson
Praying for: *much wisdom for the doctors to choose the right medications and procedures to best help Eme *Eme's body to respond perfectly to whatever her doctor's feel is the right and best treatment *you Erica to have a spirit that is peaceful and calm, strength to continue the long and lonely days of being in the hospital, great wisdom to know how to best advocate for Eme's care Hoping for the best for Eme, that this will be just one more hurdle she strongly jumps right over as she continues this marathon.
Anna Lake
“We can only appreciate the miracle of a sunrise if we have waited in the darkness” ~ Author Unknown ~ Praying that this period of darkness passes quickly for the sun to rise again for all of you. Thank you for sharing Eme's journey.
Trudy Kistler
Sending Love and Prayers your way....
Ellen F
Erika and family: I am so glad I decided to check in this morning so that I can join the prayer warrior team! One of my favorite quotes from The Shack was, "Grace does not depend on suffering to exist, but where there is suffering you will find grace in many facets and colors." You, Eme, and your family have revealed God's grace to me, and I pray that His grace will again deliver you through this challenge. May God's love envelop you and carry you through each moment of this challenge, just as you have taught me to pause and find love in each moment. I will stay tuned for updates. Thank you for sticking with us in today's state of uncertainty. All my love and prayers, Ellen Ellen
Elizabeth
Sending you many prayers this afternoon and evening from California.
Tracey Hill Nies
Praying for Eme, Erika. Wish I could be there to help you through this. Stay strong.
Suzanne
Thinking of you today, Erika, after reading your update. My heart is heavy for you. I wonder what I can do to help you from Colorado. Please, please let me know what we can do to help you or Jim and the boys. I would be there in a second if I knew I could help. Much love to you and Eme....
Cindy Dreifort
Praying for you all.
Kat in C.Springs
More prayers and positive thoughts for the two of you from C. Springs
Vito and Ladea Dante
Our thoughts and prayers are on the way. Lots and lots of healing energy and love for Emerson coming from Castle Rock.
Jenn Y.
Sending you lots of love and prayers... stay strong and remember what an amazing, beautiful little girl you have!
Tifanny (Denver)
Lots and Lots of extra prayers for your sanity and Eme's fight! I pray her angels are beside her holding her on. Love of Love, support and prayers to you... With love, Tifanny
Danielle
You are both in my thoughts and prayers. Positive healing energy flowing Eme's way. My heart hurts for you I look forward to another long period of few updates that characterize Eme's healthier times.
Lynn B.
I too am praying for Eme right now and will continue to pray for her and for you too.
Anne Dennon
Praying for you RIGHT NOW. Anne
Kathy Russell
Sending lots of prayers and positive thoughts from Ohio.
Valerie
WE ARE PRAYING BOLDLY!!!
Lisa & Rhyleigh
I remember reading that post well. My heart sank a little when I read this one just now. I know how frightened you must be. I am so glad they are more aware of Eme's issues now and are keeping a close eye on her. reading your words there will be NO Code is what we all need to be focusing on. Eme is strong and although right now she might be weak we know she has it in her to fight, but for now I hope she is able to rest some and let her body fight while she sleeps. You focus on her and we will focus on prayer! Lisa
Trisha Kurtzhalz- Helen's Grandmother
I'm so sorry to hear you are back in PICU but glad to hear that Eme's doctors are right on top of things. Hang in there - my heart is there with you. Sending love & prayers from Vermont.
Krystena
Be strong Eme girl. Love you, Auntie K.
ELS
Angels above eme angel below eme and angels all around eme to keep her safe.
Elizabeth
As always, I am praying for Emerson and praying for your continued amazing and inspiring strength.
Lisa & Rhyleigh
Just wondering during Eme's surgeries did they remove her appendix and gall bladder? I would think so but thought I would check. Those 2 can cause so much pain and problems and since you can live without them better to have them out with all the other issues she has faced. Lisa
Yep - they're gone
Lori SBSmom from CO
ncbi.nlm.nih.gov/pmc/articles/PMC1500934/ Couldn't help but wonder if this applies somehow ? couldn't post link w/ the www part of the link
Lori SBS mom from CO
Many many prayers coming your way. I'm so sorry that Emerson is doing poorly again.
Trish Adams
I hope answers are found today. So, so sorry she's sick again. Your right, this is the ride of a lifetime. Not one I'd ever intentionally buy a ticket for though. Hope she makes a quick recovery so that you can all pick back up your plans to get home soon. Still thinking of you girls and praying for you. Trish Are you still on the floor or back in the PICU?
Stephanie
Praying for Emerson
Tracey Hill Nies
Erika, I'm keeping you both in my thoughts.
Melissa
You are always in our prayers...
Lisa & Rhyleigh
Oh no - lots of prayers for her to get well very soon. I know this has to really concern you after her being out of the hospital for so long. I hope they can figure out what is going on in her little body and help her to be comfortable while they help her get better. I will check back for more updates and keep praying that she will improve. Lots of love and prayers to you both, Lisa
David T
Erika, Carina and I are praying for Eme (and you of course) and for the medical team, that He gives them wisdom and understanding of what's going on and the knowledge to treat it. We will check back often for any news and if there are any specifics we should be praying for, please just let us know.
Patti
Extra prayers for Emerson! Hang in there...I know how exhausting this is for both of you. You both can do this. Hoping you get the answers you need very soon. Hugs and prayers coming your way!!!
Stacey
We're watching your journal closely and praying for you. Sorry to hear how difficult things are right now. I hope you get some answers today as to what is going on.
Kat in C.Springs
Little prayer from the springs.
Doris
We're still praying. Keep the faith. God bless.
Krystena
I'm sorry to hear this. Please update when you can. K.
Kathy Russell
I'm so happy to hear she is doing better! We're still praying for quick answers to what caused this. I hope you slept well last night.
Ellen F
Hello Erika and Miss Eme! I had a Minnie Mouse on my doorstep on Halloween who reminded me of Eme! Good choice cutie! I wish things were not so challenging for you right now after all of the fun you have had. Keep trusting your instincts and we will be praying for God to see your family through this new hurdle. All our love and MEGA prayers! Ellen
Valerie
Oh dear!!! How awesome that Eme got to be Minnie Mouse! :) Halloween is fun with little ones. haha! :) We had a blast! I put together a carnival for Everett's 2nd birthday and halloween. It was a lot of work but definitely worth it!! :) I hope that Eme continues to pull through this sickness....you are strong. Hang in there...pray pray pray!! Take care!!! p.s. Happy Halloween (belated)!!! I hope the boys had fun trick or treating!
Joan and kylie
I am glad to hear things are a little better. We have not delt with CMV yet. Hang in there. Prayers are headed your way. Love Joan and Kylie
Anne Dennon
Thanks for the update. Still praying and wish for you a good nights sleep. Anne
ELS
Angels above Eme! Angels below Eme! Angels all around Eme! Erika Lyn Smith
Lynn B.
My husband and I are both praying for Eme. I am so sorry things are not going well right now. I really believe you were chosen to be the mom of such a special, wonderful daughter. Although we have never met, I want you to know that many, many people are following Eme's story and are so touched by her and are so inspired by you, her amazing mom. Hugs.
Janice
You and Eme are in my prayers! How I wish I could do something to help you. God knew just the perfect person to be Emersons Mother. I am not so sure I would be strong enough to go through all that you have. Try to get some rest yourself!
Kathy Russell
I'm so sorry Eme is not doing well right now. Know that we are praying hard for quick answers so they will know what to do for her, and hopefully it will be something they can correct easily. And too, we're praying for strength for both of you and the rest of your family. God bless all of you.
Tracey Hill Nies
Erika, I am so sorry to hear Eme is not feeling well. I hope they figure out what is wrong quickly and that it turns out to be some random (not too serious) thing like the latex in her nail polish. Keeping you in my thoughts. Tracey
Tammy
My family and I are praying for Eme you and your family!!!!!
Joyce J from IL
Very sorry that Eme is sick again so we will pray so harder for her to gain more strong and well again! Hope not another stay in the hospital through the holidays which are coming closer! Pray more for Eme to gain more strong but feeding tubes were off that is pretty helpful, I think so but developed more problem make sure labs did right tests from Eme, not from the other sick patients? I am wondering about that? WE will pray for her to gain strength to get better again! Hugs and God Bless all of YOU!
Joan and Kylie
We are praying for Eme!! We are praying hard!! She is a strong baby girl!! We will pray for answers and guidence. Also, for her to pull a turn around on us. Love joan and Kylie
Del Sawka
Sending love and prayers at this worrisome time. May God bless you and Eme and give you strength. Love Del
Jenn Y.
Send lots of prayers for you and Emerson. Stay strong and just be her mommy... that is what she needs from you!
k.
Ooh, the bruising worries me.... on top of low temps and low heart rate. Are her counts ok? Is this what her last DIC looked like initially? I hope not to scare you further :) I know your mind is way ahead of anything we could possibly think of though. Please update when you can. I'll be praying for a lesser of all evils. You gotta hope for "something" to be wrong... just don't let it be "something" unfixable. Love you much, Krystena
Lori SBS mom from CO
oops-didn't read the update from last night before sending my last message. I will be stepping up the prayers- I'm so sorry that Emerson is not doing well. Probably a long shot..but have they discussed giving her IVIG ?
Lori SBS mom from CO
Yikes what an ordeal ! I'm glad you got home for a little while, sorry that you had to go back to Omaha so quickly though. The weather was only bad for 2 days north of Denver. I'm sorry about the crummy timing. You don't have to be as complicated as Emerson to get into the 'clean room'/immuno-compromised room in the ER at Children's-my son always gets sent right back to the same room when he is seen in the ER. I hope the drs in Omaha set the drs here in CO straight and they are more comfortable listening to you when you are home for good. When we were in intestinal rehab in Omaha they prescribed ORS for my son- that he gets daily for his chronic/severe dehydration from his short gut- have they mentioned that to you in Omaha ? Maybe the situations are not similar enough w/dehydration ? The entire White family will continue to be in my prayers.
Leisa
Honestly Erika I don't know how you do this. You seem to take it all in your stride even if you are frightened and worried. You are an inspiration to us all. I am so so sorry to read what has been happening. Pleased to hear you got a little Halloween cheer though. Please know there isn't a day that goes by that we don't think about you. Love, thoughts & prayers from the other side of the world....
Laurie & Shania
Hi Erika, I'm glad that Eme was able to go to the halloween party! I bet she was the cutest Minnie Mouse! I'm sure the boys had fun too! I bet it was strange to be back at Childrens Hospital in Colo. We were there today. I'm glad that you're back in NE with the doctors that know what's best for Eme. I'm praying that it's nothing serious. Hoping to hear that Eme is actig like a crazy woman again soon! All of you are always in our prayers! Love you guys!((HUGS))
ELS
Erika as the previous post suggests...we are your verizon network. You get all of us through tick or thin and good or bad. We are praying for eme and you. You will stay the course. and we will stay the course with you...lots of love! Be gentle to yourself. Eme we love you lots! Erika Lyn Smith
Daisy and Joey
Erika, Natalie Goldberg, a favorite writer, says: "Continue under all circumstances." Sounds impossible. Until I think about the fact that you get up every morning and do what needs to be done for Emerson--and even put make-up on and look adorable! You've been doing and doing and doing it for over 3 years now. Can you imagine? You have a huge support group to catch you when you fall. I always imagine a marathon with people handing you, us, bananas and water at the sidelines. I used to wonder, "Which mile are we on?" Who knows. But we're all in this together. Call on us. Happy Extra Hour of Sleep (hopefully), Joey and Dais
Anne Dennon
Opps - I hit the send button before finishing. I could feel your message coming and checked in minutes after you sent it. Know that I'm with you in prayer RIGHT NOW. Blessings to Eme and may the Peace of the Lord be with you. With love, Anne
Anne Dennon
OK Erika ...
Joan and kylie
I am glad she has taken a turn for the better. They determined Kylie was nutripenic (sp) as of monday. Of coarse, when the doctors realized it , Friday had arrived. Her white count came back up to 3.5 from 1.5. We avoided a picu visit. You are in our prayers. Love joan and Kylie
Cinda Nethercott
Happy Halloween to you both! So glad she's feeling so much better!